CFS/CFIDS,
M.E., FM/FMS, Chronic Pain, OI, MCS, GWI
Association
& Support Group Directories
CFS
/ME
Fibromyaliga
Dysautonomia
Support Group
&
Association
Links
|
US STATES |
COUNTRIES |
WITHOUT BORDERS |
Directories of Groups |
Searching for More Support Groups |
Northern VA; Metro Washington, DC; Baltimore, MD |
Mid-Atlantic Regional |
|
|
Details for
Professional
Organizations |
US &
International Professional Organizations
for CFS, FM, and other
|
|
|
"Other Illness"
Support Groups
Wash DC Area |
DC,
MD, VA: Chronic Illness Support Groups
Includes: IC, Lyme, Pain, NVA-Vulvodynia,
MCS, & more |
We understand this page is out-of-date. We have made known changes. If other groups' links do not work, perhaps do a web search on their name. Please send updates you find or know about to Elly at
cfsupport+owner@groups.io
Acronyms
CFS: chronic fatigue
syndrome, ME: myalgic encephalomyelitis, FMS: fibromyalgia syndrome,
OI: orthostatic intolerance: MCS: multiple chemical sensitivities,
GWI: gulf war illness.
Northern Virginia, Washington DC, and Suburban Maryland CFS/FM/OI Groups
- Northern VA CFS/ME, FMS, OI Support Group with CFSupport
[Founders of this site!]
Northern VA CFS/ME, FMS, & OI Support Group
14404 Brookmere Drive
Centreville VA 20120-4107 USA
Phone:(703) 968-9818 - Elly Brosius
Web 1: http://www.cfsnova.com/
(One click Spanish Translation!)
Web 2: For email, etc: http://groups.io/g/CFSupport
Email: CFSupport+owner@groups.io
(Reaches all leaders)
Facebook: http://www.facebook.com/cfsova
To subscribe, see Web 2 above or, for limited access, send a blank email to
CFSupport+subscribe@groups.io
Meetings: 2021: Occasional Special Events and Virtual Conferences only.
- Elly's
Gratitude Group (EGG)
A volunteer and peer led discussion group for people with CFS, FMS and
OI,
focusing on the healing power of gratitude to transform hearts, health,
and life with debilitating conditions. We practice appreciation to
accelerate healing. Occasional meetings by US national teleconferences.
Callers only pay for their own long distance charges, use free minutes,
or a phone card. Occasional in person locations include
Northern VA and suburban DC restaurants and
libraries. Dates and times
also vary and are announced via the Events page,
EGGdish
group e-mail, and our EGG
Resources Page. Call Elly 703-968-9818.
-
Bethesda ME / CFS & FM Support Group
E-mail: Picture of Email Address
Website: sites.google.com/site/bethesdamecfsfm
Newsletters:
Archived Newsletters starting Fall 2011
Meetings: Audio/Video in 2021. 2nd Tuesdays of month in evenings. Sign up for email for details.
Library.)
-
Fibromyalgia Fight Club - Book Club & Support Group
Contact: Nancy
Web: http://www.meetup.com/Fibromyalgia-Fight-Club/
Meetings: Yes. Location varies in and around Arlington, VA. 2020: Virtual meetings.
-
Main Website doesn't work.
Montgomery County Fibromyalgia Consortium
(was added as "DC Fibro FM Support Group" in 2009)
Contact: Melissa Porter
Email: melissa@dcfibro.com
Web: www.dcfibro.com
Facebook: Montgomery County Fibromyalgia Consortium at Facebook (starting 2011)
Meetings: unknown
"Currently we are working on designing our site. However, we can start a
conversation now (2010). I hope we can have some great conversations about the
many aspects of Fibromyalgia.
- (Loudoun) Fibro/CFS/ME Daytime Support Group
Contact: Rowena Beatty
Meetings: No longer meeting regularly in 2012. Special occasion only.
- Loudoun CFS & FM / Pain Management Seminar Group
Ended Nov 2009
- Manassas Chronic Pain Meet-Up (Meet Up closed
03/09)
-
Fredericksburg
Area CFS/FM C.A.R.E. Group
(Commitment, Advocacy, Respect, Encouragement)
Meetings:
Contact: Shanon Hope McQuown, Group Leader
Phone: (540) 720-2901
Web:
Email: shmcqchildofgod@msn.com
- Daily Pain
Contact: Teresa Emerick, (540) 247-9535, E-mail
Web: dailypain.webs.com
Meetings:
Valley Health Wellness & Fitness Center
401 Campus Blvd, Winchester, VA 22601
3rd Wednesday of each month, Feb. thru Nov.
(dates can vary, so check website or call)
Purpose: Education and Emotional support for people with
Fibromyalgia and CFS, their families, and anyone in the
health care profession wanting to learn more about these illnesses.
(Entry updated 3/2012)
-
Pain
Connection® and The Chronic Pain Outreach
Center, Inc.
12320 Parklawn Drive
Rockville, MD 20852
Phone: 301-231-0008
Web:
Nationwide Pain Connection Support Groups
Email: info@painconnection.org
(updated 04/2021)
- Chemical Reaction Support Group
Membership Info: Larry Plumlee, laplumlee@pol.net
Web: http://www.chemsense.com/
Meetings: in Maryland and Northern Virginia
-
Arthritis Foundation, Metropolitan Washington Chapter
4720 Montgomery Lane
Bethesda, MD 20814
Phone: 800-365-3811
Web: http://www.arthritis.org/chapters/metropolitan-washington/
Email: twade@arthritis.org
-
Arthritis Support Group, Charlottesville VA
Contact: Jennifer Collins, MS ATC
Location:
Pantops Physical Therapy
1490 Pantops Mountain Place, Suite 202
Charlottesville, VA 22911
434-245-6472
Meetings consist of guest speakers and discussions.
Meetings are held on the first Monday of each Month at 6:00pm
Please call or email us to confirm specific dates.
Email: cvillearthritis@gmail.com
Group participates in the Arthritis Foundation / Charlottesville Bone Bash
- Baltimore/Washington DC IC Support Group
P.O. Box 285
Bel Air, MD 21014
Tina Nachodsky, Group Leader
Web: http://www.baltodcicsupport.com
Email: tina@BaltoDCICsupport.com
Meetings are quarterly.
- Well
Spouse Support Groups - DC/Maryland, Northern VA
A
group sponsored by the Well
Spouse Foundation, a national organization
supporting spouses caring for a chronically ill or disabled spouse.
Northern VA: Meets the 3rd Monday of every month from 7:00 - 9:00 PM in
Burke.
Maryland: Meets the 2nd Thursday of each month at 6:30 PM in Bethesda,
MD.
For
more information, contact Dorothy
at 703-425-2430
or 301-229-0114. Also
see August
2004 article in
Washington Post.
- National
Capital Lyme
Disease Association
P.O. Box 8211
McLean, VA 22106-8211
Phone: 703-821-8833
Web: http://www.natcaplyme.org/
Email: natcaplyme@natcaplyme.org
Fairfax Chapter
Meetings: The 2nd Tuesday of every month from 1:30-3 pm
Patrick
Henry Library
101 Maple Avenue, Vienna VA (across from the Starbucks)
Directions
- Loudoun
Lyme Disease Support Groups
Western Loudoun group meets 2nd Fridays at 11:00 am at St. Peters Church in
Purcellville, VA
Eastern Loudoun group meets 4th Tuesday the Cascades office of Sterling Family Practice in Sterling, VA (call 703-421-7000 for directions).
- Multiple
Sclerosis Self Help Group
Sponsored by The
National Capital Chapter of the MS Society.
Phone: (703) 768-4841
Meets the 2nd Wednesday of each month, 7 PM
Vienna Presbyterian Church, 124 Park St. NE Vienna VA.
- Northern
Virginia Brain Injury Association
P.O. Box 2148
Springfield, VA 22152
Helpline: 703-569-1855
Web: http://www.nvbia.org/
Email: info-nvbia@nvbia.org
- Northern
Virginia Interstitial Cystitis Support Group
A group
for anyone with interstitial cystitis (IC), a condition involving
persistent discomfort in the bladder and the surrounding pelvic
region.
Contact: Myra at 703-765-6221.
Call for current meeting
information. Used to be, may still be 2nd Thursday of each month at
7:30 p.m. at
Lincolnia Senior Center, 4710 N. Chamblis St.,
Alexandria,
VA.
- Northern
Virginia Well Spouse Support Group
A group
sponsored by the Well
Spouse Foundation,
a national organization
supporting spouses caring for a chronically ill or disabled spouse. Meets the third
Monday of each month from 7:00 - 9:00 PM at
Kings
Park Library, 9000 Burke Lake Road, Burke VA 22015. For more
information, contact Dorothy Saunders at 703-425-2430 or dmsaundersinva@hotmail.com. Also see August
2004 article
in Washington Post.
- Washington DC NVA Vulvodynia
Support Group
Sponsored
by National
Vulvodynia
Association, for women with chronic vulvar pain.
Headquarters: 301-299-0775
DC Area Group Leader:
Kathy, 703-335-8286, Contact_Leader@yahoo.com
- Vulvar
Pain Support Group - Maryland
Meets the third Saturday of each month at 1:30 pm at the Crofton
Library.
1657 Crofton Centre, Routes 3 and 424, Crofton.
For information, call 410-721-1583.
- Sjogren's
Syndrome Foundation
6707 Democracy Blvd
Bethesda, MD 20817
Toll Free: 800-475-6473
Web: http://www.sjogrens.org/
Hosts a free, annual Autoimmune Disease Health Fair. Next one in DC
area is April or May of 2012 at Reston Town Center.
More MidAtlantic Regional CFS/FMS Support Groups:
VA, MD
- Fibromyalgia Support Group - Carney
Email: pameklank@yahoo.com
Phone: (410) 282-0484
Web: FMCPAware Listing
VA: See also,
FMCPAware Listings for Virginia
-
Dysautonomia SOS (Search Out Solutions)
Virginia Beach and possibly Northern VA in 2013, VA
Email: dysautonomiasos@gmail.com
Twitter: twitter.com/SOSdysautonomia
LinkedIn: linkedin.com/pub/dysautonomia-sos-searching-out-solutions/60/327/669
Web: www.dysautonomiaSOS.org, and
Zazzle Store
-
Central VA CFS/FM Association
Post Office Box 5733
Charlottesville, VA 22905
Email: cfsfma@avenue.org
Phone: (434) 984-3419
Web: http://monticello.avenue.org/cfsfma,
Facebook
-
Richmond Fibromyalgia and Chronic Pain Association
Richmond, VA Contact: Sue Walker
Email: sue@richmondfibro.org
Phone: (804) 862-4244 - leave a message with email address if possible
Web: http://www.richmondfibro.org/
- Portsmouth
VA Fibromyalgia/CFIDS Support Group
Cindy Brining: 757-399-2426
Karen Gilliam: 757-483-3613
Email: Karen: kgil526693@aol.com
Web: http://karenscyberhome.com/portsmouthvafms-cfidssupportgroup
- Tidewater
Chronic Pain & Chronic Illness Support Group
Judy McClary, RN, PhD, CLNC
Virginia Beach, VA
Phone: 757-436-2326
Email: doctorjrm@verizon.net
(updated 3/09)
Web: http://www.chronicouch.org
- CFS/FMS
Chester VA Support Group
Amanda Wells
Phone: 804-796-5190
Email: amie6109@aol.com
- Amelia FMS
Support
Phyllis Cantrell
13951 Clementown Road
Amelia, VA 23002
Phone: 804-561-1635
Email: Ctymouse@aol.com
- Pain Pals
(CFIDS/Fibromyalgia/Chronic Pain)
425 Chinaberry Ct
Virginia Beach, VA 23454
Jaime Spiegel
Phone: 757-943-0726
Email: vrgnbchjaime@aol.com
- Buena
Vista FMS-CFS-MCS-Lyme Network
Started in Oct 2007.
Meets monthly in Rockbridge County, Buena
Vista, VA (near Route 81).
Stanzi Miller
Phone: 540-261-6280
Email: BuenavistafibromyalgiacfsmcsLymenetwork-owner
AT yahoogroups.com
Web: Y!
Group BuenavistafibromyalgiacfsmcsLymenetwork
Blog: Musings From A FMS-CFS-MCS-Lyme Group
Facilitator
- CFIDS
Association of America
P.O. Box 220398
Charlotte NC 28222-0398
Resource Line: 704-365-2343
Fax: 704-365-9755
Web: http://www.cfids.org
Email: info@cfids.org
K. Kimberly McCleary, President & CEO
- Organization
for Fatigue and Fibromyalgia Education and Research (OFFER)
1002 E. South Temple, Suite 408
Salt Lake City, Utah 84102
Phone: 801-328-8080
Web: http://www.offerutah.org/
Email: offerregistration@yahoo.com
Lucinda Bateman, MD, Executive Director
- National
Fibromyalgia Partnership
(formerly
Fibromyalgia Assoc. of Greater
Washington)
140 Zinn Way
Linden, Virginia U.S.A. 22642-5609
Toll-Free Phone:
866-725-4404
Fax: 540-622-2998
Web: http://www.fmpartnership.org/
Email: mail@fmpartnership.org
- ME/CFS Pocket Money Fund (Founded in 2009)
Email: admin@PocketMoneyFund.org
- CFS Knowledge Center
Web: http://www.cfsknowledgecenter.com/ Lists of Resources, Support Groups, Books, and much more. - ME/CFS Community
Web: http://cfsknowledgecenter.ning.com/forum Forum for people with CFS, ME, and FMS to connect from around the world.
- FibroHugs
167 Scarth Street NORTH
Regina, SK S4R 2Z4 Canada
Web: http://www.fibrohugs.org/
Email: info@fibrohugs.com
- Fibromyalgia
Coalition International
P.O. Box 9509
Mission, KS 66201-1509
Phone: 913-384-HOPE (4673)
Fax: 913-384-2464
Web: www.fibrocoalition.org
Email: FMCFSGWSG@aol.com
Yvonne Keeny, Executive Director
- Fibromyalgia
Network
P.O. Box 31750
Tucson, AZ 85751
Phone: 800-853-2929.
Web: http://www.fmnetnews.com/
- National
Fibromyalgia Association
2200 N. Glassell, Suite A
Orange, CA 92865
Phone: 714-921-0150
Fax: 714-921-6920
Web: http://fmaware.org/
Email: NFA@fmaware.org
Lynne Matallana, President
- National
Fibromyalgia Research Association
P.O. Box 500
Salem, OR 97302
Web: http://www.nfra.net/
- CFIDS
Emergency Relief Services
4714 Northwood Lake Dr., East
Northport, AL 35473
Web: http://www.cfidsers.org
Email: docesk@aol.com
Elaine S. Katz, PhD, President
- The
ME Association (Great Britian)
4 Top Angel, Buckingham MK18 1TH
Phone: 0870 444 1836
E-mail: meconnect@meassociation.org.uk
Web: http://www.meassociation.org.uk/
- ME/Chronic
Fatigue Syndrome Association of Australia Limited
c/- CFS/ME Victoria
23 Livingstone Close
Burwood Vic 3125 Australia
Phone: (03) 9888 8991
E-mail: mecfs@mecfs.org.au
Web: http://www.mecfs.org.au/
- Medical
Professionals/Persons With CFIDS
50 N. Cecil Avenue
Indianapolis, IN 46219-5374
Fax: 317-899-6033
Web: http://www.cfids-me.org/mpwc/
Email: GailD50@aol.com,
me-cfs@comcast.net
Gail Dahlen, R.N., President
- M.E.
Research (MERGE)
UK
Web: http://www.meresearch.org.uk/
- CFS
in
Kids Registry
Lisa
Baldwin, BSW
319 Genesis Circle
Black Mountain, NC 28711
Phone: 828-669-4947
Email: kidscentralregistry@yahoo.com
- International
Association for Chronic Fatigue Syndrome/ME
27 N. Wacker Drive Suite 416
Chicago, IL 60606
Voice Mail : 847-258-7248
Fax: 847-579-0975
Web: http://www.iacfs.net
Email: admin@iacfsme.org
Nancy Klimas, MD,
President
- American
Fibromyalgia Syndrome Association
6380
E. Tanque Verde, Suite D
Tucson, AZ 85715
Phone: 520-733-1570
Web: http://www.afsafund.org/
Kristin Thorson, President
- National
ME/FM Action Network (Canada)
3836 Carling Avenue
Nepean, ON K2K 2Y6 Canada
President: Lydia Neilson
Phone & Fax: 613-829-6667
Email: ag922@ncf.ca
Website: http://www.mefmaction.net
- FM-CFS
Canada
John Ernst, Executive Director
99 Fifth Avenue, Suite 412
Ottawa ON, Canada K1S 5P5
Phone: 613.565.2423
Email: hope@fm-cfs.ca
(please put 'May12'
in the subject line)
Web:
http://fm-cfs.ca/home.html
One click French Translation of Website
- Advocates
for FM Funding, Treatment, Education and Research (AFFTER)
P. O. Box 768
Libertyville, IL 60048-0768
Phone: (847) 362-7807
Email: info@affter.org
Web: http://www.affter.org/
Y! Group: affter
- American
Gulf War Veterans Association: CFS/Fibromyalgia Page
P.O. Box 85
Versailles, MO 65084
Phone: 800-231-7631
Web: http://www.gulfwarvets.com/cfs.htm
Email: webmaster@gulfwarvets.com
Joyce Riley vonKleist and Dave "Riddell" vonKleist
- National
CFIDS Foundation
103 Aletha Rd
Needham Ma 02492
Phone: 781-449-3535
Fax 781-449-8606
Web: http://www.ncf-net.org/
Email: info@ncf-net.org
OI-MVPS-POTS-NMH-Dysautonomia:
- National Dysautonomia Research Foundation
P.O. Box 211153
Eagan, MN 55121-2553
Phone: 651-267-0525
Fax: 651-267-0524
Web: http://www.ndrf.org/
Email: webmaster@ndrf.org
Other:
- American
Chronic Pain Association
PO Box 850
Rocklin, CA 95677
Phone: 800-533-3231
Email: acpa@pacbell.net
Web: http://www.theacpa.org
Penney Cowan
- American
Pain Foundation
201 North Charles Street, Suite 710
Baltimore, Maryland 21201-4111
Phone: 1-888-615-PAIN (7246)
Email: info@painfoundation.org
Web: http://www.painfoundation.org/
James N. Campbell, MD, Chair and President
- Arthritis
Foundation
1330 West Peachtree Street
Atlanta, GA 30309
Phone: 404-872-7100
Web: http://www.arthritis.org/
Email: help@arthritis.org
- CINDA:
Chronic Immune and Neurological Diseases Association (4/06, Links
inactive)
1090 Melvin Hill Road
Campobello, South Carolina 29322
Web: http://cinda.org/
Email: MoreInformation@cinda.org
- Chronic
Syndrome Support Association
801
Riverside Drive
Lumberton, NC 28358-4625
Web: http://www.cssa-inc.org/
Email: nsolo@cssa-inc.org
Nancy Solo
- Gulf
War Veteran Resource Pages
Web: http://www.gulfweb.org
Grant Szabo, Editor in Chief
- Multiple
Chemical Sensitivity Referral and Resources
508 Westgate Road
Baltimore MD 21229
Phone: 410-362-6400
Fax: 410-362-6401
Web: http://www.mcsrr.org/
Email: donnay@mcsrr.org
Albert Donnay, Executive Director
- National
Gulf War Resource Center
8605
Cameron Street, Suite 400
Silver
Spring, MD 20910
Email:
hq@ngwrc.org
Phone: 301-585-4000; or
1-800-882-1316, extension 162
Fax: 801-515-4963
Web: http://www.ngwrc.org/
- National
Vulvodynia Association
P.O. Box 4491
Silver Spring, MD 20914
Phone: 301-299-0775
Fax: 301-299-3999
Web: http://www.nva.org/
Email: mate@nva.org
Phyllis Mate, Executive Director
- RESCIND
Web: http://www.rescindinc.org/
Email: Email Tom
Tom Hennessy, President
- Well Spouse Foundation
63 West
Main Street, Suite H
Freehold,
NJ 07728
Phone:
1-800-838-0879; 1-732-577-8899
Fax:
1-732-577-8644
Web:
http://www.wellspouse.org/
Email:
info@wellspouse.org
Martha
Scott, President
- Weston A. Price
Foundation
4200 Wisconsin Avenue, NW
Washington, DC 20016
Phone: 202-333-HEAL
Web: http://www.westonaprice.org/
Email: WestonAPrice@msn.com
Sally
Fallon, MA, President and
Treasurer
Traditional foods information.
USA
State-by-State
CFS/FMS Support Groups & Organizations
Including the big organizations/associations that have lectures, help
you find groups...
(Abbreviations: lu = last updated; SG = support group)
- AK
- AL
- AR
Arizona
- AZ
- CA
- CO
- CT
- DC
- DE
- FL
- GA
- HI
- ID
- IL
- IN
- IA
- KS
- KY
- LA
- ME
- MD
- MA
- MI
- MN
- MO
- MS
- MT
- NE
- NV
- NH
- NJ
- NM
- NY
-
- NC
- ND
- OH
- OK
- OR
- PA
- SC
- SD
- TN
- TX
- UT
- VT
- VA
- WA
- WV
- WI
- WY
Outside
USA Country-by-Country
CFS/FMS Support Groups & Organizations
Note:
To translate a site into your (your
browser's) native language, copy the actual web address once you go
there and paste into a Google search box. If the page found, choose
"Translate this page" option.
- Argentina
- Belgium
- France
- Germany / Deutschland
- The Netherlands / Holland
- Denmark
- Slovenia
CFS/FMS Support Groups and Contacts that cross borders; Teleconferences
Directories
of CFS/FMS Contacts; good to find groups without websites:
|