CFS / CFIDS / ME - Chronic Fatigue Syndrome
FM / FMS / Fibro - Fibromyalgia Syndrome
OI / POTS / NMH / MVPS/D - Orthostatic Intolerance Dysautonomias
IBS / IC / MCS / GWI / ... - Overlapping Syndromes, Symptoms to CFS/FM/OI
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(CFS, MCS, FM, ME, POTS, NMH, MVPS, OI, IBS, Lyme, sleep, etc)
Episode 69 Part 1: Carol Head interviewed by Llewellyn King
YouTube Channel: Llewellyn King / Deborah Waroff -
- by Llewellyn King
ME/CFS Alert, a video.
Brynn Duncan Is Allergic to the World -- And She's Still Managing to Make It A Better Place
Huffington Post -
- by Abby Norman
She is wheelchair-bound a lot of the time, due to a condition called Postural Orthostatic Tachycardia Syndrome (known as POTS) -- which makes her faint if she stands for more than a few minutes at a time. Her more complex medical history is strewn with long sought-after diagnoses like Mast Cell Disease and Ehlers-Danlos Syndrome: conditions that you've probably never heard of.
What is chronic fatigue syndrome, and why aren’t we doing more to treat the illness?
Washington Post -
- by Julie Rehnmeyer
Eight years ago, collapsed on a neurologist’s examining table, I asked a naive question that turned out to be at the center of a long-running controversy: “So what is chronic fatigue syndrome?” I had just been diagnosed with the illness, which for six years had been gradually overtaking me.
Woman, 23, achieves modelling dream despite being confined to a wheelchair because of rare condition that causes her to faint every time she stands up
Daily Mail -
- by Bianca London
An aspiring model who was forced to abandon her career after developing a rare condition has finally achieved her dreams by landing a job as a disabled model.
Chelsey Jay, 23, was horrified when she was struck down with a condition known as Postural Tachycardia Syndrome (PoTS) which caused her to faint every time she stood up.
PREP SOFTBALL: Sherman’s Wells has Tide in rare regional semifinal'
- by Kasey Hickman
A year after surgery, Wells was diagnosed with postural orthostatic tachycardia syndrome — or POTs syndrome — which can lead to aches, pains, lightheadedness or fainting. “I can recognize my symptoms and sometimes stop the fainting from happening, but I always feel the pain in my stomach and get severely hot,” Wells said. While facing Logan in the beginning of the season, Wells felt ill before the game, but decided to try and overcome the symptoms. “I wanted to play and figured I could push through it, so I started on the mound,” she said. “I lasted until the third inning and I knew I couldn’t go anymore. I went to the dugout and had to lay down for the rest of the game and then I missed three more games after that.”
Baffling Chronic Fatigue Syndrome Set for Diagnostic Overhaul
Scientific American -
- by Katherine Harmon Courage
Researchers might soon redefine the mysterious condition, while the latest findings point to the role of brain inflammation.
Queensland researchers hopeful of Chronic Fatigue breakthrough
ABC Australia -
- by Arlie Ward
It can be an incredibly debilitating illness but sufferers have often been maligned as malingerers. Identified in the 1980's Chronic Fatigue Syndrome was labelled yuppie flu. But Queensland Researchers say biological markers show they're on the cusp of a breakthrough. They're hopeful of developing a quick diagnostic test which would eliminate uncertainty and lead to better treatment. Airlie Ward has the details. [video and transcript]
Why does mommy hurt?
- by Chrystal Owens
The guilt of not being able to do all she wanted with her son overwhelmed Christy. As a child, [Elizabeth] Christy watched her mother suffer from the same illnesses. She remembers being angry and confused. To help her son understand, Christy, a blogger who chronicles about parents with chronic pain, began writing a book from a child's point of view – a way to explain to her child what his mother was experiencing. That book, “Why Does Mommy Hurt?,” was released this month.
“Being a mother is probably the most difficult job in the world … When I'm sick I still have to get out of bed, I still have to go to work, I still have to do everything. I feel like I'm treading water. The only way that I've found to survive is to just take it one day or one minute at a time. You have to find joy in the little moments with your kids because the pain never goes away. But when you're with your child … you forget about the pain for maybe a minute or longer,” she said. To order a copy of Christy's book, visit http://www.whydoesmummyhurt.com
Proper diagnosis of rare disorder can greatly improve quality of life
CTV News -
- by Karolyn Coorsh
Canadian doctors are trying to shed light on a mysterious illness in the hopes of prompting earlier diagnosis and treatment for those affected by the rare nervous-system disorder.
Postural Tachycardia Syndrome, or POTS, has likely existed for centuries but was only well-defined less than 25 years ago. There is no known cause or cure for POTS, which is an unusual heart rate increase experienced when someone is in an upright position. It's caused by a malfunction of the autonomic nervous system that regulates heartbeat and blood pressure as we move.
Fibromyalgia: 'You have no energy - all you have is pain'
Bury Times -
- by Tui Benjamin
“AT its worst, it is like somebody has pulled your plug out. You have no energy, all you have is pain.” That is the description given by the organiser of a new support network of the debilitating condition fibromyalgia, which she has suffered from for six years.
Selected Press Releases
Allsup Spotlights Research during Fibromyalgia Awareness Month in May
Studies underway to better diagnose, treat and prevent the disorder can help those applying for Social Security Disability Insurance Studies underway to better diagnose, treat and prevent the disorder can help those applying for Social Security Disability Insurance.
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