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Q & A, Our Way - Index

Insightful, Conversational, Encouraging,
Long-winded Answers to Questions from Experience
of
CFS/ME, FM/FMS, OI and similar syndromes

What to Do First

• Q. Are there in-person meetings?
• Q. I'm Newly Diagnosed. Now What?
• Q. How do I use this Website most Effectively?



Cognitive / Mental Processing, Vision, Hearing

• Q. Do people have trouble reading/comprehending?
  
• Q. Do people have early cataracts or floaters?
• Q. Have others stopped listening to music?



Can't Work

• Q. Is it possible to get Social Security Disability Income (SSDI) and Medicare ?



Symptoms

• Q. Can chills be related to dehydration?
• Q. Do others have trouble getting a satisfying breath?
• Q. Is there help for tense and achy shoulders and neck? [Coat Hanger Pain]
• Q. What is Orthostatic Intolerance (OI) and the connection to CFS/ME & FM?
• Q. Did you say I might have OI if . . . ?
• Q. I'm tired and overwhelmed and don't want another condition. Why does it help to know about OI?
• Q. What does it feel like to have the different types of OI?
• Q. What are symptoms of Mitral Valve Prolapse Syndrome / Dysautonomia (MVPS/D)?
• Q. Why does a CFS/FM group discuss MVPS/D?



Anesthesia / Surgical Procedures / Medical ID

• Q. Anesthesia & Procedure Preparation:
  What's different if I have CFS, FM, OI, MVPS?
• Q. Where do I find medical ID bracelets and wallet Cards?
  I'd like to list my drug sensitivities somewhere!



Communication About Illness

• Q. Naming vs Describing Symptoms: Why is that important? Why don't people understand my "anxiety"?
• Q. If I can only attend one meeting a year, and I like food and quiet parties, is the POTS Luck for me?



Help Around The House

• Q. Is there help for organizing, paperwork, shopping, cleaning, personal care?



Spouse/Carer

• Q. Any words to help me help my spouse?



Functional Clothing: Bib Aprons, Support Hose

• Q. Is everyone else clumsy, spilling stuff?
• Q. Are support hose really worth the trouble? Where do I get them?



Attitude, Appreciation

• Q. What is HeartMath? Why do you mention it?
• Q. Where can I learn about your companion group dedicated to attitude and gratitude?
• Q. Do others with ME/CFS, FMS, and/or OI feel detached at the holidays?