2008 News Coverage
CFS / CFIDS / ME - Chronic Fatigue Syndrome
FM / FMS / Fibro - Fibromyalgia Syndrome
OI / POTS / NMH / MVPS/D - Orthostatic Intolerance Dysautonomias
IBS / IC / MCS / GWI / ... - Overlapping Syndromes, Symptoms to CFS/FM/OI
Table of Contents
Related Sections on this Website
Selected Recent News (CFS, MCS, FM, ME, POTS, NMH, MVPS, OI, IBS, Lyme, sleep, etc)
- CFIDS Association President Kim McCleary Rips CDC Management of Chronic Fatigue Syndrome Research Budget Prohealth 11/7/08
- CFIDSLink CFIDS Association 11/7/08
- Half of Doctors Routinely Prescribe Placebos NY Times 10/23/08
most common placebos the American doctors reported using were headache
pills and vitamins, but a significant number also reported prescribing
antibiotics and sedatives. Although these drugs, contrary to the usual
definition of placebos, are not inert, doctors reported using them for
their effect on patients’ psyches, not their bodies. In most
cases, doctors who recommended placebos described them to patients as
“a medicine not typically used for your condition but might
benefit you,” the survey found. Only 5 percent described the
treatment to patients as “a placebo.”
- FM Online Newsletter - In the Spotlight: Preparing for Winter NFA 10/17/08
- Beautiful art can ease pain China Daily- 9/19/08
subjects rated the pain as being a third less intense while they were
viewing the beautiful paintings, compared with when contemplating the
ugly paintings or the blank panel. While distractions, such as music,
are known to reduce pain in hospital patients, Prof de Tommaso [of
Italy] says this is the first result to show that beauty plays a part.
The findings, reported in New Scientist, also go a long way to show
that beautiful surroundings could aid the healing process.
- What a Sleep Study Can Reveal About Fibromyalgia Newswise - 9/3/08
engineers and sleep medicine specialists from two Michigan universities
have joined technical and clinical hands to put innovative quantitative
analysis, signal-processing technology and computer algorithms to work
in the sleep lab. One of their recent findings is that a new approach
to analyzing sleep fragmentation appears to distinguish fibromyalgia
patients from healthy controls
- Brain dysfunction tied to fibromyalgia Reuters - 8/29/08
Levels of chemicals in hippocampus may explain symptoms, study says
- Window washers rescued after work platform fails The Suburbanite - 8/26/08
circulation can lead to orthostatic intolerance ... says information
from the Occupational Safety and Health Administration (OSHA) in the
United States. Circulation can be impeded for three reasons: lack of
body movement, the vertical position of the body, and restrictive
pressure placed on the veins by a harness. Light-headedness,
palpitations, nausea, headache and fainting are among the common signs
of orthostatic intolerance.
- An invisible illness: Chronic Fatigue Syndrome The Suburbanite - 8/8/08
isn't sure how long she had symptoms of exhaustion related to CFS
before going to the doctor, but her daughter was about 5 years old at
the time Susan was diagnosed. "I figured it was just because I was a
new mom," she said. "And then it just never went away." That's when she
had the car accident. It was just a fender bender but it was enough. "I
got rear-ended and it just kind of shook up my system enough that it
trigged it," Susan said. "Sometimes a traumatic event in your life, a
lot of stress in your life, something like that will jar you." ...
"People come to the group if they're feeling good and they can get out,
and people will come if they're not feeling good and seeking comfort,"
Susan said. "I want to get the information out to them so they can help
themselves." Susan Midcap and her friend started their own local
support group in 1989 when making trips to Cleveland to attend a
support group there became too difficult. It's called The Akron-Canton Chronic Fatigue Syndrome and Fibromyalgia Self-Help Group.
- May Day! The Feds and ME/CFS: Congressional Briefing, Lobby Day & CFSAC Mtg Phoenix Rising ME/CFS Newsletter - August 2008
- The Symposium on Viruses in Chronic Fatigue Syndrome (ME/CFS) Part I
Phoenix Rising ME/CFS Newsletter - July 2008
- [Canadian] Supreme Court sides with Honda on chronic fatigue firing
Globe and Mail - 6/28/08
Supreme Court of Canada on Friday erased a landmark wrongful-dismissal
award made to an employee of Honda Canada, Kevin Keays, who was fired
after years of struggling with chronic fatigue syndrome. Employers
breathed a sigh of relief as an award Mr. Keays had received for
punitive damages – originally $500,000, but reduced to $100,000
by the Ontario Court of Appeal – evaporated altogether in
Friday's 7-2 ruling.
- Fatigue syndrome affects millions
National photo exhibit to highlight patients’ experience Maryland Community News- 6/23/08
sustained sleep is not possible for Willow Turansky of Frederick. While
her husband slumbers beside her, Turansky naps for no more than an hour
at a time and glances at the clock. She wakes up in the afternoon only
to feel more tired than when she went to bed.
- Vitamin D helps with chronic pain, fatigue UPI - 6/23/08
analysis of 22 clinical studies of patients with varied chronic pain
and fatigue syndromes found almost all patients lacked vitamin D, U.S.
researchers said. Stewart B. Leavitt, editor of Pain Treatment Topics
and author of the report, said when sufficient vitamin D
supplementation was provided, the aches, pains, weakness and related
problems in most of the patients either vanished or were at least
helped to a significant extent.
- A Protein from a Common Smoldering Virus Linked to Chronic Fatigue Syndrome and Depression Earthtimes - 6/23/08
MD -- 06/23/08 -- A study suggests that a "smoldering" central nervous
system (CNS) infection may play a role in conditions that plague
millions of Americans. Kazuhiro Kondo, MD, PhD, of the Jikei University
Medical School in Tokyo identified a novel human herpesvirus-6 (HHV-6)
protein present in Chronic Fatigue Syndrome (CFS) patients but not
healthy controls that may contribute to psychological symptoms often
associated with that and other disorders.
- Arnold woman sidelined by exhaustion -- Chronic fatigue an 'under recognized' illness
The Capital (Annapolis) - 6/16/08
group leader] Toni Marshall remembers the days when it was easy to
leave the house and go to work, but that was 15 years ago. The
Arnold resident once worked as a tax auditor, spending long hours going
over invoices while staying involved in several social groups.
But her activity plunged after she developed a sinus infection.
Even after it cleared up, she noticed she could get 12 to 15 hours of
sleep and still wake up exhausted.
- It’s not ‘all in your head’: Examining stress key to healing The Times Leader - 6/3/08
starting point for these disorders may be chronic stress. While some
stressors may help us to survive and thrive, stressors that we perceive
as persistent, difficult and undesirable produce unhealthy changes in
our immune and other body systems. Although much of our stress may be
mental or emotional in nature, many other things create stress on the
body, including infections, unhealthy foods, nutrient deficiencies,
inadequate rest and toxins in the environment.
- Stress associated with impending storm can wreak havoc on health TambaBay.com - 6/3/08
all of a hurricane's damage is obvious. Even before one blows through,
it can wreak havoc, and this we may not see. ... "It is
very clear that the autoimmune illnesses such as lupus and
fibromyalgia'' will be worsened by chronic stress. ... A
hurricane warning is also a reminder to check your supply of
prescription medications. If you are not getting refills at a local
drugstore, the typical few days of warning won't give you time to
reorder by mail.
- A ‘Creative’ way with words Vernon Morning Star - 6/1/08
look forward to Creative Chaos to see favourite artistans and get a
look at the new work on display. Shelagh McGinn will be there for the
first time with her jewelry, accessories and home decor items made from
recycled materials. ... A self-confessed workaholic, she spent her
career in office work and when she had to stop work because of chronic
fatigue syndrome and fibromyalgia, she didn't know what to do with the
slowed down lifestyle necessary for her health. "I always wanted to do
something creative. I have a lot of patience for details and I'll work
on something until it's perfect. It's good for me to be able to work at
home on my own hours so I can stop when I'm in pain or tired," said
- Expert Q & A Learning Firsthand About Chronic Fatigue Syndrome NY Times - 5-30-08
(Excellent piece!! - Thank you, Dr. Jason)
strikingly different about this illness is that the majority of people
not only have to deal with a particularly debilitating health problem,
they also have to deal with the stigma and societal reaction and
disbelief and illegitimacy, and that is crushing, Your work colleagues
say you’re malingering, medical personnel say there’s
nothing they can find so they’ll refer you to a psychiatrist, and
your friends begin to complain that you’re never calling them,
you’ve rejected them. So this person is in the whirlwind of a
terrain of disbelief that is probably in some ways unique.
- Elusive Battle: Pain — and Skepticism — Still Plague Fibromyalgia Patients
Carolyn Cosmos The Washington Diplomat- 5-01-08
a preponderance of research backing them up, fibromyalgia patients
still find themselves waging a medical and public opinion battle for
recognition of their pain.
- Co-Payments Soar for Drugs With High Prices The NY Times - 4/14/08
- Insurers Faulted as Overloading Social Security The NY Times - 4/1/08
Social Security system is choking on paperwork and spending millions of
dollars a year screening dubious applications for disability benefits,
according to lawsuits filed by whistle-blowers.
are the source of the problem, the lawsuits say. The insurers are
forcing many people who file disability claims with them to also apply
to Social Security — even people who clearly do not qualify for
the government program.
- Little-known disorder sidelines young woman [POTS] Cleveland Jewish News - 3/27/08
Announces a POTS awareness video.
- When the Disease Eludes a Diagnosis [CFS, FM, other] The NY Times - 3/25/08
- Jury orders punitive damage of $14 million The Union Tribune - 3/10/08
49, who suffers from chronic fatigue, lupus, fibromyalgia and an immune
system disorder, spent much of the six-week trial with her head down on
the table between her attorneys. Sometimes she rested on the floor,
overcome by pain and exhaustion. The Chula Vista woman was in court
because her insurance company didn't believe she was sick. But a jury
did. On Thursday, the jury ordered Prudential Insurance Co. to pay $14
million in punitive damages on top of $1.5 million it awarded Johnson
last week in compensatory damages to cover benefits the company had
refused to pay. ... it could take three years for Johnson to
receive any money.
- 'Talk Therapy' Takes on Chronic Fatigue Syndrome, Coming Soon to Canada
The Globe and the Mail - 3/8/08
was very much like being a dead person … I could only lie
there.’ The victim of an exhausting, little-understood malady,
this young woman spent six long years confined to a darkened room. Zoe
Cormier describes how a new – and surprisingly simple –
therapy brought her back to the light
- Tired Beyond Relief The Washington Post - 3/4/08
While Fatigue Afflicts Many, the Cause Can Be Maddeningly Elusive and Treatment Often Limited
- Fybromyalgia Dealing with the Pain The Herald Journal - 2/19/08
Chambers’ goal is to help others with fibromyalgia recognize the
stressors in their lives that may be creating pain and help them
discover how to change their lifestyles to live more comfortably.
“Our bodies are really sensitive and stressors can be anything
from people, to odors or even something like a breeze on the back of
the neck in a theater,” she said. ... Chambers often
draws a comparison between the illness and a dragon that needs to be
taken into control. “When you are at the tail end of the dragon,
you cannot lead it or coerce it to respond to you, much less even
recognize the difference between the head and the tail,” she
said. “This is where support from spouses, family, friends and
yes, a support group is very important.” ... As Chambers
has begun to uncover means to ease her pain, she has found herself
becoming more grateful, seeking joy in the functional areas of her
life. This sense of gratitude and joy is what she hopes to continue to
bring through her support group to those suffering from fibromyalgia in
Cache Valley. “When you lose it all and then start coming back,
gratitude becomes a way of life,” she said. “You’re
still living your life, just differently.”
- Creating her own hope in the CFS fight Lake Oswego Review- 2/7/08
has slept up to 20 hours in a day. She has chronic headaches. “I
always feel like I have the worst case of the flu.” She walks off
balance. She has constant pain in her muscles. She is clumsy and drops
things. She is always sore. “But I look perfectly normal,”
Mason said. “It’s hard to get any sympathy when you look
- 'I'm afraid all the time now' KOMO TV - 2/6/08
veteran corrections officer says her boss sexually harassed her for
years, making her terribly sick. ... over the past two years, this
tough woman crumbled. "It's like going through a death - of myself."
Doctors diagnosed her with post traumatic stress and fibromyalgia, a
debilitating pain disorder.
Eventually Ernsdorff's pain became so
unbearable she nearly had to give up the one thing that gave her some
emotional relief - riding horses. She used to be a competitive rider on
an Olympic hopeful team. Her stable walls are filled with awards.
- SG Leader Shares Her Group's Awareness Day Success FAME Connection - 2/5/08
- Video: Fibromyalgia often misunderstood. Baffling Set of Symptoms ABC 7 LA - 2/1/08
- Maladies: Hormone Levels and Chronic Fatigue NY Times - 1/29/08
who suffer from chronic fatigue syndrome may be starting the day at a
disadvantage. A new study finds that they wake up with lower levels of
a hormone that helps people deal with stress.
- New Insights Into Genital Pain in Women Jane E. Brody, NY Times - 1/29/08
recent study financed by the National Institutes of Health and
conducted by Bernard Harlow at Harvard University indicated that as
many as one woman in six, or 13 million American women, may suffer from
vulvodynia during their lives. As with Ms. Veasley, for 6 percent of
women the symptoms begin before age 25 and are usually limited to
burning pain in response to touch or pressure at the opening of the
"In addition, Dr. Ledger said,
“there’s good evidence that with vulvodynia as a whole, the
women have more nerve fibers in the vulva and they are firing more pain
signals to the brain.” He continued: “It’s a kind of
vulvar fibromyalgia. Most patients with vulvodynia have very tender
glands at the entrance to the vagina.”"
- Drug used by Ledger linked to six deaths in UK [Ambien] Sunday Herald, UK - 1/27/08
- The Z's factor: Find out what causes your insomnia Portsmouth Herald News, NH - 1/25/08
3 and 4 are called delta sleep. These are the deep sleep stages when
body restoration and repair occurs. Temperature drops even further
during this phase, brain waves are slow and there is decreased muscle
tone. Fibromyalgia may be associated with poor delta sleep, Ostransky
says. People woken during delta sleep are often groggy and disoriented.
Night terrors occur during this sleep stage.
- Doctors, hospitals more accepting of acupuncture Utica Observer Dispatch - January 24, 2008
- Are you an obnoxious patient? CNN - January 23, 2008
doctors we interviewed agreed that getting the best care means being
empowered but not obnoxious. Here are tips from a few of them, plus
some from a patient.
- Allergies blamed for some cases of irritable bowel Reuters - January 23, 2008
patients reporting allergic conditions such as hay fever, eczema, and
asthma were three times more likely than other patients to have IBS,
the investigators report in the Annals of Allergy, Asthma and
Immunology this month.
- Pfizer 4Q Profit Falls but Beats View Houston Chronile - January 23, 2008
Sales of fibromyalgia treatment Lyrica rose 60 percent to $564 million.
- ME was worst and best thing to happen to me ic Coventry UK - January 23, 2008
- Controversy Over Fibromyalgia Paul F Campos, Scripps- January 22, 2008
- New approaches to treating fibromyalgia The Buffalo News & USN&WR- January 22, 2008
- Naperville woman says cacao plant helped to cure her illness[FM] Daily Herald IN - 1-20-08
- RX for Big Pharma - heal thyself. Hey, try this pill. SF Gate - January 18, 2008
- National Fibromyalgia TV news segment:
Diagnosing Fibromyalgia CBS 2 HD NY (Video) - January 17, 2008
Health: Fibromyalgia CBS 3 Philadelphia (Video & Transcript) - January 25, 2008
FM Sufferers Have New Hope: Researchers Tackle Misunderstood Syndrome
The INDY Channel, IN (Transcript) - January 25, 2008
- Are You Afraid To Die? Gather.com - January 17, 2008
a traumatic event in my life in 1997, I developed Chronic Fatigue
Syndrome (CFS). For people with the most severe cases of CFS, just
getting out of bed to go to the bathroom or to eat at a table can be
either exhausting or painful or both. ....
I do propose that
we change our attitudes toward death and the stressors of life so that
we can all live more peaceful, safe and loving lives. Love is part of
the equation. Those under constant stress have trouble feeling love,
expressing love and accepting love.
- Picture of Antidepressants Too Rosy? Review Shows "Selective" Reporting of Studies Inflates Effectiveness of Antidepressants WebMD Medical News - January 16, 2008
- Like Chronic Pain, Fibromyalgia Debate Persists ABC News - January 15, 2008
While Patients Maintain Pain Is Real, Debate Over Condition and Treatments Continues
ABC News - January 15, 2008 -- Same page, see also a video: The Mystery of Fibromyalgia
- Private 'Faces' of chronic fatigue syndrom get public exposure Burlington County Times (Phillyburbs.com) - January 15, 2008
- Fibromyalgia on Diane Rehm Show NPR - January 15, 2008
host: Katty Kay of the BBC. A new drug has been approved by the F.D.A.
to treat fibromyalgia, a condition characterized by chronic and
widespread pain. We'll talk about some of the ongoing questions related
to its diagnosis and treatment. Guests:
Frances Bremer, spokesperson, National Fibromyalgia Association
Dr. Nortin Hadler, Professor of Medicine and Microbiology/Immunology
University of North Carolina
at Chapel Hill Attending Rheumatologist, UNC Hospitals
Alex Berenson, reporter, New York Times
Dr. Patrick Wood, researcher and clinician specializing in fibromyalgia, chief medical officer of
Angler Biomedical Technologies
- Drug Approved. Is Disease Real? (FM) NY Times (Front Page) - January 14, 2008
Doctors Respond to this article FM Network
- Health: Chronic Fatique Syndrome Philadelphia (CBS 3) - January 14, 2008
- Putting a face on disease (CFS) South Jersey Life- January 13, 2008
Selected Press Releases
In the Media Pages: Current & Past Year Directory