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Thankfully,
many dedicated persons with and organizations for CFS, FMS,
& related disorders have web resources available on a variety of
subjects. We've grouped similar items, references, and links
to facilitate research and referencing. There are several pages, but a
complete index on each page. Use 'Search' page to
find more in our newsletters, media pages and other sections.
Relating to CFS, FM
-
I can See the Sunsets: Gratitude Clytie, Canberra FM/CFS
Recently one of my children got into crisis, and I had to use energy I didn't
have, trying to respond. Somehow, the thing that sticks in my mind -
and I'm not all that visual - is that while I was driving through the
darkening day, with a confused and scared child next to me, and the
drugs and the illness complicating driving to a critical degree, and I
was going into a bad situation, somehow right now what comes into mind
is that somebody up there put on the most stupendous sunset for me to
drive towards.
It was miraculous, great streaks and delicate
featherings of living pink and orange, set off by the deadened black of
the silhouetted trees and landscape. It brought tears to my eyes, tears
of gratitude. Being alive might mean CFS, pain, debility and despair,
but I can see sunsets like this.
When I was working, I never looked at the sky . . .
- Our Notes about Heartmath, Cultivating Gratitude
CFSupport, Elly Brosius
- Elly's Gratitude Group (EGG) for CFS/FM/OI
CFSupport, Elly Brosius
- EGGing Each Other On - Incitement to Insight
Pain Connection
Elly Brosius, with Toni Marshall
-
EGGdish Yahoo Group
- Gratitude Journals
SleepyDust ME/CFS & FM, PVFS E-Zine
- CFS is a Call For Soulwork
Gretchen Brooks Nassar
"Move beyond viewing
your illness as merely a physical, life-robbing illness, to
experiencing it as a teacher. Take a journey of the
soul. On this journey learn how to: embrace illness; decide
to
heal; enjoy “being;” connect to spirit
& nature;
move from being victim to victor; feel understood, cared for, &
hopeful; appreciate the gifts that come from illness."
- Benefits of Gratitude
Quick
- Gratitude Resources: Books, Journals, Movies, Music, Articles, more...
CFSupport
General
- A
Network for Grateful Living Brother David
- Be
Thankful Victoria Monfort
- Finding
the Gift, Bad Days Daily Om
- Free Thank You e-Cards Gratefulness.org
- Gratitude
Beliefnet
- Gratitude
Spirituality & Practice
- Gratitude
and Healing Resources Gratitude Works
- Happy
Health News Happy News
- HeartQuotes
HeartMath
- Learning
To Like Ourselves. How? Be Grateful. Holistic Online
- Positive
News News for the Soul
- Positive
Quote of the Day Positive
Press
- Positive
Thoughts, Positive Feelings (Move Problems into Possibilities) Holistic Online
- Read about Gratefulness Gratefulness.org
- Simple
Abundance Sarah Ban Breathnach
- Take Heart Recovery Happens William Collinge MPH, PhD
- The Recovery Phase in CFS William Collinge MPH, PhD
- Karen Cripps
‘I started to understand that CFS was a rather loud message from my body that my previous lifestyle was not serving me, and that I had to make some fundamental changes to the way I lived my life.’ and
‘I learned about nutrition and I followed an extensive supplement program. But more significantly, I began to address the psychological component of a physical illness, and the spiritual/emotional side of recovery.’ and
‘It has been an incredible journey and I have changed nearly every aspect of my life. I believe that it is because I have been prepared to do whatever it takes (including facing up to my own role in all of this, which can be really tough), that I have made such big health improvements.’
Karen Cripps writes about her holistic recovery on
The Reinvention Tour website.
Source: The Secret To Healing From CFS
Owning Pink by Lissa Rankin - 3/21/12
- Margo Nagy
‘After 26 years of struggling with CFS, almost dying, and trying everything possible to recover...
3 years ago I discovered the key to healing CFS, depression and other illnesses thanks to a Master Herbalist.
The underlying cause is a condition called "Chronic Reversed Polarity" which can be normalized.
I recently published a book about this with other tools to heal.’
Radiant Health & Happiness Is Possible -
How I Healed From Chronic Fatigue Syndrome
Author’s website
Margo Nagy - 3/10/12
- Zoe Cormier
‘It was very much like being a dead person … I could only lie there.’ The
victim of an exhausting, little-understood malady, this young woman
spent six long years confined to a darkened room. Zoe Cormier describes
how a new – and surprisingly simple – therapy brought her
back to the light [Lightning Process] 'Talk Therapy' Takes on Chronic Fatigue Syndrome, Coming Soon to Canada
The Globe and the Mail - 3/8/08
- Alissa Lukara - "In the wee hours of a June
night in 1998, Alissa Lukara decided to write the story of her
struggles with childhood sexual abuse and illness. She recorded the
moment in her journal, adding that "the pain of not writing has grown
bigger than the pain of writing it." Twelve
hours later, she says, in a healing workshop in Ashland, she had a
complete remission of the chronic fatigue syndrome that had plagued her
for 12 years." Mail
Tribune - Feb 2, 2007
Riding Grace chronicles Alissa Lukara’s no-holds-barred 12-
twelve year quest to find redemption from a debilitating, presumably
incurable illness, Chronic Fatigue Syndrome, rooted in the trauma of
childhood sexual, physical and emotional abuse. In her raw descent into
the dark night of the soul, she renders the unspeakable in a bold,
lyrical voice. She learns to accept the unacceptable and open to
miracles, healing and grace.
Book
at Amazon: Riding Grace, A Triumph of the Soul
- Jennifer Johnson - In a 10NBC of Rochester, NY, news
piece where Jennifer came Washington, D.C., attended a CFS
press
event, conducted interviews and produced a news segment that aired
November 8, 2006, anchor Jennifer also shared her own story. She had
CFS during high school and was profiled in a Boston Globe article in
1994, telling how her life as an honor student and varsity athlete was
dramatically changed by the illness. Although she has recovered now
[without knowing how or why], she still celebrated the press event as a
long overdue turning point in recognition for CFS. Jennifer's report
includes interviews with CFS expert Dr. David Bell and other
CFS
patients. View the video and the transcript at
http://www.10nbc.com/index.asp?template=item&story_id=20711.
- Adrianne Ryan
"Several years after contracting the disease, her health has finally
returned."
[No details given.]
AP:
CDC regonizes Chronic Fatigue Syndrome 11/3/2006
- Rich Carlson's Quite Detailed Road to Recovery
ProHealth
CFS & FM Treatment & Research News, CFS Edition,
October 4, 2006
- Deborah Stokes
"I had just assumed that I would never be able to do the things I used
to do physically again. I had heard about a [practitioner] and after
two months on them [customized chinese herbs], I have been entirely
symptom free! I am now able to run for the first time in 5 years
without collapsing afterwards! I am very grateful for the health and
peace that alternative medicine has provided me."
Campaign for Better Health
"I had Chronic Fatigue Syndrome and I was pretty
crippled from it," said Deborah Stokes, of Alexandria, who previously
had practiced limited alternative medicine on her own. "I was exhausted
and I had tried every drug, every type of treatment and nothing had
given me my old energy back. But for six months I've been symptom free
- I even sent [Gilbert] a Christmas card thanking him for the best gift
I've ever had."
Fairfax Journal
- Deb Sapiurka
[If asked] “How do you know you’re
cured?” I would respond that since there is no
medical proof that someone has CFS, there can be no medical proof that
one doesn’t. I only know this: I was very sick for a very
long
time. I no longer feel sick, and I no longer consider myself to be
suffering from a debilitating disease.
Perspective
on Integrative TREATment Online Bonus: Q&A, The CFIDS Chronicle
- Lyn White
"What
Reverse Therapy believes is that your body is sending you messages all
the time. If you ignore these sensations then your hypothalamus picks
up on this," says Lyn. "If you are feeling fear it wants you to find a
way to be safe; if you are angry, it wants you to defend yourself. If
you ignore them it is like a pressure cooker and all the emotions boil
up." At this stage, according to the theory, the pituitary gland goes
into overdrive flooding the body with adrenalin. "When the feedback
mechanism breaks down, hormonal and nervous messages get
short-circuited and people can get stuck in that state." ...
As part
of the therapy she used message cards to prompt her to remember to heed
her bodymind' rather than her headmind'. To the amazement of her family
and friends Lyn is now fully restored to health. If anything, Lyn now
feels even better than she did before her illness.
'I
used reverse gear to beat ME' The
Northern Echo, UK - Jan 27, 2007
- Cheryl A. Chamberlain
A personal journey of one woman's
battle with the
physical and emotional torment of FM, a journey that begins with a
traumatic accident leading to a life-threatening blood disorder
followed by a 15-year nightmare of adverse drug reactions and the
symptoms of FM. FibroMYalgia
Story
specifically deals with the personal relationships and interactive
issues while desperately trying to live with Multiple Chemical
Sensitivity Disorder. The author feels there is no textbook protocol to
finding a 'cure' for FM because the disorder is life-circumstantial and
individually based. The author uses FibroMYalgia Story as an example by
creating her own time-line of circumstantial events leading to the
onset of the symptoms and the journey lead by her own spiritual guide
resulting in her reported full recovery. She hopes the book will be an
instrument in 'challenging' others to overcome this
‘real’
yet still controversial disorder.
Book
at Amazon: FibroMYalgia Story: A Spiritual Journey to Healing
- Mark Llewellyn Hall
One man's experience with Chronic Fatigue Syndrome is a combination of
literature, poetry, politics, philosophy, and more. In his
senior
year of college, Mark was suddenly struck down by CFS. The
book
details his six-year struggle with illness in a striking coming-of-age
story. However, CFS is more of a backdrop for his story than
the
focus of the book. Hall writes about love and loss, struggle
and
survival, and ultimately the maturity and wisdom he acquires as he
regains his health.
Book
Review: Dazed and Fatigued in the Toxic 21st Century
- Thomas Day Oates Jr.
Chat
Transcript: Healing CFIDS - About.com
- Bruce Campbell, PhD
Recovery
from Chronic Fatigue Syndrome -- One Person's Story
- D. Patrick Miller
A
Healing Journey Through Chronic Fatigue Syndrome
"Uncanny coincidences began to occur as I learned
to
trust both my intuition and the logic of the illness itself." "As my
desperate hold on something inside myself relaxed, I recognized for the
first time exactly what anxiety was by its absence." "CFS taught me
that I needed to develop multiple points of view on life." "I became
ill in part because my mind and body needed to regain the spiritual
energy I had known as a child." "My recovery did not begin
until
I surrendered my pride, defensiveness, and self-image."
"What I was not aware of was what I now recognize as “deep
stress”: the fundamental and substantial tension of
maintaining
and defending the personality I had built for myself by my early
thirties. This personality carried a great deal of unexplored,
unexpressed resentment and sadness that had been invisibly sapping my
vitality for years. Those suppressed emotions showed through in my
personality chiefly as a sarcastic fatalism about life. Inwardly, I was
often beset by circular and repetitive worries, although my calm
demeanor mostly concealed this stress from other people."
- Paul B.
CFS_CFIDS_ME Yahoo Group - promotes friendly discussion about
places, physical locations where people feel more or less recovered
from CFS/ME/CFIDS.
- Allyson McQuinn
The Homeopathic Treatment of Fibromyalgia
I'm not sure it is enough to say that I have witnessed
many recoveries of Fibromyalgia patients over the past four years that
I have worked at two Heilkunst Clinics. I have heard many testimonials
from patients who no longer experience chronic pain who also found
personal freedom on their own path to healing. I recall one woman who
left her chronic pain behind over six months of treatment. She had
recently left her husband and was providing support to other FM
sufferers and telling her own story just as I was. Mostly, I'll never
forget how her dull lifeless eyes became full of animation over the
course of those months.
- DeAnn Upton
How Reiki Saved My Life
- Our Daughter
One Woman’s ‘Amazing Recovery’ on the Marshall Protocol
- Howard Savage
Reflections of an Ex-Chronic Fatigue (C.F.S./M.E.) Sufferer
- Ken Nightingale©
My story of recovery from ME/CFS and how I intend on staying healthy.
- Alex Barton and 50 more
As Alex Barton
lovingly
proves in this excellent book, people with CFS/ ME/ FM CAN CLEARLY
RECOVER and do best when both the physical and psycho-spiritual issues
are treated simultaneously. In this excellent book, 50 CFS patients
offer hope and insights from their own personal journeys, so that
people can begin on their own road to recovery. Alex Barton has taken
on the important task of showing you how you can recover by treating
both the physical and psycho-spiritual components of these illnesses,
while offering you resources for you to explore. As you read this book,
make notes of those things that FEEL best to you, and begin with those.
Prepare to be empowered! --Jacob Teitelbaum, MD, Medical
Director Fibromyalgia & Fatigue Centers, Inc. USA
Recovery
From CFS - 50 Personal Stories (An E-book) and now in Print Form (2008)
- Lorna Searle
...
One former sufferer is a Monument [IL] woman named Lorna Searle.
Her neck was injured in a wreck involving a semi back in 1985, yet long
after she should have fully recovered, she still experienced
debilitating pain and extreme fatigue. The diagnosis:
fibromyalgia. ... The pain confined her to a wheelchair.
... Lorna's fatigue left her essentially bed-ridden. She
rarely left the house. Yet for all her tiredness, she had an
incredibly difficult time sleeping. Lorna's fibromyalgia was
accompanied by Chronic Fatigue Syndrome. ... Remarkably, Lorna's
fibromyalgia and chronic fatigue have been essentially cured by a
medicine readily available over-the-counter. [Paul St. Amand,
MD's treatment of guaifenesin (gwye-FEN-eh-sin), the expectorant found
in over-the-counter decongestants such as Robitussin, Humibid, and
Mucinex.]
Possible OTC Treatment for Fibromyalgia & Chronic Fatigue KRDO, CO - March 12, 2007
- Lisa Eva Gold
A personal story of an extended case of mono in
2006. Self-care,
family life changes, attitude shifts, more satisfying work lead to
recovery.
Frank, encouraging, hopeful. Stresses the importance of the wake
up
call of chronic symptoms. Self-published with grammar, spelling, and
typographical errors but the story and caring plea of author comes
through. From her paperback book of May 2008: "Chronic fatigue is a
crippling, undeniable, dis-ease. There is no cure for this dis-ease. Or
is there? Could it be that we have the power within to overcome chronic
fatigue. Through the authors journey from illness to recovery, may you
be inspired to overcome your dis-ease."
A Will to Survive: A Woman's Journey Through Chronic Fatigue
- Patricia Jane Taylor
Patricia found a cure for Chronic Fatigue Syndrome using a holistic Japanese
healing art, as well as several metaphysical methods, such as positive
affirmations, prayer and spiritual counseling. Patricia did not accept
the "there is no cure" prognosis from her doctor. There was a total
lack of help from doctors in western medicine. She suffered a long time
and searched everywhere until she finally found a solution in the
holistic and metaphysical community. After suffering with CFS for
eleven years Patricia is now well. This is the story of her struggles
with the many symptoms of CFS such as memory loss, cognitive problems,
mood swings, panic attacks, food allergies, extreme fatigue, loss of
libido, crippling depression, fibromyalgia and her resulting financial
ruin
Author of 2002 e-book, paperback, "Chronic Fatigue Syndrome, There is a Cure"
Spirituality
- Carrying what we learn Back Into the World
Kat Duff, Alchemy of an Illness
-
Illness can limit Life or open a door to Transformation
Kat Duff, Alchemy of an Illness
- CFS is a Call For Soulwork
Gretchen Brooks Nassar
- A Healing Journey Through Chronic Fatigue Syndrome (PDF)
Miller / Fearless Books
- FibroMYalgia
Story: A Spiritual Journey to Healing (Book) Chamberlain
- Recovering
from Chronic Fatigue Syndrome: A Guide to Self-Empowerment
Using Your Illness as a Teacher (Chapter
12) William
Collinge
- Summer
Renewal & Spirituality Cynthia Webber (Jausten) -
Suite101.com/FM
- Miscellaneous
CFIDS Topics: Spiritual Value and Chronic Illness The CFIDS Report
- The
healing journey: benefits of retreats The CFIDS Chronicle
- Abstract:
Religiosity (and Spirituality) may help preserve the cortisol rhythm in
women with stress-related illness ImmuneSupport
- Majid
Ali, MD, CFS/FM Clinician, author of The Canary and Chronic Fatigue
Articles from Aging Healthfully Magazine:
-
Expanding Your Spiritual Life
Elisabeth Deffner
FM patients offer tips on strengthening your spiritual life
-
Spirituality Articles Index NFMCPA.org
- CFS:
General & Spiritual Health Recommendations Holistic Online Remedies
CFS
will best benefit from a sustained and multipronged approach to
healing. If you are diagnosed with chronic fatigue syndrome,
support both your mind and body with all the resources at your command.
Above all, be patient. CFS is a complicated condition that cannot be
resolved overnight.
CFS is a condition in which life force energy has been depleted and in
this sense can be thought of as a spiritual disease. This is usually
associated with a deprivation of love. Techniques such as
intimacy-enhancing exercises, meditation, prayer, gratitude, and
especially forgiveness, can help to strengthen the immune system while
giving your body, mind, and spirit an infusion of the healing energy of
love.
Disclaimer:
NOVA CFS/ME, FMS & OI Support Group members are not medical,
counseling, or legal professionals. Please seek qualified practitioners
for diagnosis,
treatment and legal advice.
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