GROUP NEWS
SELECTIONS
FROM OUR EMAILS AND NEWSLETTERS
December
1999
Health Care Year End Tips, Year 2000
Asthma & Allergy Assistance
Chronic Pain Outreach
Housing Info for the Disabled
"Sleep from A to Zzz"
Art: Navigating the Body
Chiari Malformation Info
Congratulations! CSN Award to our NoVA CFS Support Group
Introduction
Welcome to a CFSupport Newsletter! Please visit Group Newsletter Directory, Home, or About Us for more information. To receive our emails and news items, please join our email list and Yahoo! Group at http://groups.yahoo.com/group/CFSupport.
As a member of our CFSupport
Yahoo group, you would be able to browse
and search our
archives, use our Calendar of local and national groups, download
files, use our rideshare database as well as receive current updates of
interest regarding
CFS/CFIDS (chronic fatigue syndrome), FM (fibromyalgia), ME (myalgic
encephalomyelitis), OI (orthostatice intolerance), and more. We keep the number of emails to less than one per day on average.
YEAR END TIPS, Y2K
A health industry
consortium produced a booklet, "Health Care & Y2K," with these
tips:
- Ask your pharmacy
about its year-end access to medicine you are taking,
and refill prescriptions when you are down to approx. a 5 - 7 day
supply.
- Contact the
manufacturer of any implanted device or in-home medical
equipment you are using to see if it requires Y2K repairs.
- To inquire about
their Y2K readiness, contact your doctor, hospital or
emergency service provider.
PATIENT ASSISTANCE
PROGRAM - Asthma & Allergy
Maryland-Washington Asthma
& Allergy Foundation Chapter offers a patient
assistance program to help with .... transportation, medication,
supplies, equipment and tests directly related to the patient's asthma
and/or allergic condition. Eligibility is based on factors
such as income and household size. "Patient Assistance: Provides one -time
aid to patients with a demonstrated need. Typical assistance includes
emergency transportation or equipment." For more information, to
receive an application, call (800) 727-9333 or (410) 653-2880.
Updated 04/06.
HOUSING INFO FOR THE
DISABLED
You should know that
federal law protects those with physical or mental disabilities from
housing discrimination. To find out how the law applies to
different situations, the Bazelton
Center for Mental Health Law (202-467-5730) has produced a
PDF booklet titled "What
Fair Housing Means for People with Disabilities." (Updated
May 2003.) For a paper copy, send a check for $4.00 plus $2.00 shipping
to:
Publications Desk, Bazelton Center
1101 15th Street NW Suite 1212
Washington, DC 20005
Updated
04/06: Publications
Index. A related Information Sheet:
Allocating
the Burden of Proof in Disability Cases Under the Fair Housing Act (PDF)
EMILY
SUTTERLIN's "Sleep
from A to Zzz"
Emily Sutterlin, CFS
group member has again one an award along with her
Think Quest team. They were winners in the 1999 ThinkQuest
Internet
Challenge for their web project "Sleep from A to Zzz" You can visit her
web
project at http://library.advanced.org/25553/ .
NAVIGATING THE BODY
- visual art
Navigating The Body is a website that shouldn't be
missed! Susan Harman presents the experiences of 3 women
living with CFS & FM. It is a highly graphical art
site.
Updated the link 04/06
CHIARI MALFORMATION
Chiari tapes by the
American Syringomyelia Alliance Inc. We have talked in several issues
and at meetings about Chiari Malforinafion and we now have a phone no.
and address for those without computers who want the information. ASPA
300 N. Green St. PO Box 1586 Longview, Texas 75606-1586 (903) 236-7079.
Contact them for a free information packet which includes a listing of
available tapes for rent at $10.00. Not sure as to the cost of postage
and shipping.
CONGRATULATIONS
Congratulations to
Elly and the other group volunteers on our award from the CFIDS Support
Network for this past year's activities. It is a great
honor. Thanks to all.
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