Selections from Emails, Meetings, and More
to a CFSupport Newsletter! To receive our emails and
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encephalomyelitis), OI (orthostatice intolerance including
POTS and NMH), and more.
Please visit About Us for more introduction, or check out the
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This Month: Nov 2009
Michael Jawer is our
speaker for the November 21 meeting in Chantilly. He is the author of The Spiritual Anatomy of Emotion: How
Feelings Link the Brain, the Body, and The Sixth Sense.
a recent interview on BeliefNet, Mike answered the second question
using CFS and synesthesia as examples. Some people in our support
group, many people with CFS and FM and Dysautonomia, provided data to
him via a survey about sensitivities. He is still accepting more
responses. To see his questionnaire as a PDF, fill it out, and send to
him, see his website http://www.emotiongateway.com/pages/sensitivity/survey.
"The Spiritual Anatomy of
Emotion: An Interview with Michael Jawer"
Our members can read
excerts from his book in our CFSupport archives:
and The Author's Perpective"
Fatigue and Immune Function
Environmental Sensitivity, Attesting to the BodyMind
Mind Reconsidered: Distinguishing Intellect from Intelligence and
You're So Weird
NOVA CFS/ME, FMS, & OI Support Group: Upcoming Speakers/Meetings
forward are the
3rd Saturday of every month, 2 - 4 pm
James McDonnell Conference Room
Sully Governmental Center
4900 Stonecroft Blvd, Chantilly, VA 20151
view our directions as internet maps and GPS will talk you too far
north on Stonecroft. The building is very close to intersection of
Stonecroft Blvd and Westfields Blvd, very close to intersection of
Westfields Exit off Route 28.
Please be aware traffic on Route
66 on Saturday afternoons is heavy. Consider taking Routes 50, 29 or
267 (Toll Road) to Route 28 or coming some other back roads. Thank You.
Feelings Link the Brain, the Body, & 6th Sense
|Jan 16, 2010
||Face-to-face talk time.
Keep up to date by using our Events
page. Some other group events listed there, too.
The November 7, 2009, speaker at the Loudoun County location was an
integrative medicine doctor from Leesburg, Martha Calihan, MD.
October 17, 2009 speaker was Acupuncturist Virginia Mitchell, who also
does Zero Balancing. She has offices in Herndon and Sterling, VA. In addition to
describing acupuncture and what a typical first appointment is like,
Virginia led us through some discussion about and gave us a handout for
some non-linear aspects of healing. If call or become her client, be
sure to let her know you saw this information on our webstie.
"COMING FROM A PLACE OF CURIOSITY"
COMING FROM A PLACE OF CURIOSITY
CAN A PERSON DIE WHOLE? IF SO, WHAT WILL TAKE TO LIVE WHOLE?
ACTING ON YOUR OWN BEHALF
RESPONSE FROM A PLACE OF HABIT OR UNCONCIOUSNESS=REACTION
RESPONSE FROM A PLACE OF OBSERVATION = CHOICE
IN MAKING A CHOICE, DOES THE OPTION LEAVE YOU FEELING MORE OPEN AND
RELAXED (SPACIOUS) OR CLOSED DOWN, TRAPPED, STRESSED
IF YOU ARE HAVING TROUBLE PUTTING SOMETHING INTO WORDS SWITCH TO COLOR,
MOVEMENT OR SOME OTHER SENSE
AWARENESS JOURNAL VIA BETSY BAKER
THREE TIMES A DAY (FIRST THING, MIDDLE OF DAY, CLOSE OF DAY) CHECK IN
WITH YOURSELF IN THREE WAYS
BODY WHAT IS GOING
ON AT WHAT LEVEL (1-10)
MIND WHAT IS YOUR INNER DIALOGUE
EMOTIONS HOW ARE YOU FEELING (1-10)
THIS FOR ABOUT A WEEK AND THEN LOOK FOR PATTERNS. IF YOU SEE
PATTERN WHAT NEW INFORMATION DOES IT GIVE YOU? DO YOU WANT TO
MAKE A CHANGE BASED ON THE INFORMATION. ENACT THE
FOR A MONTH THEN REPEAT THE STEPS.
AND REMEMBER, DON’T
BELIEVE EVERYTHING YOU THINK.
September 19, 2009 -- Discussion meeting
September 5, 2009 -- The speakers at the Loudoun County
herbalist / acupuncturies Jonathan Gilbert and CFSupport facilitator
Elly Brosius. You can hear their presentations, get the handouts at WhenPushingStopsWorking.com.
August 15, 2009 -- Discussion meeting
July 19, 2009 -- The speaker was Mitch Lambros, Esq, on Applying for
Social Security Disability Benefits, especially if you have CFS and FM.
His handouts from previous years
can be found at
To get notices of upcoming meetings, read more
commentary about speakers and events, sign up for CFSupport
"Virus Linked To
Chronic Fatigue Syndrome"
All Things Considered - 10-8-09
The New Yorker - 10-15-09
For more media coverage, see our In
the Media page
Awareness for CFS Media page at CFIDS.org
Coping Better with Chronic Fatigue Syndome
and Myalgic Encyephalomyelitis: Cognitive Behaviour Therapy for CFS/ME
Paperback - Sept 30, 2009
Hardcover - Sept 15, 2009
Into Lyme Disease Treatment: 13 Lyme-Literate Health Care
Practitioners Share Their Healing Strategies by Connie Strasheim,
Maureen Mcshane M.D., and Thirteen Lyme-Literate Doctors
Sep 5, 2009
The 10 Best Questions for Living with
Fibromyalgia: The Script You Need to Take Control of Your Health
Patrick B. Wood
Paperback - Sept 1, 2009
The Fibromyalgia Controversy
M Clement Hall
Paperback - June 9, 2009
The Stress Mess:
How to Thrive in Turbulent Times
Paperback - May 30, 2009
100 Questions & Answers About
Paperback - May 2009
Treating and Beating Fibromyalgia and
Chronic Fatigue Syndrome:
A Step-by-step Program Proven to Help You Get Well!
Rodger H Murphree
Paperback - Feb 28, 2009
Sleep Medicine Essentials
Teofilo L. Lee-Chiong
Paperback - Feb 9, 2009
For more books, audios and videos, see our Books 2009 page
Our Newest &
Most Updated Web Pages
All of our webpages have been updated since the last newsletter, at
least in where to find them, because we changed our domain
name to www.cfsnova.com. Please update your bookmarks.
C -- for CFS, CFIDS, and CFS/ME
F -- for Fibromyalgia syndrome
S -- for all the similar Syndromes we invite / include in our group
NOVA -- for Northern Virginia
Our Photo Gallery new pictures from 2009 speaker events.
There is now a direct link to the Photo Gallery on the left column of
our home page
page was updated this week to mention that the emWave is now available
for Mac. Many typos were corrected, too, thanks to someone who wrote in.
The Trials & Surveys
page also has recent additions.
Our most frequently updated pages include:
Events, In the Media,
ME/CFS Pocket Money Research FundFrom PocketMoneyFund.org
we have learned nothing else, it's clear that our governmental agencies
don't yet feel the need to fund research commensurate to the need for
help. So, like the other burdens we must bear . . . it falls to us to
Fortunately, all it takes is a little pocket money. Every dollar raised by the ME/CFS Pocket Money Research Fund will be
distributed by its Scientific Committee, a world renown group of the
leading scientists in the study of ME/CFS consisting of Dr. Jonathan
Kerr of The United Kingdom, Dr. Nancy Klimas, of the United States, Dr.
John Gow of Scotland, Dr. Lucinda Bateman of the United States and Dr.
Derek Enlander of Northern Ireland.
Each member of the scientific committee has graciously donated his or
her time to this campaign and serves without compensation.
Every six months they will decide on the research projects to be
supported by the fund. There are, however, strict limitations on the
amount of funding they can give to their own projects.
To donate now using Paypal, clicking the image below.
If you prefer to write a check, make the check payable
to The ME/CFS Pocket Money Research Fund and mail it to: The ME/CFS
Pocket Money Fund, c/o Seacoast National Bank, 3001 PGA Boulevard, Palm
Beach Gardens, Florida 33410 USA
The ME/CFS Pocket Money Research Fund was initially
developed by cfsKnowledgeCenter, Inc., a Florida Not for Profit 501c3
organization. Donations are tax deductible in the United States. Please
check local laws in other countries. All revenue collected by the fund
is deposited in an interest bearing account for the exclusive use of
the M.E./CFS Pocket Money Research Fund at The Seacoast National Bank
of Palm Beach Gardens, Florida.
All activities of the fund are monitored by the ME/CFS Pocket Money
Fund Executive Committee consisting of Mr. Daniel Moricoli of
Wellington, Florida, U.S.A. and Founder of the ME-CFSCommunity website
and Mrs. Lydia Neilson of Nepean, Ontario, Canada and Founder of The
National ME/FM Action Network. The members of the Executive Committee
are donating their time to this endeavor and serve without any form of
compensation. The ME/CFS Pocket Money Fund logo was designed by
Sebastián Chico of Argentina.
Member Links for Holiday Shopping for Delivered Food, Restaurants
|Pick Up or Delievered Meals|
Omaha Steaks - Complete meals - Delivered
"For Two and a Few" $49.99 + shipping
Harris Teeter - Cooked Holiday Dinners
possibly combine with
Harris Teeter Express Lane
Harris Teeter, we know your time is valuable. That’s why we want to
make grocery shopping as easy and convenient as possible. With our
Express Lane online shopping service, you can order your groceries
online and your shopping will be done for you. After placing an online
Express Lane order, just drive up to the front of the store and within
minutes, we'll have you on your way
Whole Foods - Complete meals - for pick up
See right middle side of screen for "Place Holiday Order"
Select a US or Canada location and click Go
Giant Food - Complete Holiday meals - for pick up (DC, DE, MD, VA)
Planning Hotline - 1 888 469-4426, option 4, Monday through Friday 8:00
a.m. to 5:00 p.m. with extended weekday and weekend hours beginning
Safeway - Complete Holiday Meals for Pick Up
Harry & David Great for Gobblin'
Thanksgiving Gifts, Gourmet Foods, Appetizers, and Desserts
Women's Bean Project
in Colorado, helps women break the cycle of poverty and unemployment by
teaching job skills. They offer bean soups, chilis, dips, bread and
brownie mixes, spice rubs, flavored teas and other goodies. Delicious.
Bead for Life
sustainable employment opportunities for women in Uganda to lift
themselves and their families out of extreme poverty. Many of the women
are HIV+ or are caring for children orphaned by AIDS. The bead jewelry
is very pretty and colorful.
a gift of a cow or other livestock to a family in need, trains them to
take care of it, and then requires them to pass on the animal's
firstborn to another family. Choose from ducks, pigs, goats, bees,
geese, rabbits, even trees.
The EGG Dish
Elly's Gratitude Group (EGG)
is a mind, body & soul discussion group for people with CFS,
FM, & OI. Members help each other practice appreciation to
We have teleconferences (see table below), a Yahoo E-mail Group called EGGdish,
and occasional meetings in Washington DC area restaurants.
EGG meetings are:
Nov 30, 2009
1:00 PM EST
for Dial-In Number and access code.
Dial number, enter code, followed by #.
Say a name (or not), the # again.
Dec 29, 2009
2 PM EST
for Dial-In Number and access code.
Dial number, enter code, followed by #.
Say a name (or not), the # again.
One More Thing:
federal CFS Advisory Committee (CFSAC) met
Oct. 28-29, 2009 in Washington, D.C. to hear agency updates, important
presentations by Dr. Daniel Peterson (Whittemore-Peterson Institute),
Dr. John Coffin (Tufts University and National Cancer Institute) and
Dr. David Bell. The committee made several important recommendations to
the Secretary of Health and Human Services. Click here for the recap and links to other
resources from The CFIDS Association of America.
A videocast of the 2-day meeting of the CFSAC meeting is now available.
You will need to download a (free) copy of RealPlayer to view it. The
helps locate specific presentations/discussions.