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Table of Contents Directory
| Archives | Group's News | General News |
| Dec 2021 |
Coming Soon: Dec Conference Call Group Changed Email Services in 2020 New Contact Info |
Coming Soon: Patterson/IncellDx/ImmunoTrak Long Hauler Cytokine 14 test and treatment Elegant Bibs From grrrAttitude to Grateful Media Highlights Helpful products |
| Dec 2015 |
2016 Meeting Dates & Location Conference Call Time Change 2015 POTS Luck Covered Dish Contact Info |
Bateman Horne Clinic Elegant Bibs grrrAttitude Check Media Highlights Laptop Desk for Reclining |
| Jun 2014 |
CFSNova Meeting Dates & Location Several Speakers announced Member wins Poetry Contest Contact Info |
ME/CFS Assistant Why Does Mommy Hurt? Parents with Pain Community Never Been Gone Poetry Member does Kickstarter |
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Dec 2012 |
December Event: POTS Luck 2013 Meetings in Same Place Previous Meeting Notes Growth Via Gratitude Our Web Updates |
Research Participation: Self Compassionate Writing Media Highlights Books We're Talking About Healthy Home Products |
| Jan 2011 |
CFSNova Meeting Dates & Location CFS Nova Joins Facebook Contact Info See Summary Sheet for more |
EGG & Nervy Conference Call Info "Life as a BeachBall - How do you Roll/Role Play" by Elly Brosius |
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May 2010 |
A 2 page Printer Friendly PDF. About us, About the Conditions. Where and When are Meetings 2010 Schedule |
Teleconferences: Elly's Gratitude Group & The Call For Calming Creativity. Other groups for FM, CFS, OI |
| Feb 2010 |
Meeting Dates & Locations Previous Meeting Notes EGG Call Schedule |
Global News: Creative for A Second or Two Encouraging Email Lists Media Highlights New Books |
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Nov 2009 |
November Speaker: Mike Jawer Meeting Dates & Locations Previous Meeting Notes EGG Call Schedule |
Global News: ME/CFS Pocket Money Fund Oct CFSAC Meeting Links Media Highlights New Books Holiday Shopping (For & Gifts) |
| Apr 2009 |
A 6 page Meeting Handout (PDF) About us Welcome Dr. Cheney! 2009 Schedule, etc. |
Teleconferences Info Georgetown CFS Study DC area groups for FM, CFS CDC, CFSAC Meetings |
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Feb 2009 |
A 4 page Snail Mailing (PDF) About us, CFSupport turns 10 Where and When are Meetings 2009 Schedule Special Events in Spring |
Teleconferences for OI Group and Elly's Gratitude Group "Life as a Beach Ball" DC area groups for FM, CFS Dr. Rowe and Dr. Cheney to Speak |
| Jan 2009 |
A 2 page Meeting Handout (PDF) About us CFS Expert Speakers New Meeting Location 2009 Schedule, etc. |
About CFS, FM, Dysautonomia National and Local Contacts Teleconferences for sister groups |
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Aug 2008 |
A 2 page Meeting Handout (PDF) About us Where and When are Meetings Remaining, updated 2008 Schedule Special Event Oct 26 | MVPS/D & OI Group now by Teleconference About CFS, FM, Dysautonomia National Organizations for FM, CFS Quotes about Support Groups Elly's Gratitude Group |
| Jan 2008 | A 2 page Meeting Handout (PDF) About us Next Speaker: Binning Where and When are Meetings 2008 Schedule, etc. | About CFS, FM, Dysautonomia National and Local Contacts Next Gratitude Group Call NOVA Outreach |
| Dec 2007 | A 2 page Meeting Handout (PDF) About us Where and When are Meetings 2008 Schedule, etc. | About CFS, FM, Dysautonomia National Organizations for FM, CFS FM Documentary:"Living with FM" Next Elly's Gratitude Group Call |
| May 2007 | Future Nova
Speakers/Meetings Links to Meeting Reports: Pocinki, Friedberg, Gilbert & Bains, Fuller, Blackman Web Updates The EGG Dish | CFS & FM Awareness Day Events Media Highlights New Books: Riding Grace, FM and Sex, FM Complete Guide, More New CFS/FMS Support Group in Loudoun County, VA Friends and Family Resources Good Food & Water, Delivered Elly's Review of "Living with FM" |
| Apr 2007 | A 2 page Meeting Handout (PDF) About us, CFS, FM, Dysautonomia Where and When are Meetings Updated 2007 Schedule, etc. June - Friends and Family Meeting Sept - Mitch Lambros & SSDI | May 12: Free Screenings of FM Documentary:"Living with FM" Dr. Pocinki's page; will be on radio Dr. Friedberg's new page CFS Photo Exhibit to Union Station June 14 - Riding Grace Coast to Coast |
| Win 2007 |
PDF: 2 page Meeting Handout: About us, CFS, FM, Dysautonomia Where and When are Meetings 2007 Schedule, etc. Group Leader Elly Brosius on NBC News, November 3 - the launch of the CFS Public Awareness Campaign |
New Fibromyalgia Documentary: "Living with FM" Wiggles Actor has O.I. CFS and FM Expert Fred Friedberg to speak at Special Event between Nova CFS/FMS Support Group and Pain Connection® |
| Nov 2006 | Toni rates us "10" at RemedyFind Upcoming Nova Speakers/Meetings October Meeting Summary featuring Dr. Janine Blackman: The Return of Soul to Medicine & The Role of the Physician in Integrative Medicine Newest & Updated Web Pages Member Media News (Elly on TV!) Top 10 Non-Traditional Holidays The EGG Dish |
Spanish Language CFS Resources CFS is My Cause! Holiday Coping Holiday Items, Gifts, Cards: Raise Awareness, Funds for CFS, FM Excerpts of CFS Classic - The Alchemy of Illness |
| Sep 2006 | Upcoming Speakers/Meetings Member Artists A few recent CFSupport Emails Our New & Updated Web Pages The EGG Dish |
RemedyFind.com CFS/FM Media Coverage Sky dive benefits a FM support group! Energy Saving Tips, aka Saving a Trip October 2006 Townsend Letter: FM, CFS, MCS, Testing & Treatment |
| Sum 2006 | PDF: 2 page Meeting Handout: About us, CFS, FM, Dysautonomia Where and When are Meetings 2006 Schedule, etc. |
CDC puts CFS ads in Ladies' Home Journal and Better Homes and Gardens |
| Jun 2006 | Spring CFIDS Chronicle features speaker J Gilbert, Q&A w/ Brosius, & Sapiurka CFS Letter to Editor in NV Daily Possible CFS article w/ members Tips, Time Savers, & Tidbits |
Awareness Day -> Awareness Spring! Spark! To Ignite CFS Awareness Casey Fero CFS Tissue / Blood Bank YPWC Research Volunteers Needed CFIDS/FM Self-Help Course 6-12-2006 Participants needed for web CFS Study Social Security Hearing Prep Video New FM DVD; FM/CFS Books T-shirts, notecards, jewelry |
| May 2006 | Ira UnVolunteers Website Updates by Elly Brosius Awareness Event: May 12 at CVS Yahoo! Chat Gone May Summary - Antioxidants Jonathan Gilbert to Speak in June |
Public Awareness Campaign Lobby Days 2006 New Location for The Gilbert Clinic Press Releases re Genetic Factors Toni added as MVPS/D moderator NIH Mulitvitamin/mineral Conf. |
| 2005 | New Mason Meeting location | |
| 2004 | ||
| Oct 2003 | Speakers Support Group Current Affairs Pain Relief: Edited Excerpt's from a Member's Letter on Hopeful Device |
Resources & Links Dr. De Meirleir on CFS Quotes Les Simpson & Red Blood Cell Research Update Bio: Margaret A. Chesney, PhD A Personal Empowerment Study Video on Dysautonomia/OI CFS Advisory Committee (CFSAC) |
| Oct 2002 | Where and When to Attend a CFS/FMS Support Group Meeting |
DYNA Dysautonomia Video Quotes/Cartoon National FM Partnership AACFS to be in Chantilly VA *Deciding to File for Disability* Coping Skills-Chronic Pain (ACPA) What is CFS/CFIDS? |
| Aug 2002 | Meetings/Upcoming Speakers Group Leaders About the Newsletter |
Government Housing Assistance Excerpts ... "Making a Not TO DO List" What is CFS/CFIDS? |
| Jul 2002 | Our NoVA CFS/FM/OI Meetings Group Contacts Snail Mail Newsletters |
Dysautonomia in Washington, DC MD Bay Area CFS/OI Support Checking Board Certification Resources Disabled Parking with an Invisible Illnesses Cooking Safely What is CFS/CFIDS? What is FM/FMS? |
| May 2002 | Group Contacts: Elly Brosius and Toni Marshall Support Group Meetings Speakers |
Resources And Offers NDRF 2002 Conference Quotes Traveling? Help Move Your Blood What Is CFS/CFIDS? |
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"Inclined_to_Recline"_Published |
NDRF Conference in DC Wise Traditions Conference MVP Syndrome Symptoms MVPS/D Books MVPS Societies and Resources Virgina Tax: Subtraction: Disability Income Laura Hillenbrand Update Honor Your Emotions Quipu/Kipu Advocacy Project |
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Contact Information |
This Month's Thought Les Simpson, PhD - Red Blood Cell Shape Light Humor |
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9-11Tribute |
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New Group Contact Info: (703) 968-9818 14404 Brookmere Drive Centreville VA 20120 |
Encouragement Save on Prescriptions Drugs & Sun Double Check Those Medical Bills Joint Pain Tips |
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| Jul 2001 | Our Meetings | What is CFS/CFIDS? Health Insurance Battles FM: Real Illness, Real Answers NY Times A Thought Teitelbaum Book and Study Walk For Awareness Peripheral Vasular Disease (PVD) Coping with Stress of Chronic Illness Acurian/Yahoo Clinical Trials |
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Member Tonette Hartmann Books Recently Added |
Guide to Relaxation Techniques Resources for Friends and Family CFS Humor Synthroid Warning By FDA Lotronex Update Gluten Intolerance Alternatives To Push and Crash New Lyme Disease Studies Introducing FM Aware Magazine Lisa Lorden Leaves About.com Body Toxic: An Environmental Memoir Looking Good But Not Feeling Fine Research: Lymph Node Cell Transplant Final Word |
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| May 2001 | Summary of April Meeting by Toni Marshall Tonette to be Wash Post May 27 |
Dr. Sarah Myhill's CFS Info Online
More News: Member Laura Hillenbrand MVPS/D E-Mail List Source for Support Hose Area Health Seminars Revised CFIDS Assn WebsiteMember |
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Musings On |
Arthritis Foundation's Drug Guide
Transcripts: AACFS 2001 Conference More: Hillenbrand & "Seabiscuit" Collinge: Free Self-Help E-book CFS Management: Patient with Syncope Youth Network For OI/CFS CFS: ICD-9,10 Classification Categories Social Security E-NEWS Clinical Trial Info More: CFS Film "I Remember Me" Dr. Bell's "Faces of CFS" Krispin's Komments: Nutrition/Health CFIDS Association Panel On Neuroendocrine Abnormalities |
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| Quote - Member Lolly |
BD Barcodes
Dr. Koop & CFIDS National FM Partnership Post Traumatic Stress Disorder Alternative Medicine Websites What is CFS/CFIDS? Fed Tax Withholding for SSDI Help Reviewing Lab Test Results CFS/Seabiscuit/Hillenbrand: Wash Post Smiles |
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Sam Makoul, HeartMath Information on Recent Speakers About Our Email System, Websites Happy News: Wedding Happy News II: LTD secured Group Order of Mini Trampolines |
Quote Lobby Days to be Jun 20-21 What is CFS/CFIDS? Name Change Comments Reporting Serious Side Effects Folk Medicine: Respiratory Infections Friends & Family Can Help Supprt Groups Quote Non-toxic Pest Control Wonderful Websites Save Energy with Grocery Delivery Report on Gennero Fatigue Lecture Water Filtration Product Fibromyalgia News Mobile Health Screenings |
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CSN Honors Three of Our Own: CFSupport Email System Changes |
FDA Recalls Injectable Medications The Irritable Heart - Gulf War Syndrome A Tibetan Medicine Approach to CFS AACFS Conference In Seattle Jan 2001 Oct '00 State of Science of CFS Report Role Of Orthostatic Intolerance In CFS SSA Raises SGA + TWP Earning Levels & Increases SSI Student EI Exclusion Employment Law Referrals Steroids No Help 2 PWCs w Faint Feeling Illness Experience In Poetry and Art Nourishing Traditions Ideas for CFS Your Body's Many Cries For Water Washington Post on "Zits" and FM More Items In The News Recent Books Genetic Link To CFS Dissolution of Mont. Co. CFIDS Group |
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| Nov
2000 Speakers & Notes Our: CFS State of Science Mtg Musings Oct 00 CFSCC Mtg Comments |
What is CFS/CFIDS?
Nat'l Women’s Health Info Center A manly Support Hose Testimonial Fibromyalgia News Studies Happy Thanksgiving! |
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| CFS Bookstore on our Site Summary of August Meeting Summary of September Meeting Nominations for CSN Awards Qi Gong Massager Notes |
CFSCC State of Science held in VA Dr. Cheney - CFS - The Big Picture Mold and Allergies Next CFIDS/FM Self-Help Course "I Remember Me" Film Update Wash. Post on Myofascial Pain Warning Issued on Drug Lotronex Efamol/ Importance of Fatty Acids Michelle Akers Retires Part time work ideas for PWCs Keith Jarrett Interviewed Magnet Therapy Comments Lerner's Research Bell & Streeten OI Research Autoimmune & Autonomic Linked "Focus on the Family" Radio American Assn/ People Disabilities Isoprinosine Treatment for CFS |
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CFIDS Lobby Days 2000 Elly's Report July 2000 Meeting Summary
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GAO Report On CFS Released 8 Events Show Progress in Federal Efforts H-2-GO, Water Discussion Chi Kung / Qi Gong, Magnets CFS, FM related Books Job Accommodation Network , ADA 10th SNAP for Children With Special Needs New CFSCC Members Jason and Rabin CFSCC Website Nutritional Booklet Jy Chiperzak Novel: "And So It Began" October '00 State of the Science of CFS Recent Study By Drs Bell & Streeten New York Times Articles on FM & IBS |
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| Let's Chat Mary's "I am Thankful..." Support Hose |
LTD Speaker Bill Dale Drug Info Added to MEDLINE Drug Info Online Disability Atty Davis Fame 2000 Life Instructions |
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| Asthma & Allergy Assistance NCPOA Health Care Referrals Housing Information for the Disabled Moms In Touch Rx Drug Patient Assistance Programs Registry For Clinical Research Trials CFIDS Emergency Relief Services Montgomery Co Assisted Housing Research on Orthostatic Intolerance Patarca-Montero on CFS Research Chat with Berg of Hemex EPA Environmental Conditions by Zip CSPI Reviews of MultiVitamins, Stevia Verified Internet Pharmacy Practice Sites ConsumerLab.com Testing of Supplements |
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| Congratulations! CFIDS Support Network CSN Award to our NoVA CFS Support Group |
Health Care Year End Tips, Y2K Asthma & Allergy Assistance Chronic Pain Outreach Housing Info for the Disabled "Sleep from A to Zzz" Navigating the Body Art Chiari Malformation Info |
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< Dec 99 |
these newsletters.... | ....are still only in paper form |