2007 News Coverage
CFS / CFIDS / ME - Chronic Fatigue Syndrome
FM / FMS / Fibro - Fibromyalgia Syndrome
OI / POTS / NMH / MVPS/D - Orthostatic Intolerance Dysautonomias
IBS / IC / MCS / GWI / ... - Overlapping Syndromes, Symptoms to CFS/FM/OI
Table of Contents
Related Sections on this Website
Selected Recent News (CFS, MCS, FM, ME, POTS, NMH, MVPS, OI, IBS, Lyme, sleep, etc)
- Fibromyalgia not just in your head Daily Camera, CO- November 17, 2007
- Living With Pain That Just Won’t Go Away Jane Brody, NY Times - November 6, 2007
- Q&A Session with Pain & Fatigue Research Leader Daniel J. Clauw, MD
ImmuneSupport - October 12, 2007
- Diet and Fat: A Severe Case of Mistaken Consensus NY Times - October 9, 2007
- Chronically fatigued - Victims of CFS tired of stereotypes The Daily Times-Call - Oct 4, 2007
- Londoner battles fibromyalgia stigma The London Free Press (Canada) - Sept 30, 2007
- 'Yuppie Flu" gets some respect The Orange County Register - Sept 20, 2007
- Living with chronic fatigue CNN, Dr. Gupta - Sept 18, 2007
- 'Fibro-what?' Pioneer Local (IL) - Sept 13, 2007
- Surfer reveals battles with blues The Daily - Sept 9, 2007
- Portraits: Four legs of freedom
Jordan Gonzales' dog, Blaze, has given him a new outlook on life (dysautonomia)
The Sacramento Bee - Sept 2, 2007
- Fibromyalgia affects nervous system
United Press International - Jun 26, 2007
- CFS: Chronic Fatigue Syndrome
Mysterious illness leaves sufferers feeling physically and mentally drained
by Darla Carter The Courier-Journal - Jun 21, 2007
- Seizure drug [gabapentin] may treat fibromyalgia
Deseret News, UT - Jun 11, 2007
- “Problems with the New CDC CFS Prevalence Estimates” – ME-CFS ...
ProHealth's ImmuneSupport.com, CA - Jun 11, 2007
- CDC data released June 8 put Chronic Fatigue Syndrome prevalence ...
ProHealth's ImmuneSupport.com, CA - Jun 9, 2007
- Those with fibromyalgia may feel more pain
Earthtimes.org - Jun 5, 2007
- Saliva clue to chronic bullying Penn State Live, PA - May 15, 2007
hypocortisol finding, Hazler noted, has serious physical and
psychological implications for kids -- both victim and bystander.
Research with adults exposed to repeated stressful events has linked
hypocortisol with conditions such as chronic fatigue syndrome, chronic
pelvic pain and post traumatic stress disorder (PTSD).
- Awareness grows about chronic fatigue Toronto Star, Canada - May 5, 2007
and Beaulne offer an eight-week session based on the Harvard mind-body
course for chronic fatigue syndrome. The fact that the practice has an
eight-month wait-list period for new patients is testament to the need
out there. We need to get the word out," says Bested. "We need to help
doctors learn how to make a diagnosis." About 85 per cent of people who
seek medical help for CFS are told: "It's all in your head," Bested
says. But the disease is not only real, it can be treated, particularly
if it's caught early, she adds. Today, Scott knows she is one of the
lucky ones. She has to watch her diet and has learned to pace herself.
But she most definitely has a life. She also draws strength from
another young woman her age who shares her illness. "CFS is extremely
isolating," she says. "People don't understand how much you're
suffering because they cannot see it." Her new friend has been an enormous source of strength. "We exchange tips and console each other when we are really suffering.
- Chronic Fatigue Syndrome Alters Sleep PsychCentral.com, MA - May 1, 2007
- Vets From First Gulf War Show Brain Differences Forbes, NY - May 1, 2007
- Putting Chronic Fatigue Syndrome's Myths to Bed
American Colledge of Physicians ACP Observer - May 2007 issue
- Three authors delve into the practice of medicine and how we can make it better while getting better OregonLive.com, OR - Apr 22, 2007
His [Person with CFS, Floyd Skloot] fourth novel, "Patient 002," departs from
what we have come to expect. While he does not altogether
abandon his literary roots, Skloot grounds "Patient
002" in stylistically popular formats -- a page-turner
that is at once love story, caper and medical thriller that
takes novelistic aim and fires on pharmaceutical companies.
- Making the right choices Bismarck Tribune, ND - Apr 3, 2007
She didn't use a fad diet, but a realistic approach to health [and
dropped 70 pounds]. Buchholz had fibromyalgia, a condition with severe
muscle pain. "With fibromyalgia, it was like the flu all the time," she
said. "You ache and don't want to wake up." After she shaped up, her
symptoms disappeared, she said. Healthier eating can be simple.
- Disrupted sleep may alter pain perception Reuters - Apr 2, 2007
- 'Gray Area' Diseases Prove Difficult to Treat, Understand The Ledger, FL - Apr 2, 2007
FM, CFS debilitate victims amid controversy, dispute in the medical community over unclear causes
medicine' can be interpreted as a euphemism," said Dr. Edward Lubin, a
pain-management specialist at Winter Haven's Gessler Clinic, "and it
leads one to think maybe what we're dealing with is …
malingering, maybe we're dealing with something other than a medical
condition. But to be fair, the gray area exists in the minds of
physicians and the diagnostic process, not in the symptoms and
suffering of patients. That's not gray; they're suffering."
- Nurse Claims Success Against Disease [FM] With Unorthodox Approach [Guai]
The Ledger, FL - Apr 1, 2007
- Doctors Differ in Approaches Used In Treating Malady The Ledger, FL - Apr 1, 2007
- Write on for good karma
ic Newcastle.co.uk, UK - Apr 1, 2007
Harvey's promising career as a technician came to an abrupt end at the
age of 19 because of the illness - otherwise known as Chronic Fatigue
Syndrome. [Her book] Karma - an inspirational, funny and heart-warming
exploration of an ME sufferer's daily battles - won the regional final
of the Undiscovered Authors contest, and it's now on sale in many North
bookshops. ... "Having ME is difficult for some people to understand
because they may see me outdoors and think `there's nothing wrong with
her, she's out and about' while not realising that I spend 95 per cent
of my time in my pyjamas. It's complete and utter fatigue - mentally
and physically - to the point that I can't pick myself off the settee,
take one more step or even finish a sentence."
- Coping with chronic fatigue syndrome CTV.ca, Canada - Mar 22, 2007
- Lost to Lyme SunJournal.com, ME - Mar 18, 2007
- Book triumphs over pain Upper Yarra Mail, Australia - Mar 14, 2007
An autobiography - the story of the late Rodney Groenhuizen. A journey of self
discovery and the impact of being diagnosed with Scotopic Sensitivity
Irlen Syndrome (SSIS) in 2004 at 33. Rod believed that the
undiagnosed SSIS, affected his mental health and contributed to years
of living with Depression, Panic/Anxiety, Multiple Breakdown and CFS
(Chronic Fatigue Syndrome).
- A site that's most accommodating - Disabled can find a match through Internet connection [FM]
Chicago Tribune, IL - March 12, 2007
- Possible OTC Treatment for Fibromyalgia & Chronic Fatigue KRDO, CO - March 12, 2007
Over-the-counter decongestant [guaifenesin] may reverse pain & fatigue.
Remarkably, Lorna's [Searle] fibromyalgia and chronic fatigue have been
essentially cured by a medicine readily available over-the-counter. ...
- How one woman's life was turned upside down by mold Annapolis Capital, MD - Mar 11, '07
sensitivity is a wide spectrum and Carol is one of the most extreme,"
says Dr. Alan R. Vinitsky of Gaithersburg. "She has a genetic
pre-disposition to odor sensitivity when exposed to an odor. The
olfactory nerve, smell, is the most primitive organ. It serves as a
warning or threat to survival, triggering the 'fright or flight'
response - an autonomic nervous system response." "Does she have
psychotic problems?" he asks rhetorically. "The disease looks and acts
like anxiety. There is a multiple symptom involvement with no other
explanation for it. It has symptoms like Lyme disease, fibromyalgia and
chronic fatigue. She's wound up with so much debilitation she can't
perform or compose because she's too foggy and can't coordinate her
reflexes. When people are severely debilitated, they wind up living in
a bubble. We seek to get people out of the bubble and operating
- Study: Workers unaware of disability threat, costs nwitimes.com, IN - Mar 10, 2007
- Jury orders punitive damage of $14 million San Diego Union Tribune, CA - Mar 10, 2007
[Went against Prudential for terminating a Long Term Disability Claim after 5 years.]
- Woman under pressure 24x7 CNN-IBN, India - Mar 9, 2007
Delhi: The working women in India are dealing with tough deadlines and
juggling with house work handling children. And they are four times
more likely then men to be susceptible to the Chronic Fatigue Syndrome
as a result of all that stress. ...
- A debilitating condition, an uphill battle Newark Star Ledger, NJ - Mar 7, 2007
Quotes Alan Pocinki, MD who was visiting NJ for the kNOw More CFS event:
- Meditation 'fools the brain' in a threatening world San Diego Union Tribune, CA - Mar 6, 2007
Thanks to cutting-edge technologies like functional MRI scans,
neuroscientists can look inside the brain to see if meditation actually
produces physical change. Although they're still not sure how
meditation works, research is beginning to show that, in fact, it does.
... Through the brain's hard wiring (the nerves) and the soft
wiring (hormones), the brain is “perpetually informing the body
if the world is safe or threatening,” ... “Meditation fools
the brain into perceiving the world as not so threatening, so the brain
then sends out hormones and electrical signs telling the body to relax
a bit. “The changes that happen physiologically when we practice
meditation are the opposite of and counterbalance those (physiological
changes) that occur in the fight-or-flight response that we experience
when we're stressed. The heart rate slows, the blood pressure comes
down, breathing slows. We neutralize the harmful effects of stress on
our system.” ... Researchers at the University of Louisville
found that mindfulness meditation alleviates depression in women with
fibromyalgia. “In meditation, you're breathing better, so
you cope better. But it's more than that,” Bonakdar says.
“If you look at depression as an inflammatory state, we see that
meditation causes those (inflammatory) neurochemicals not to pour
- Ceremony launches medical research center effort Reno Gazette Journal, NV - March 6, 2007
new chapter in research to treat cancer and immune system and brain
disorders began Monday with a groundbreaking ceremony for a $78 million
biomedical research center in Reno. ... "Our goal if to bring life and
hope to the millions who suffer from chronic disease through
outstanding patient care, model research and much-needed education,"
she said of the institute, the first of its kind in the nation
dedicated to finding a cure for Chronic Fatigue Syndrome, autism, Gulf
War illness and similar diseases. ... With the added money, UNR will
contribute the bulk of the center's cost, $60 million. The rest would
come from corporations and individuals, such as the Whittemores and Dr.
Daniel Peterson, a leading Chronic Fatigue Syndrome clinician from
- Ever-evolving Enterprise-Record, CA - March 6, 2007
[FM and head injuries] meant retiring early from her [Jeanette Summers]
job as manager at Gates Resale — a job she loved. It meant living
with fibromyalgia, migraines and depression, among other things. "I
have learned to accept my new life. I am ever-evolving. I still have
hopes and dreams and with time and work, I've improved. I have had the
support of my husband, good friends and good doctors." ... "One
of my doctors, Dr. Tobey Leung, is really into the mind/body/soul
aspect of pain rehabilitation. He asked me, 'Do you like helping people
or does it make you feel better? It's two different things.' And for
me, it is both." [She offers art therapy now.]
- Genital pain takes a toll on women's lives Scientific American, Reuters - Mar 2, 2007
one knows what causes vulvodynia, a condition that's diagnosed when
other causes of genital pain, such as infection or skin disorders, are
ruled out. For many women, the pain arises with sex, tampon use or
exercise that puts pressure on the area, such as bike riding; even
tight clothing can trigger discomfort. ... commonly associated
conditions were irritable bowel syndrome, chronic fatigue syndrome and
fibromyalgia -- a syndrome marked by pain at specific points throughout
SOURCE: American Journal of Obstetrics & Gynecology, February 2007
- Invisible Illness The Story, WUNC Radio - March 1, 2007
with patient Julie Levy or Richmond, VA, and patient/psychologist
Katrina Berne, PhD. 43 minute audio available with an essay by Levy,
"CFS: The Invisible Illness that Waxes and Wanes."
- Alternative Medicine: Fibromyalgia relief with acupuncture Seattle PI - March 1, 2007
Is fibromyalgia causing you chronic body pain, fatigue and depression? A
2006 Mayo Clinic study might provide an answer: acupuncture. In this
study, authors found acupuncture significantly improved common
fibromyalgia symptoms of pain, fatigue and anxiety.
- Book Review: Essays in Social Neuroscience edited by Cacioppo and Berntson
Psychiatric Services (subscription) - March 2007
Another author, vis-à-vis stress mediators,
introduces the concept of allostasis—a metalevel mechanism for
achieving stability via change that is helpful during limited periods.
Yet the mechanism can lead, under sustained stress, to allostatic
overload, which is an imbalance reflected in a condition such as
chronic fatigue syndrome within a setting of low cortisol and elevated
cytokines. Estrogen mitigates the HPA response to stress, and female
animals, in situations that are not life-threatening, demonstrate a
pattern of "tend-and-befriend" versus fight-or-flight.
- Tips for Living with Fibromyalgia [From a Dental Hygienist] RDH, OK - Feb 28, 2007
...Providing dental services to patients living with fibromyalgia can
be a challenge to both the patient and the provider. Patients typically
are plagued with chronic, widespread pain, lethargy (commonly referred
to as “fibro fog”), and depression. These symptoms are exacerbated by
physically or emotionally stressful events and changes in weather
and/or temperature. However, the symptoms often exhibit no discernable
pattern whatsoever. Frankly, it’s difficult to predict how patients
will respond to different stimuli. What if a dental hygienist begins to exhibit
signs of fibromyalgia? Will he or she be able to overcome chronic pain,
fibro “fog,” and depression and remain a valuable, contributing member
of the dental team? [3 of 8 of the tips:] If your operatory is not ergonomic, plan to update it (in stages if necessary). Make a list and prioritize what is most important. Wear proper fitting gloves and masks.
Gloves that impinge on your thumb and fingers and a mask that tugs at
your ears may be the stimuli that could exacerbate symptoms. Evaluate the emotional integrity of your office.
Although all offices have their “drama,” working in an
emotionally toxic environment isn’t good for the healthiest
dental hygienist. A supportive office will help you live with
- Tired? aching? Lost interest in sex? This could be the surprising reason...
The Daily Mail - Feb 27, 2007
At one point, because [she] was always tired, her doctor suggested she
might have CFS (chronic fatigue syndrome), a condition many doctors
believe is best treated with a form of psychotherapy. On another
occasion she was given an iron supplement. [What she had was
hemochromatosis -- too much iron.]
- Your physician should treat your body, mind and soul Jackson Clarion Ledger, MS - 2/27/07
A growing number of Americans are left with a
sense of dissatisfaction with the status in health care. Many are
seeking solutions to their health-care needs that address their whole
person, rather than just their individual organ systems. They want to
prevent cancer, heart disease, Alzheimer's, chronic fatigue /
fibromyalgia, autoimmune diseases and other modern-day "plagues."
... When a physician demonstrates an appreciation of his
patient's physical, emotional and spiritual needs and seeks to assist
the patient in a culturally sensitive manner utilizing the most
effective tools available he/she is now practicing integrative or
holistic medicine. Actually, it's the least of which each of us
deserves - to be seen and treated as a whole person.
- Doctors receive $1M grant for HIV prevention research
The Temple News Online (subscription), PA - Feb 27, 2007
Researchers in the School of Medicine are making progress in the
understanding and treatment of two diseases caused by abnormalities in
the human antiviral pathway: HIV and Chronic Fatigue Syndrome. ... But the research team, headed by Dr. Robert J.
Suhadolnik, a professor of biochemistry in the School of Medicine [and CFS 2-5A researcher], is
developing a way to immunize against the spread of HIV through the use
of gene therapy.
- 6 Ways to Let Those with Chronic Illness in Your Church Know You Care
Best Syndication, CA - Feb 27, 2007
1 in 2 people in the U.S. have a chronic condition. If it’s not
you, it’s someone sitting next to you. Too often, a chronic
illness, such as fibromyalgia, or a chronic condition like back pain
from a car accident, is invisible. Those who live with chronic
illnesses do everything they can to look presentable, get to church,
and sit through the service. But as someone with rheumatoid arthritis,
as I stood during worship and grasped onto the pew in front of me to
balance my knees that need joint replacements, I nearly laughed as the
worship song said, “I will stand in spite of pain.”
Surrounded by a church I loved, I still felt lonely and misunderstood.
- Helping chronic fatigue sufferers Geelong Advertiser, Australia - Feb 27, 2007
Gordon Lingard spent thousands of dollars trying every
type of therapy available when he developed chronic fatigue syndrome
several years ago. Doctors could do little to help him but Mr Lingard
eventually found relief from the debilitating syndrome in a new type of
alternative therapy called reverse therapy.
- Lyme Inc. - Ticks aren't the only parasites living off patients in borreliosis-prone areas. Forbes, NY - Feb 27, 2007
calls chronic Lyme a "functional somatic syndrome," similar to other
nebulous ailments like Gulf War Syndrome, chronic fatigue and fibromyalgia. ...
- FDA approves new use for latest Lilly blockbuster Cymbalta
Fort Worth Star Telegram, TX - Feb 26, 2007
The U.S. Food and Drug Administration has approved a
new use for Eli Lilly and Co.'s fast-growing antidepressant Cymbalta.
The drugmaker announced Monday that the FDA approved Cymbalta for
the treatment of generalized anxiety disorder, a mental illness marked
by chronic anxiety, irritability and fatigue, among other symptoms.
... Lilly plans to ask the FDA later this year for approval to use
it for the neurological disorder fibromyalgia...
- News focus: Man in a million Sunderland Echo, UK - Feb 26, 2007
Tens of thousands of patients have been cared for by
Dr Daymond, consultant in rheumatology, since he came to Wearside in
1979. But after decades of serving the city, Dr Daymond, a
visiting professor at Sunderland University, has reached retirement.
... 'He's given me hope' GRATEFUL patient Margaret Windle says Dr
Terry Daymond brought hope to her life. The 68-year-old, pictured, who
sufferers from ME and fibromyalgia, has been treated by Dr Daymond
since he arrived in Sunderland in 1979 and was one of the first
patients to see him. Margaret says he has helped to give her a better
quality of life and thinks he will be irreplaceable. ... * THE
retirement of Dr Daymond sparked controversy over the withdrawal of the
drug procaine at the hospital. Patients at Sunderland Royal Hospital,
who were given the pain relief drug by Dr Daymond, can no longer
receive it now he has retired.
- Balancing energy and the mind Malaysia Star, Malaysia - Feb 24, 2007
Psycho-neuro-energetics (PNE) is the
science of how the workings of the mind affect the energy balance and
health of the organs, and how your energy status reflects on your
state-of-mind, emotions, behaviour, character, and health. RECENTLY I
received a letter from a qigong and martial arts exponent in New York,
the united States, who wanted to share his experience with using qigong
in helping people with traumatic brain injuries and fibromyalgia. He
reported much improvement in these patients after using a combination
of integrated concepts and techniques, including qigong, which he found
to be “very helpful”. ... The role of complementary
therapies in fibromyalgia probably reflects the situation with many
other medical conditions where modern medicine cannot offer
satisfactory treatments or cures. Qigong and other energy-healing
methods should be tried more often, especially since no chemicals or
needles are involved. Another medical enigma is chronic fatigue
syndrome (CFS), a condition that is similar to FM and continues to
baffle doctors. While pain is the dominant symptom of FM, fatigue is
the hallmark of CFS. In practice, many physicians do not distinguish
the two. ... I shall introduce psycho-neuro-energetics (PNE) –
the science of the inter-relationships of the mind, the nervous system
and the energies in your body; how the workings of your mind affect the
energy balance and health of your organs; and conversely how your
energy status reflects on your state-of-mind, emotions, behaviour,
character, and health. ... http://www.superqigong.com/articles.asp
- 1st fibromyalgia tissue bank set up at Sun Health Institute Arizona Republic - Feb. 23, 2007
The expanded arthritis research project is made possible not only by
the NIH grant but also by a $100,000 grant from the American
Fibromyalgia Syndrome Association and a pilot project grant from the
NIH. The institute needs fibromyalgia patients to donate tissue, Lorton
said. ... Tissue donation will not occur until the donor's death.
However, fibromyalgia-tissue donors will be asked to visit the
institute each year to have their malady checked and to complete a
pain-assessment questionnaire. For information on becoming a tissue
donor, call (623) 875-6528.
- Miner's Granddaughter Fairfax Connection, VA - Feb 22, 2007
Fairfax resident Gretchen Moran Laskas, who has
experience of Fibromyalgia, writes book about coal-mining life.
People ask me “What am I trying to do,” and I firmly
believe that everyone has a story, that everybody’s life is
“epic and important.” I often write about people who are
invisible to the public community. I want people to know that the
people you see on the street, or someone you see on their porch, these
are people who have epic and important lives going on if only you knew.
My goal is to shine to spotlight on as many people as I can.
- Social Security wait adds to pain. Ohioans struggle to survive awaiting disability benefits
Columbus Dispatch, OH - Feb 22, 2007
Waiting since early 2005 drove Dorothy Siders of
Columbus to bankruptcy and threatens to steal her home through
foreclosure. It’s all she has left. "It’s not like I
haven’t worked all my life since I was 16 years old," Siders
said. "If I could work, I would. …What are you going to do? You
just feel hopeless." Siders and Riley are caught in a rising tide of
thousands of backlogged disability cases at Social Security
Administration offices nationwide. ... Siders, 50, first applied for
benefits in early 2004 after she could no longer work at Kroger where
she had been employed for 16 years. Nearly constant pain from a back
problem and fibromyalgia, as well as asthma and other ailments, forced
her to quit. "I am getting foreclosed upon," she said. "I have relied
on my family. "I’m angry, scared and frustrated. … People
here in the U.S. who’ve worked all their lives are getting
shafted. It doesn’t even seem real to me."
- Nobody Passes All The Time San Francisco Bay Times, CA - Feb 21, 2007
Sycamore believes childhood abuse contributed
to the onset of her fibromyalgia, a disabling inflammatory disease that
she suffers from. ...
- Acquiring ancients’ medical secrets Montclair Times, NJ - Feb 21, 2007
The school’s late founder, Julie Puretz, grew
interested in the 2-millennia-old medical science after it helped her
overcome chronic fatigue syndrome, a condition she was diagnosed with
when her daughter was 4. As a single mom and a
graduate student at Columbia U, Puretz, a Paterson native and
resident of Cedar Grove, was extremely busy, and she couldn’t afford to
be tired all the time, ready to return to bed right after she got up,
said Morales, the Eastern School’s executive assistant. For
years, Puretz tried the Western approach, using intravenous medications
in a futile attempt to boost her immune system and give her energy. Finally,
after turning to acupuncture, her exhaustion lifted and Puretz went on
to study the field at Tri-State College of Acupuncture in Manhattan.
Shortly after her graduation in the mid-1990s, she established the
Eastern School, which recently celebrated its 10th anniversary. ... “This is not a competition between the different
philosophies of Western and Eastern medicine,” said Richard Portugal,
the Eastern School’s executive director. “It’s a melding of the two, so
patients get the best care they can.”
- Sufferers find chronic fatigue syndrome tiring to explain Chicago Defender, IL - Feb 21, '07
...most importantly, sufferers should avoid physical
and emotional stress, [Dr. Lenny] Jason said. He also said there is a
clear distinction between patients with
depression and chronic fatigue syndrome, though the two are often
confused. If depressed people are asked what they want to do tomorrow,
answer that they don't know, Jason said. "But if you ask people with
chronic fatigue syndrome the same question, they will tell you numerous
... Chicagoan Carole
Howard suffers from chronic fatigue syndrome, a condition causing
constant exhaustion and physical pain. But explaining her illness to
doctors and friends is often more frustrating than enduring it.
Howard had tried to get back to work, but she couldn't endure stress any more. Now she devotes
her time to a volunteer job as president of the Chronic Fatigue
Syndrome, Fibromyalgia & Chemical Sensitivity Coalition of
Chicago. http://www.cfccc.net/ or call (312) 409-5363.
- New Wiggle doesn't skip a beat Robertson County Times, TN - Feb 19, 2007
Diagnosed with orthostatic intolerance, a disease that, although not
life-threatening, causes nausea, dizziness, fatigue and other symptoms
that affect balance and coordination, the singer turned over his famous
yellow skivvy to his friend and former understudy...
- Some advice on how to manage pain Vancouver Sun - February 19, 2007
Be sure your physicians have done all they can. Take heart, says Centre
for Integrated Healing Dr. Teresa Clarke, who also works extensively
with fibromyalgia and chronic pain... Trust that what you're experiencing is real and take charge in some way, says the centre's Dr. Janice Wright.
Even pain with a clear organic cause such as cancer can sometimes be
lessened through mind, body and spirit approaches to the point where it
isn't a significant burden any more, says centre CEO Hal Gunn. At the same time, new medical interventions can be very effective. ...
- Avoid the "nobody
loves me, everybody hates me, I'm going to eat worms," mindset. This
approach "revs up the nervous system and almost always aggravates your
pain," Shick says. Interestingly, fighting too hard against inevitable
pain is also unhelpful.
- Manage your emotions.
Anxiety and depression escalate pain signals. Anything that brings fun
and joy increases endorphins to offset pain signals, Clarke says.
- Relationships have
surprising effects on pain. Friends and partners who distract you from
pain help more than those who blame you for always complaining or being
oversolicitous, Shick says.
- Take prescribed medication. Uncontrolled pain can have a cascading physiological and psychological effect. ...
- With chronic pain, know that hurt doesn't
necessarily mean harm. Just because it hurts doesn't mean things must
be getting worse, Craig says.
- Do not underestimate the effect pain can have on all aspects of your life -- see a psychologist.
"It's not that you don't have pain," Klinkhoff says. "You do. It's not
that you don't have a chronic disease, because you do. But how do you
process it and deal with it? Anxiety about the future aggravates our
pain. Psychologists can help with that." ...
- If you're considering herbal supplements or alternative products,
consult a naturopathic doctor, Clarke says. Other sources may be
misinformed. For instance, a calcium/magnesium supplement at night
might help a muscle spasm, but wouldn't help an inflammatory condition.
- Self-hypnosis: Relaxation therapy can be done alone Argus Leader, SD - February 19, 2007
Dr. Myung Cho sees it as a path to hope for her chronic pain patients.
One in four people suffer from chronic pain related to low back pain,
neck pain, headache, arthritic conditions, abdominal pain and
fibromyalgia, says Cho, medical director for the chronic pain
management program with Avera McKennan Hospital. Pain patients usually
are tense, scared that the pain will get worse and stressed out from
constant discomfort. In order to find relief, they have to learn how to
control stress, which is the body's reaction to the hurt. "Your body is
the classroom, the mind is the teacher. But if your body is so noisy,
you can't hear anything; you have to calm your mind and your body
- New Spin on Chronic Dizziness MedPage Today, NJ - Feb 19, 2007
look beneath the surface of chronic subjective dizziness, in which
there's no clear evidence of vestibular problems, usually comes up with
a diagnosis of physiologic ills, psychogenic factors, or a combination.
... "Anxiety disorders are known to cause dizziness, but a study of 122
patients with chronic dizziness and anxiety found primary anxiety
disorders in only one third of individuals"... "Most had
secondary anxiety precipitated by the medical events responsible for
their dizziness." ... The authors conducted a study to determine
whether they could identify
in people with unexplained dizziness specific clinical features leading
to a differential diagnosis, so that appropriate treatment could be
delivered. In all, 206 [of 345] patients (59.7%) were diagnosed with a primary or
secondary anxiety disorder, and 133 (38.6%) were diagnosed with a
central nervous system condition.
was diagnosed as a dizziness source in 57 patients (16.5%), traumatic
brain injury was pinpointed in 52 patients (15.1%), and dysautonomia
was diagnosed in 24 (7%). Six of the patients were found to have atrial or ventricular dysrhythmias.
- Politics Plays Role in Research Mike Stobbe, Associated Press - Feb 17 & 18, 2007
Pain meets politics in focus on chronic fatigue:
After agency misused funds for once-ignored syndrome, lobbyists took aim MSNBC
Fatigue research funding shows power of lobbying Bryan College Station Eagle, TX
Is science, or guilt, motivating CDC? Links to politicians, advocates are complicated
Pioneer Press, MN
‘FIRST WAKE-UP CALL’ Chronic fatigue syndrome group’s example paved the way for others with a cause. Kansas City Star, MO
How advocates energized chronic-fatigue research. CDC, caught diverting money away in '98, has moved to the forefront. Arizona Daily Star, AZ
Politics Plays Role in Disease Research 6abc.com, PA
Politics Plays Role in Disease Research WTOP, DC
Politics Plays Role in Disease Research Washington Post, DC
- Sick & Tired: The Truth Behind Chronic Fatigue Syndrome
WCSH-TV, ME - Feb 15, 2007
Imagine suffering from joint pain, sleep deprivation and exhaustion,
only to be told it's all in your head. That's the reality for many
people living with chronic fatigue syndrome. Now, federal medical
experts are finally recognizing CFS as a real disease.
- The Invisible Side of Fibromyalgia BellaOnline - Feb 15, 2007
We can find a wealth of information about the physical
symptoms of fibromyalgia and chronic fatigue syndrome, but where can
you turn to find out about the side of fibromyalgia that is not visible
to others. We shed light on the personal side of fibromyalgia.
- Relief from disorders comes from the beat of a drum Asbury Park Press, NJ - Feb 14, 2007
"Sometimes it's difficult to deal with
it [FM] and you need someone who
understands what you are going through," said D'Urso, who added that is
why she came to the support group. ... Barbara Yodice said that
sometimes 40 to 50 people come to the support-group sessions. "We
try to keep the atmosphere very positive and upbeat. If I can come in
here with a smile on my face after all I've gone through it sets the
tone for everyone else," she said.
- ChronicBabe Offers Alternative to "Whining" About Illness
Medscape (subscription) - Feb 14, 2007
The positive slant on the site is absolutely purposeful. I
was diagnosed with fibromyalgia at 25, and for a couple of years after
my diagnosis, I searched for online resources and in-person support
groups that could help me cope... But the support groups and sites were
all about bitching. That's it -- just complain, whine, wallow. Of
course, there's a place for that; it's not healthy to hold in negative
emotions, and if you're chronic, you've definitely got a legitimate
complaint to a certain degree. But after
you let it all out, you've got to move forward, or your illness takes
over... ChronicBabe.com is purposefully positive because there are still
a bazillion Web sites out there where people can complain endlessly. I
don't need to join that crowd. I'm offering an alternative for people
who are ready to move forward with their lives.
- Migraine sufferers likely to have other problems Jackson Clarion Ledger, MS - Feb 13, 2007
She was originally diagnosed with
fibromyalgia, a musculoskeletal pain disorder. For years she lived with
migraines believing it was a part of the package deal with
- Sleep-driving scary Ambien side effect The Spokesman Review, WA - Feb 13, 2007
Also, magnesium for FM mentioned.
- Caregivers fill a void for people [with FM/CFS] in need of help
North Lake Tahoe Bonanza, NV - Feb 11, 2007
Singer said the individuals she cares for are like
her grandmothers. She said she works two to three days a week doing the
everyday tasks her client, Truckee resident Bridgette Weiszhaar, cannot
do at home because of a disability. Weiszhaar said she has been battling fibromyalgia,
a chronic syndrome causing muscle and joint pain, for 15 years. The
pain has grown worse over time, and day-to-day household chores are too
much for her to do by herself. With no family living nearby, she
decided to hire a caregiver, she said. Weiszhaar said she
heard about In-Home Supportive Services from her neighbors. She said
the agency sent a few potential caregivers to her home to let her, as
the employer, interview each person and find out if the caregiver
candidate would be a good match. Honesty and personality were some of
the qualifications Weiszhaar was looking for, and found, in Singer, she
said. "I was used to being alone. I really enjoy having her
here. She's not just my caretaker. She's my friend," Weiszhaar said.
"I've had caretakers before who didn't want to clean. All they wanted
to do was to get paid."
- RAAF helps WA girl get heart transplant
Sydney Morning Herald, Australia - Feb 10, 2007
Multiple doctors misdiagnosed her condition over the past two years as chronic fatigue syndrome.
- Yes, It’s Real [FM] New Hampshire Magazine, NH - Feb 10, 2007
Fibromyalgia is indeed
real. The American College of Rheumatology, the American Medical
Association, the World Health Organization and the National Institutes
of Health have all accepted fibromyalgia as a distinct clinical entity.
- Disabled students' rights fight BBC News, UK - Feb 9, 2007
When Catherine Hudson arrived at university, she
faced the daunting task of explaining the issue surrounding her
disability to many on campus. "That myalgic encephalopathy (ME) has had a bad press in the past is to put it lightly," she says.
"Most people still do not understand the complexities of
the illness. For me, that means that I'm not always in a wheelchair."
Ms Hudson, now a mentor to other disabled students, says she feels that
being in a wheelchair is the only badge qualifying her for support.
"Why should I have to debate my conditions with strangers if I need
help but I'm not using my wheelchair?" she says.
- Chronic fatigue syndrome and how to deal with it
Neeta Lal Women’s Feature Service
Sur in English, Spain - Feb 9, 2007
Symptoms can include short term memory loss and inability to concentrate at work
- Understanding The Caregiver For Chronically Ill: The Person Behind the Chair Choosing Divorce (Part Two) Jewish Press, NY - Feb 7, 2007
First she [a care giver] was
diagnosed with fibromyalgia, then chronic fatigue syndrome. She became
ill with shingles and chronic headaches. Her blood pressure soared. ...
Coping with chronic illness is very hard. The lives of those
coping with it are complicated. More complicated then most of us can
even imagine. Some people stay in the marriage because of the children.
Some leave for the very same reason. Many leave so they can have
children. Many leave simply so that they can both survive the stress
the illness brings. We should not presume to judge anyone in that
situation for making the decision to stay or leave the marriage. Our
job is to lend support. Everyone coping with chronic illness −
the one who is ill, the spouse, all members of the family and even
close friends, all need our support. They do not need our criticism or
our uninformed advice, just our support. And that is the only thing we
should feel compelled to give. The Understanding the Caregiver For Chronically Ill News Series.
- Kulongoski urges expansion of Oregon prescription drug program
OregonLive.com, OR - Feb 6, 2007
The program already helps about 12,000 Oregonians,
such as Patricia Stotler, a 59-year-old former secretary who was
diagnosed with chronic fatigue syndrome in 1996. Stotler, who takes
three medications for her disability, said that after joining the
program a year ago, her annual prescription medication costs of $500
were cut in half.
- Natural approach St. Petersburg Times, FL - Feb 5, 2007
There are no official estimates of trained homeopaths practicing in
the United States today, but the number is certainly far less than in
its heyday, says Peter Gold, a biologist and homeopath affiliated with
the National Center for Homeopathy, based in Alexandria, Va. The
most qualified practitioners are typically medical doctors and
osteopathic doctors, naturopathic physicians certified in homeopathy,
and licensed health professionals who have obtained a Certificate in
Classical Homeopathy. ... The National Center for Complementary and Alternative Medicine at the
National Institutes of Health is funding studies on homeopathy's
effectiveness in treating disorders including fibromyalgia, stroke and
- Chronic pain keeps hurting Hamilton Spectator, Canada - Feb 4, 2007
"We're pretty disappointed," said
Charles McRae, clinical manager of the program. "We couldn't keep
going. There's no funding for a multidisciplinary approach to pain
management." ... But both medical professionals and patients argue that
multidisciplinary teams are essential to treat chronic pain and point
to numerous research studies backing them up. "It's very
important, certainly for complicated patients," said Dr. Norm Buckley,
medical director of the Pain Management Centre at Hamilton General
Hospital. "But if you're not working or not injured on the job, you're
not covered." The main focus of the teams is not to treat pain, but to
help patients cope with it so they can still live active lives. A wide
variety of health professionals such as occupational therapists,
nutritionists, physiotherapists, social workers and psychiatrists teach
everything from how to lift groceries off supermarket shelves to what
positions to sleep in and proper meditation techniques. ... [a]
56-year-old Hamilton woman, who suffers from arthritis,
fibromyalgia and a number of autoimmune diseases, was nearly housebound
when she started the 11-week program. Now she helps run a pain support
group, volunteers with the program and is leading a much more active
life. "It gave me a feeling of self worth again," she said.
- Struggling with having an 'invisible disability' Annapolis Capital, MD - Feb 4, 2007
On a busy street, it would be hard to pick out the people who are
deaf, or have psychological problems, severe allergies, diabetes,
fibromyalgia, ADHD, chronic pain, Lyme disease or any one of several
dozen disorders that are not obvious. Yet millions of Americans are
misjudged or misunderstood, often by their own family and friends." Some don't understand why you can't take a medicine and be cured," said Ms. Bates.Ms. Bates finds she can "vacuum in the morning but barely get out of a chair by the afternoon." ... Doctors treating patients with invisible diseases find offering counseling to both the patient and their family helps. "I
often have to counsel the patient and the family," said Dr.
Charlene Hafer-Macko, associate professor of Neurology and Medical Director of University of Maryland's Myasthenia Gravis Center.. "What's possible and not possible. Some try to do
everything and the next day, they can't get out of bed. "Support
groups help a lot with understanding the disease, coping with the
disease, getting the best out of life, breaking down barriers and
- Where's my support group? Portsmouth Herald News, NH - Feb 4, 2007
Her disease is chiari 1 malformation, a little-known structural
defect of the cerebellum, the part of the brain that controls balance.
The difficulties of chiari (pronounced key-ARE-ee) go far beyond
balance and dizziness, though, as a lack of space at the base of the
skull pushes the cerebellum and brain stem into the upper spinal canal,
placing pressure on the spinal cord. ... "But I don't know how to go about starting a support group. It takes more than one." Certainly, Briggs isn't the only one who feels this way. Despite
long lists of support groups offered by local hospitals and community
organizations -- everything from depression to grief to attention
deficit disorder to a whole host of cancers -- there are still many
diseases that have no outlet.
... "Having the support of other people who have to deal with chronic
pain is very beneficial," McCann said. "Talking about it and getting it
out, rather than keeping it in, keeps you from getting depressed -- and
I was depressed when I started the group. "People around you try to understand, but in all honesty, they
don't. The only people who know are those who experience it
themselves." Research has found that belonging to a group and talking to others
with common problems can alleviate mental stress, making treatments
- Take Fatigue Seriously Says Researcher Medical News Today - Feb 2, 2007
Instead of dismissing grumblings about
being tired or exhausted, people should take these complaints seriously
before they lead to a worsened health state or even death, says a
University of Alberta researcher investigating fatigue. Dr. Karin
Olson, a U of A professor from the Faculty of Nursing, argues that
there are differences between tiredness, fatigue and exhaustion and
that recognizing those distinctions will help health-care workers
create better treatment plans for their patients. Her findings are
published in the current issue of Oncology Nursing Forum. Olson, ...,
has created new definitions for tiredness, fatigue and exhaustion and
argues that they represent various points on an energy continuum. The
amount of energy a person has influences how easily he can adapt to
stress that comes his way. Individuals who are tired still have a fair
bit of energy, so although they may feel forgetful, and impatient, and
experience gradual heaviness or weakness in muscles following work,
this is often alleviated by rest. Fatigue, on the other hand, is
characterized by difficulty concentrating, anxiety, a gradual decrease
in stamina, difficulty sleeping, increased sensitivity to light and the
limiting of social activities once viewed as important. Individuals
with exhaustion report frank confusion that resembles delirium,
emotional numbness, sudden loss of energy, difficulty both in staying
awake and in sleeping and complete social withdrawal. "It is important
to recognize the difference between tiredness and fatigue, because
fatigue is a marker that the body is not able to keep up," says Olson.
"The onset of the manifestations of fatigue, particularly if these are
not normal states for you, should be taken seriously." Failing to
understand the distinctions between tiredness, fatigue and exhaustion
could result in the use of inappropriate interventions that
inadvertently promote fatigue and exhaustion.
- Writer uses a take-charge attitude Huntsville Times, AL - Feb 2, 2007
Crowson was diagnosed with fibromyalgia and
chronic fatigue syndrome in 1977, often leaving her
wheelchair-bound but determined to improve. "My hands
began to fly across the keys of a new typewriter my son
bought for me, and there emerged the first book,"
Crowson said. That book shared her "story of going from
a victim of abuse (financially, physically, emotionally,
sexually) ɠto a survivor ɠto a thriver." In her first
training program, Crowson developed "how-to's -
how to move from the ironing board to the executive
As a motivational humorist, Crowson urges "every man,
woman or child" to take control of their lives. Her
latest four-hour program takes an individual, employee or
CEO "from where they are to where they want to go, with
visible results during the first hour."
Secret of success: "Educate yourself first, implement
it in your own life and then train others."
Biggest mistake: Having been a "workaholic and
destroying my health. Getting balance in my life was a
- A tale of abuse and recovery: 'Riding Grace' tells the story of one woman's journey of self-discovery and healing Mail Tribune, OR - Feb 2, 2007
"Making the decision to say yes to the
book was really to embrace all of my life," Lukara says. "Somehow that
acceptance opened me up to this irrational descent of grace. Lifechallenges.org
- Diseases Doctors Miss Woman's Day Magazine - February 2007
Information about CFS with resources for additional information.
Access to web versions of articles to
- Consumer Reports On Health Magazine - February 2007
Information about CFS with resources for additional information.
Access to web versions of articles to
- Lawsuit: Sharon hospital fired woman because of her age, disability Sharon Herald, PA - Jan 30, 2007
Ms. Scholl said she was
hired in August 1973 as a lab aide and clerk, but left in 1990 because
of fibromyalgia and chronic fatigue syndrome, which “substantially
limited her in nearly every major life activity.” She was rehired in 2001, a time when she
was “without symptoms,” she said. Ms. Scholl was promoted in August
2004 from mental health worker to psychiatric social worker. She said
she notified her employer that her symptoms had returned and asked for
help — which she said “constituted a request for accommodation” — but
officials retaliated against her by increasing her workload, and in
- Chronic Fatigue Syndrome Is A Debilitating For Those Affected WNDU-TV, IN - Jan 30, 2007, Video Available
But now, this disorder is being
recognized as a problem in children too. ... For the first time, a
pediatric definition for CFS is being presented at an international
conference in Fort Lauderdale. It will be published in a journal next
Jason, ph.d. of DePaul University stated, "Some children have things
like abdominal pains, rashes, sleep cognitive memory problems so they
sometimes have a constellation of problems that are different than the
adult population." CFS in children usually strikes between the ages 10
and 17 and about 80% recover. That is a much higher percentage than
But one in five will remain debilitated; the causes are unclear.
- Study finds eye-opening cost associated with fatigued workers SHRM Magazine, VA - Jan 30, 2007
... Workers who are
fatigued—defined as “a feeling of weariness,
tiredness or lack of energy”—averaged 5.6 hours per week in
productive time (LPT) compared to about 3.3 hours in lost time by
workers who were not fatigued, it found. However, while fatigued
workers “are significantly more likely to
miss work and experience long-term work absence” compared to
aren’t fatigued, the majority of LPT is attributable to reduced
performance, such as difficulty concentrating or working more slowly,
rather than absences, the study says. Symptoms of mental and physical
fatigue vary according to the individual and the degree of overexertion
Weariness, Weepiness, Irritability, Reduced alertness, Lack of
concentration and memory, Lack of motivation, Increased susceptibility
to illness, Depression, Headache, Giddiness, Loss of appetite and
digestive problems. ... The findings “suggest that intervention efforts targeting workers
with fatigue, particularly women, could have a marked positive effect
on the quality of life and productivity of affected workers,” the study
Suggested strategies include: Increasing
workers’ access to employer-sponsored work/life programs for
help in balancing their work and personal responsibilities and
Ensuring that workers whose fatigue is a primary symptom of a
condition, such as chronic fatigue syndrome or depressive disorders,
get assessment and treatment.Work/life programs can include concierge services such as dry
cleaning pickup, child and elder care, and access to legal or financial
services such as estate planning. Alternative work arrangements such as
job sharing and telecommuting also “could be incredibly beneficial,”
One of the important findings: LPT goes up when fatigued workers
have one or more of nine particular health conditions—pain, digestive
problems, depression, cold, flu, asthma, cancer, heart disease and
diabetes—Ricci told HR News.
- Pharmacy specialties fuel growth AZ Central.com, AZ - Jan 29, 2007
The store's low-key, pleasantly furnished environments are also
atypical. At the north Scottsdale store, pharmacist Courtney Yee
dispenses medications for patients who have become friends over the
three years she has worked with them. Many are chronic pain sufferers
with conditions such as fibromyalgia, arthritis or multiple sclerosis
who benefit from Yee's counseling on stress reduction and other options
for healthy living. "Some people with chronic conditions have come in
here every month for years," Yee said. "They may have 10 prescriptions
to fill at a time. Here, they can relax in a leather chair and feel at
home. They tell me about their families and their work. Some even bring
- Let the vitamin D shine in: Sunlight triggers nutrient: Are you getting enough?
Deborah Kotz, U.S. News and World Report in Denver Post, CO - January 29, 2007
"New evidence indicates that many people suffering symptoms of chronic
fatigue syndrome and fibromyalgia actually have a painful softening of
the bones caused by a D deficiency."
and "It's the first comprehensive theory set forth to explain the
seasonality of influenza," says vitamin D expert and lead author John
Cannell, president of the Vitamin D Council and staff psychiatrist at
Atascadero State Hospital in California. What's now needed, he says, is
a trial to see if those exposed to flu viruses are less likely to come
down with an infection if they take supplements."
- Drained by the brain The Australian - January 28, 2007
Yuppie flu is real and may be caused by disruption in
the brain. Clara Pirani investigates the disease, which is costing the
country $525 million a year. LYN Wilson has a blunt message for anyone
who doubts that chronic fatigue syndrome is a debilitating physical
illness. "Why would anyone want to give up their life and their income,
for nothing? People who think we're not sick don't have a clue." ...
Chambers says Jeremy suffered relapses whenever he tried to push
himself physically or mentally. "The message we have to get out to
parents and teachers is to back off and stop telling kids and teenagers
to just push on when they are sick.
- 'I used reverse gear to beat ME' The Northern Echo, UK - Jan 27, 2007
"What Reverse Therapy believes is that your body is sending you
messages all the time. If you ignore these sensations then your
hypothalamus picks up on this," says Lyn. "If you are feeling fear it
wants you to find a way to be safe; if you are angry, it wants you to
defend yourself. If you ignore them it is like a pressure cooker and
all the emotions boil up." At this stage, according to the theory, the
pituitary gland goes into overdrive flooding the body with adrenalin.
"When the feedback mechanism breaks down, hormonal and nervous messages
get short-circuited and people can get stuck in that state." ...
As part of the therapy she used message cards to prompt her to remember
to heed her bodymind' rather than her headmind'. To the amazement of
her family and friends Lyn is now fully restored to health. If
anything, Lyn now feels even better than she did before her illness.
- Giving Health Care A Check Up CBS Evening News - Jan 25, 2007
"How many more .... are out there falling through the cracks of the
health care system ? For most of the last 10 years, the 56-year-old
suffered from chronic fatigue syndrome and couldn’t work, which
meant no insurance coverage and mounting medical costs. Her monthly
prescription bills alone cost her a staggering $500 to $600 a month,
she told me. She burned through her retirement savings just to make
ends meet. " Last fall, she was asked to become the first enrollee in
the state’s [MA] new mandatory health care system and jumped at
the chance. “I hope it’s a step towards universal insurance
and I hope the government will get more involved because it really
needs the voice of me and all the other people that have, have
situations that don’t fall in boxes,” she said.
- Progress For Treatment Of CFS Slow But Promising Click10.com, FL - Jan 26, 2007
Interviews Nancy Klimas, MD, and PANDORA's Marly Silverman. "According
to the Centers for Disease Control, 4 million Americans have chronic
fatigue syndrome. That’s more than all the patients who have
multiple sclerosis, lupus, lung cancer or ovarian cancer combined." and
"New studies show adolescents are also being diagnosed more frequently
with chronic fatigue syndrome."
- Search for answer to an enduring problem The Herald, UK - Jan 24, 2007
About Anna Hemmings was at the peak of her athletic prowess: world
kayaking champion, diagnosed with CFS around 2002 and Dr Paula
Robson-Ansley's research into fatigue genes.
- The Dream Teen Victoria Times Colonist, Canada - Jan 24, 2007
About a young girl diagnosed with amplified pain syndrome and early
fibromyalgia who finds a project that has had a positive effect on her
- The Fifth Flavor - Although Maligned, MSG Can Find A Place In Your Spice Rack
Rocktown Weekly, VA - Jan 23, 2007
- Talk brings relief - Support groups help people cope with illness, but it can be difficult to find or start one Akron Beacon Journal, OH - Jan 23, 2007
"For some people with rare diseases, the Internet may offer support
through national or international organizations devoted to those
diseases. Chiari, for example, has a Web site called www.conquerchiari.org, with an active e-mail discussion group offering support and encouragement.
Briggs, though, needs more. ``The Internet, I don't trust it,'' she
said. ``I can tell by looking at you, by listening to you, if you've
been through what I've been through. I need to be able to see you.'' "
- Tips on seeking support group; what to avoid Bradenton Herald, FL - Jan 23, 2007
- Wal-Mart Eight members Izzo, Garcia sentenced Eastern Arizona Courier, AZ - Jan 22, 2007
Izzo argued she wouldn’t do well in jail because she has been
diagnosed with fibromyalgia syndrome and is currently taking 360 pills
of Percocet a month.
- Fatigue syndrome is not all in the mind Times Online, UK - Jan 22, 2007
Changes in the brain and cell activity may be the key to treating CFS
- Pfizer Reports Profit Plunge, Plans to Deepen Cuts (Update1) Bloomberg - Jan 22, 2007
Pfizer said it submitted an application in December with US regulators
for approval to market the pain drug Lyrica for fibromyalgia, a
condition that causes fatigue and muscle weakness.
- When ‘feeling tired’ signals something more Second Opinion, Parade Magazine - Jan 21, 2007
See Toni's comments at this site!
- Patient delusion -- or medical confusion? Globe and Mail, Canada - Jan 21, 2007
Mentions MCS, chronic fatigue syndrome and fibromyalgia, Morgellons, vulvodynia, more.
- Altered foods on the march Asbury Park Press, NJ - Jan 20, 2007
There's just one problem with this, which is why my
California Girl sent this to me: Their DHA is from algae. People like
me, who are allergic to iodine and shellfish, can't eat algae. I just
had this confirmed … again … by the maker of a natural
formula said to alleviate some of the pain of fibromyalgia, an illness
that plagues me. Their product includes algae. Allergic to iodine and
shellfish? Don't consume algae, they said. Now, just to add icing to
this cake: Some manufacturers' DHA comes from fish oil.
The way this is going, the sugar-coated flakes and heart-healthy oat circles at breakfast might be deadly for me.
- Lyme Disease Laura Kenyon, New Caanan Advertiser, CT - Jan 11 and 18, 2007
- Part II: Medical experts weigh in on Lyme disease
Amidst the start of an unprecedented
investigation by Connecticut Attorney General Richard Blumenthal into
Lyme disease treatment guidelines, victims of and experts on the
disease are speaking out about its precarious place in the medical
world. In the second of two articles about Lyme disease, the Advertiser
considers the varying opinions medical professionals hold regarding
such guidelines, the existence of chronic Lyme disease, and long-term
antibiotic treatment. See reprint at LymeBlog.com
- Part I: Lyme disease: Victims rally for help
In the wake of an unprecedented move by State
Attorney General Richard Blumenthal to investigate Lyme disease
treatment guidelines put forth by the Infectious Disease Society of
America (IDSA), victims of and experts on the disease are speaking out
about its precarious place in the medical world. In November, Mr.
Blumenthal's office filed a Civil Investigative Demand to look into
possible anti-trust violations by the IDSA during the development of
its updated... See reprint at LymeBlog.com
- New study investigates links between fatigue, genes and athletic performance
innovations report, Germany - Jan 18, 2007
Dr Robson-Ansley’s latest research looks at whether
‘fatigue resistant’ endurance athletes have a slight
variation of the gene responsible for IL-6. Previous studies have found
that people a C-type variation of the gene produced less IL-6 during
infection than those with the G-type of the gene. “The findings
of these tests may be significant in furthering our understanding of
the relationship between fatigue and athletic performance and why some
people develop chronic debilitating fatigue for no apparent
reason,” Dr Robson-Ansley said. ... The results of the new study
are expected to be released in mid-2007. Dr Robson-Ansley is a former
Olympic standard rower. She suffered from chronic fatigue syndrome and
retired from the sport to focus solely on her academic career.
- Tasman-jumpers change direction Taranaki Daily News, NZ - 18 January 2007
However, after battling chronic fatigue syndrome for 20 years, one of
the main features of the debilitating illness, unrefreshing sleep,
caught up with Mr Luckin and the decision was made to employ a
sharefarmer to enable him to take things easier. "I was finding one
good night's sleep would not allow me to bounce back and was needing
two or three to come right, so it became obvious that I couldn't handle
the physical side of dairying myself and had to do it another way."
- Dump the DSM! Paul Genova, M.D., Psychiatric Times, NY - Jan 17, 2007
The American Psychiatric Association's DSM diagnostic
system has outlived its usefulness by about two decades. It should be
abandoned, not revised. Its primary achievement was to force American
psychiatrists to recognize that not all patients presenting with florid
psychoses had schizophrenia. More generally, it aimed to force the idea
of operationally defined syndromes down the throat of a profession that
was still, in the 1970s, dominated by the vague and archaic concepts of
psychoanalysis at its American 1950s worst.
...the somatoform disorders are a mess (four pain symptoms, two
gastrointestinal symptoms and so on). Primary care physicians never use
these diagnoses, instead sticking with the clinical presentations they
see, such as fibromyalgia syndrome. Anxiety disorders are artificially
separated from the mood and psychotic disorders with which they are
usually intertwined, yielding the frequent question, "If I have an
anxiety disorder, why are you treating me with an antidepressant?" How
many cases of pure generalized anxiety disorder have you seen? Of
isolated social phobia? And so on.
- Understanding fibromyalgia Journal Gazette and Times-Courier, IL - Jan 16, 2007
- Local woman wants to start support group for people who have chronic pain
Journal Gazette and Times-Courier, IL - Jan 16, 2007
- Court to Cianbro: Reinstate fired employee MaineToday.com, ME - Jan 16, 2007
A U.S. District Court judge has ordered Cianbro Corp. of Pittsfield to
reinstate a former employee who was fired five weeks after he disclosed
he had fibromyalgia.
- The facts on ME The Evening Chronicle, UK - Jan 15, 2007
A facts and figures booklet has been published by a
charity containing information from two surveys on ME. Action for ME
found 83% of all people with the illness, which causes severe fatigue,
suffer from muscle-pain, yet only 14% of all people surveyed realised
this was a symptom. ... The full details of the findings are now
available in a downloadable booklet from http://www.afme.org.uk/booklets.asp
- Small trial stirs hope for chronic fatigue patients Reuters - 1/14/07
- Autistic teen, adult talk to parents who have autistic children
The News & Advance, Lynchburg, VA - 1/13/07
At 41, Thomas McKean is an author, songwriter and interpreter of autism
- of his own and for others. ... In 2001 he was on Oprah
Winfrey’s TV show, reaching a huge national audience. By the late
1990s, the pace of his life slowed following a diagnosis of
fibromyalgia. “I came to the Blue Ridge mountains to heal.”
In recent years, he said, he’s been on a spiritual odyssey and
that brought him insight into what he feels is the subjective nature of
- 1.2 million Canadians suffer from unexplained illnesses CanWest NewsService - 1/13/07
- 5% of Canadians report 'medically unexplained' conditions CBC - 1/12/07
More than a million Canadians are dealing with conditions that cannot
be identified by medical tests or physical exams, Statistics Canada
said Friday. The agency looked at data from 2002 and 2003 for people
aged 12 and over. ... About 1.3 per cent of the population
reported chronic fatigue syndrome, which is characterized by extreme
tiredness. About 1.5 per cent reported fibromyalgia, which
involves pain lasting three months or more in at least 11 of 18
specified areas. About 2.4 per cent reported multiple chemical
- [Pioneering New Support] Group to help ME sufferers The Cumberland News, UK - 1/12/07
“The project will look at how health researchers can help to
build up the knowledge base about ME, while at the same time offering
direct support to sufferers and their families in an area with few
specialist resources.” “The first thing we would like to do
is establish contact with people with ME who live in the area.
“We’re building up a first-class resource that will
help people manage their condition. “While waiting for a
cure, people can have their lives ruined by ME and the frequent open
hostility they experience from people who don’t believe it is a
genuine illness. Adults can lose their jobs and find it difficult
to claim benefit. Children can miss years at school because they are
too ill to attend.” The new Carlisle group is working closely
with academics at ... three universities...
- Snoring partner is 'big relationship divider,' sex therapist says MyWestTexas.com - 1/12/07
"She moved down the hall after being diagnosed with chronic fatigue
syndrome, caused both by his loud snoring and by her job as an airline
ticketing agent, which required her to get up at dawn."
- Reiki treatment: Ancient practice used to heal body, soul of recipients
Myrtle Beach Online - 1/11/07
Wanda S...., who was diagnosed with osteoarthritis and fibromyalgia
last year and has a knee injury, began receiving weekly Reiki
treatments from Butler several months ago. "I was emotionally and
physically miserable," said [Wanda]. "I was just drained. Basically, it
was all I could do to make it through a day. I would just come home and
crash. I was at my rope's end, so I found out about Denise and called
her. "She knew nothing about me when I went in there. What amazed me
was basically the first place this woman's hands went was on my injured
knee. It's like she was reading my body. I wasn't limping when I went
in there, but I was hurting. I thought, 'How did she know that's where
I needed her to go?' "I basically can walk without a lot of pain [now].
They had me on a pain reliever. I quit taking it pretty much once I
started the Reiki." [Wanda] said the Reiki treatments also have helped
emotionally. "It's sort of awaked a part of me that was gone. I wasn't
even dreaming. I was so out of touch with myself that if I dreamed, I
didn't know it. But now I dream."
- £700,000 for parrot disease victim Chesterfield Today, UK - 1/11/07
A spokesman for the company said Mr ... had enjoyed a
"progressive career" with the company until he contracted psittacosis,
which resulted in Chronic Fatigue Syndrome.
- Report shows public think pharma ‘puts profits before patients'
Outsourcing-Pharma.com - 1/11/07
- Brand-New Online Banner Ads for CFS! CFIDSLink - 1/10/07
- Doctors slow to recognize mysterious disease Charlotte Observer - 1/10/07
Victims of Morgellons suffer real symptoms but accused of delusions
- Consumers and Pharmaceutical Companies Far Apart on Views of Pharma Industry, Finds PricewaterhouseCoopers Survey DrugNewswire.com - January 10, 2007
Perception Gap is Eroding Public's Trust, Industry's Reputation
- Herpes drug may help with chronic fatigue [syndrome] UPI - 1/9/07
- Fatigued? Ignore it at your peril The Times of India - 1/9/07
- When life gives you lemons Mail Tribune - 1/9/07
Living with a disease doesn't mean you can't minimize its effects
- Drugs nearing approval for mysterious pain condition [FM] Boston Globe, Reuters - 1/7/07
Not all doctors are sure about the pain and fatigue condition known as
fibromyalgia, but drug companies are racing to win U.S. regulatory
approval to serve this potentially lucrative market.
- Dark chocolate may fight fatigue Scenta, UK - Jan 5, 2007
Study shows improvement in chronic fatigue over eight weeks [CFS]
- Positive approach can totally transform lives Malvern Gazette, UK - Jan 5, 2007
BEING diagnosed with a long-term health problem
[doesn't necessarily have to] stop people from leading a full and
satisfying life. ... The course is about getting people to suggest what
would be useful to them. We work right across the board, and can talk
about anything from symptoms, to diet and exercise or anything else."
Mrs Green said it was very easy for people with long-term conditions to
become isolated but the course tries to show them that does not have to
be the case. ... It can put a light back into people's lives when
everything seems to have gone out. It really can be life-changing." One
of ... first patients ... was Lorraine B..., who is registered
blind and suffers from painful muscle condition fibromyalgia. Since she
had to take medical retirement from the NHS in 1999, Mrs Barson has
founded the hugely successful Malvern Hills Gymnas-tics Club, which now
teaches more than 600 children per week. She said the course had made a
massive difference to her day-to-day life, and would recommend it to
anyone. "Before I did the course, I just stayed at home and did nothing
for nearly two years, but look at what I do now," said Mrs Barson.
"This course put me in a very positive frame of mind, and I wouldn't be
doing what I do now without it."
- The Mind as Medicine NBC News 14 WFIE, IN - Jan 4, 2007
Menzies led a 10-week guided imagery intervention
for a small group of patients with fibromyalgia, a condition involving
chronic pain and fatigue. In the study, published in January 2006 in
the Journal of Alternative and Complementary Medicine, one group of
patients received usual care and used a set of guided-imagery
audiotapes. The other group received only usual care. Compared with the
controls, the patients who participated in guided imagery were better
able to perform activities of daily living and had a greater sense of
being able to manage their pain and other symptoms, the study showed.
What's more, Menzies found, "The pain did not change, but the ability
to cope with the pain was improved." Bresler considers it shocking that
medical colleagues would reach their hands into someone's body and
remove organs before allowing a patient to go through an imaging
- Fish oil depression trials unclear Reuters, Sydney Morning Herald, Australia - Jan 3, 2007
Though some research has suggested that fish oil
may fight depression, the evidence from clinical trials is too mixed to
draw any conclusions, according to a new research review.
- Patients With Post-traumatic Stress Disorder Experience Less Pain Sensitivity --
May Be Related To Altered Processing Science Daily - Jan 3, 2007
- Dr. Jacob Teitelbaum, author of "Pain Free 1-2-3," interviewed about natural pain management, without dangerous drugs NewsTarget.com - Jan 3, 2007
Mike: Pain is an
issue that affects millions of Americans, and unfortunately they tend
to rely on over-the-counter drugs that can cause gastrointestinal
distress and prescription drugs that have certain inherent risks. You
say there's an alternative, a natural alternative, for pain control and
relief -- and long-term solutions for this.
Absolutely. There's not just a single magic bullet, although any one of
the natural things comes close. If you go ahead and just use a natural
pain formula with willow bark, boswellia and cherry, it will still be
much more effective than Vioxx, Motrin and those families of
medications, without killing over 16,000 Americans, which is the number
that die unnecessarily because the media promotes those drugs each
year. Remember a couple of things here: One, pain is your body's way of
saying something desperately needs attention. It's like the "oil" light
on your dashboard. Unfortunately, what most doctors do is, if your oil
light goes off, they'll put a Band-Aid over the oil light and say,
"It's not bothering you anymore," and then your car dies. In human
beings, all doctors have been taught is to give Motrin or Celebrex
medications and Tylenol -- and narcotics if you have cancer. That's all
your doctor knows about pain management, and it's pathetic because
there are hundreds of effective treatments. ...
- Don't yawn: Chronic fatigue is a big problem Orlando Sentinel, FL - Jan 2, 2007
- Musician stages comeback: Sjogren's syndrome sidelined singer/guitarist for 19 years
Berkshire Eagle, MA - Jan 2, 2007
Finally, doctors who specialized in chronic fatigue syndrome and
rheumatoid arthritis sent him to Dr. Martin Samuels, a neurologist and
internist at Brigham and Women's Hospital in Boston. Samuels took one
look at Armata's symptoms — twitching muscles, dry glands —
determined that he was suffering from Sjogren's and immediately
prescribed steroid medications for treatment.
- In Student’s Success, Mother Sees Many Helping Hands NY Times - Jan 1, 2007
Mrs. Smith, who had worked for 13 years as a counselor
for the New York State Division for Youth, has also faced health
problems. In 1993, she received a diagnosis of fibromyalgia, a chronic
disorder characterized by widespread musculoskeletal pain, and
arthritis was found in her back. Also afflicted with a Baker’s
cyst, a knee ailment, in her right leg, Mrs. Smith is unable to work
and receives $1,173 a month in Social Security disability payments.
“I kind of blocked the diagnosis out because it meant that I
wasn’t able to work anymore,” she said. “And it was
hard for me. Emotionally, it was hard for me.”
Selected Press Releases
- Member of NFA Leaders Against Pain Coalition Featured in Asian American Media 12-27-07
- Healthcare Gaps: New Council to Target Barriers in Care for Patients with Fibromyalgia
- CFIDS Association of America Names New Scientific Director To Advance Chronic Fatigue Syndrome Research The CFIDS Association of America - November 7, 2007
- Frances Winfield Bremer, Wife of Ambassador L. Paul Bremer, III, to Become Spokeswoman for the National Fibromyalgia Association NFA - Oct 3, 2007
- Many More Americans Found To Be Living with Chronic Fatigue Syndrome
The CFIDS Association of America - June 8, 2007
4 million number is released...
Memoriam - Stephen E. Straus, MD - First Director of NIH’s
National Center for Complementary & Alternative Medicine and
Internationally Recognized Physician- Scientist National Institutes of Health -
May 16, 2007 - Dr. Straus had extensive basic and clinical research
experience related to many conditions including chronic fatigue
- NFA Epidemiological Study Results Released National FM Assoc, CA - Apr 20, 2007
The largest online survey gives “snapshot’ of over 3,000 fibromyalgia patients
- National Pain Organizations Unite for PAINWeek(TM) 2007
Aventine HealthSciences; Medical Education Collaborative - Apr 3, 2007
- MCS America Seeks Recognition for Environmental Illness ClickPress, UK - Mar 12, 2007
- Natural Health Expert Joins The Environmental Illness Resource Web Site
Internationally known doctor of natural medicine and author Dr.
Gloria Gilbère is now providing expert advice and writing a column for
patient run health web site.
PR Web (press release), WA
Commenting on Dr. Gilbère's involvement
with The Environmental Illness Resource, owner Matthew Hogg, clearly
excited, said "To have Gloria on board is just fantastic, I never
imagined that such a well known and respected healer would be part of
my web site, which started as a small personal site about my own
ill-health". ...[what] makes him particularly happy to have Dr.
Gilbere's input is the fact that she herself has first-hand experience
of environmental illnesses, or 'Invisible Illnesses', as she refers to
them. Dr. Gilbère restored her own health after suffering from
leaky gut syndrome, fibromyalgia, and multiple chemical sensitivity
(MCS). "To have someone offering their services, who is not only very
highly qualified in natural medicine, but who has also recovered from
environmental illnesses herself is great. ..." Matthew said. Dr.
Gilbère's column is called First-Hand Solutions to Second-Hand
Reactions, and her first article 'The Lymphatic System - Ignored,
Misunderstood and Neglected' is online right now. http://www.ei-resource.org/gg-column.asp
- Fralex Therapeutics Inc. completes $10,125,000 initial public offering
Canada NewsWire (press release), Canada - Feb 13, 2007
Fralex is a medical technology company developing and
commercializing Complex Neural Pulse or CNP, a novel neuromodulation
therapy for chronic pain, which utilizes specifically designed,
low-frequency electromagnetic pulses. Fralex has received approval from
the FDA and HPB to proceed with its pivotal clinical trial (the "RELIEF
trial") to evaluate the safety and effectiveness of CNP in the
treatment of chronic pain associated with fibromyalgia.
- Dr. Oz Headlines World's 1st Pain Symposium for Patients, Doctors
PR Newswire (press release), NY - Feb 12, 2007
Pain Expo '07 Oct. 5-6 at Orange County Convention Center, Orlando. Sessions will address headaches, back pain,
arthritis, addiction, fibromyalgia, facial pain, fitness, humor,
nutrition, self-hypnosis and more. Extra features include the
"Relaxation Station," an enclave for meditation, message and comfort
products. CME credits are available for medical professionals. http://www.happywithpain.com/
- Last week, she gave readers a chance at being reborn; This week, Kimberley Linstruth- Beckom is Talking to Readers
about Fibromyalgia and Sex Being a Pain in the Neck
Emediawire (press release), WA - Feb 9, 2007
- New Book Links Nerve Disease, Alzheimer's and Fibromyalgia
Chronic Nerve Pain May Be Successfully Treated by RAISING
Blood Sugar Levels
e-releases (press release), Reston, VA - Jan. 31, 2007
Millions of people suffer from
the chronic pain and complications of autonomic neuropathy,
a degenerative nerve disease. A new book suggests that this
suffering can be effectively treated by raising blood sugar
levels at key points. In doing so, Type 4 Diabetes raises
the prospect that neuropathy, fibromyalgia and Alzheimer's
may be all linked to diabetes as symptoms of the same
problem with glucose metabolism.
"Type 4 Diabetes: Elevated Insulin. Lower Blood Sugar. 24/7
Pain." is based on a seven-year journey by the author, Bob
Ranson, from cardiac arrest in 1999 to a life of constant
pain and complications, a pacemaker and dozens of only
partially effective medications. Now, Ranson is living pain-
and drug-free through the discovery of the link between the
nerve disorder and glucose levels.
- Survey on vulvodynia and its effect on relationships announced January 17, 2007
Woman’s Support Network Announces First Survey Focusing on How
“The Pain Women Won’t Talk About” Affects
- New [anti-viral] therapy for chronic fatigue syndrome to be tested at Stanford Jan 10, 2007
- Hypnion Announces Positive And Robust Phase II Results For Novel Sleep Drug - HY10275 Jan 7, 2007
of Miami ME/CFS Researcher Nancy Klimas, MD, Explains Complexity of
Chronic Fatigue Syndrome in Terms That Anybody Can Understand [
Dr. Klimas's succinct explanation of the
basic mechanisms of ME/CFS - and the story of how she decided to focus
on CFS research more than 20 years ago.
Recommendations for Persons with CFS (or FMS) Who Are Anticipating Surgery [1-8-08]
evidence-based information provided by Dr. Lapp - director of the
Hunter-Hopkins Center for ME/CFS/FM care - is meant to reduce the risk
of surgical procedures for ME/CFS/FM patients. As such should be shared
with the patient’s professional healthcare team.
Meet Rik Carlson - Author, Advocate, Founder, The Vermont CFIDS Association [12-19-07]
interview with Rik Carlson – part of a series highlighting the
accomplishments of ME/CFS Fair Name Implementation Committee (FNIC)
members. Reproduced with permission from Cort Johnson's Phoenix Rising
Q&A Session with R. Paul St. Amand, MD – December 7, 2007 [ Dec-11-2007 ]
Live Chat Event with Dr. R. Paul St. Amand, MD. To many FM patients and
the doctors who treat them, Dr. St. Amand needs no introduction. As
director of the Fibromyalgia Treatment Center (FTC) in Marina Del Rey,
California, Dr. St. Amand has seen thousands of patients and is known
worldwide as developer of the Guaifenesin Protocol.
Lack of Stomach Acid - Hypochlorhydria - Can Cause Lots of Problems [ Dec-10-2007 ]
Sarah Myhill, MD. Hypochlorhydria
arises when the stomach is unable to produce hydrochloric acid (stomach
acid). It is a greatly overlooked cause of problems - to the extent
that in the UK at least nobody is testing or looking for it. It is
especially common in those with ME/CFS/FM and is known to be associated
with childhood asthma.
How I Survived Chronic Illness – One Woman’s Story of Resilience [ Dec-10-2007 ]
Gurnick is a Psychotherapist and Certified Lifestyle Counselor
practicing in Boulder, Colorado – with a specialty in ME/CFS, FM,
and MCS patient education. Pat’s stronger health status today,
after years of debilitation with these illnesses, is built on her
relentless pursuit of insights from the country’s leading
Physical Medicine & Rehabilitation (Physiatry)
– A specialty particularly suited to diagnose and treat
Fibromyalgia [ Nov-18-2007 ]
Excerpted from Dr. Mark Pellegrino’s, Fibromyalgia: Up Close and Personal. Numerous medical professionals and
specialists treat Fibromyalgia. But one specialty in particular -
Physical Medicine and Rehabilitation - is especially skilled at
diagnosing and treating this chronic condition.
Richards – Making a difference in the lives of those living with FM & CFS [9-4-07]
of Karen Lee Richards – part of a series highlighting the
accomplishments of ME/CFS New Name Implementation Committee (NNIC)
Leonard Jason, PhD - ME/CFS Researcher and Bridge Builder [ Sep-03-2007 ]
profile of Leonard Jason, PhD - part of a series highlighting the
accomplishments of ME/CFS New Name Implementation Committee (NNIC)
Chronic Fatigue Syndrome and the Exercise Conundrum [ Aug-28-2007 ]
Lucinda Bateman, MD, director of The Fatigue Consultation Clinic in Salt
Lake City, explains how primary care physicians can help ME/CFS
patients improve their physical conditioning while avoiding
post-exertion "payback" - considering the individual's particular level
or type of illness.
Medical Revisionists Threaten Effective Lyme Treatment - a leading Lyme doctor's statement [ Aug-27-2007 ]
Stricker, a noted Lyme expert who contributed to the ILADS
Evidence-Based Guidelines for Lyme Management, warns the healthcare
community of "Lyme denialists" who reject what ILADS terms a
“Problems with the New CDC CFS
Prevalence Estimates” – ME/CFS researcher Leonard Jason,
PhD, describes his concerns. [ Aug-22-2007 ]
Is the higher incidence
estimate owing to a broader case definition including cases with
primary psychiatric conditions? If so, this "will have detrimental
consequences for the interpretation of both epidemiologic and treatment
efficacy findings," Dr. Jason asserts.
UK Issues Guideline for
Diagnosis & Management of Chronic Fatigue Syndrome/Myalgic
Encephalomyelitis (or Encephalopathy) [ Aug-21-2007 ]
doctors are ordered to take ME patients seriously," stated a headline
in the London Daily Mail on August 22, 2007. That was the day the
UK’s National Health Service publicly launched a clinical
guideline for CFS/ME.
The Fibromyalgia Spectrum - Part of the Big Picture in Understanding FM [ Aug-04-2007 ]
I’m convinced Fibromyalgia is indeed a broader’ condition
with various subsets, writes FM specialist Dr. Mark J. Pellegrino, MD.
He outlines a Fibromyalgia Spectrum model, which he finds helpful in
organizing and educating patients. Excerpted with permission from Dr.
Pellegrino’s reader-friendly book, Fibromyalgia: Up Close and
Richard Podell, MD, explains
shingles – a herpes virus activation that may affect a
significant proportion of Fibromyalgia and Chronic Fatigue Syndrome
patients [ Aug-01-2007 ]
If you ever had chicken pox - and
especially if you're a Fibromyalgia or Chronic Fatigue Syndrome patient
with immune vulnerabilities - you're at risk for the pain of a shingles
attack. Dr. Podell explains shingles, its signs and complications, and
a wide range of possible treatments, depending on severity and duration.
Lyme Disease & CFS - A Patient-Researcher's Perspective [ Aug-01-2007 ]
UK-based patient-researcher who was first diagnosed with ME/CFS, but
subsequently with borreliosis (Lyme disease), offers information about
Lyme and a personal perspective on the difficulty of accurate testing
for its presence. This is a particular issue for individuals diagnosed
with ME-CFS, but also for those with diagnoses of Fibromyalgia, IBS,
and a host of other illnesses.
Hypoglycemia (low blood sugar) -
a problem for CFS & FM patients,
but treatable [ 7-24-07 ]
UK-based CFS/FM specialist Sarah
Myhill, MD, says chronic low blood sugar has been a common cause of
fatigue, disturbed sleep, and stress among her patients. She outlines a
cause, test, and remedy.
Why ME/CFS? A perfect name isn't necessary, but a respectable name is essential [ 7-10-07 ]
early February 2007 when the CFS Name Change Advisory Board announced
its decision to call for changing CFS to ME/CFS, there has been a
flurry of comments, both pro and con. Acknowledging that there is no
perfect name, in my opinion they made the best possible choice.
Chat with Martin L. Pall, PhD – July 6, 2007: Professor of
Biochemistry Explains Mechanisms of Chronic Fatigue Syndrome and
Fibromyalgia & Suggested Protocol [ 7-9-07 ]
Pall, PhD, answers scores of probing questions from patients and
healthcare professionals about the "new disease paradigm" he has
defined - as detailed in his acclaimed new book Explaining "Unexplained
Nitric Oxide Cycle Theory: Will It Explain CFS, FM,
and Other ‘Unexplained’ Illnesses? - Q&A with Martin L.
Pall, PhD [ Jun-22-2007 ]
Dr. Pall explains his nitric
oxide/peroxynitrite (NO/ONOO-)cycle theory, which he believes may be
the cause of "a stunning array" of previously unexplained symptoms and
illnesses - and if so is truly revolutionary.
FDA Approves First Drug for Treating Fibromyalgia [ Jun-21-2007 ]
FDA announced on Thursday, June 21, that it has approved Pfizer’s
pain drug LyricaTM (pregabalin) as the first prescription treatment for
Fibromyalgia. The drug "reduces pain and improves daily functions" in
some FM patients, but also has important possible side effects.
A Primer on Physical Therapy for Fibromyalgia Patients [ Jun-21-2007 ]
FM patients and their healthcare providers should understand about
Fibromyalgic muscle pain and therapy, from the book FM:
The Complete Guide from Medical Experts and Patients, by Sharon
Tips on How to Start a Fibromyalgia Support Group
in Your Area - From the Tillamook County, Oregon, FM Support Group [
"Our first meeting had only me and one other person,"
says Marie Ritzel, founder of the Tillamook Fibromyalgia Support Group.
Now they're growing constantly.
Flat on Your Back and Moving On [ Jun-08-2007 ]
Pullinger was a promising young musician when Chronic Fatigue Syndrome
struck. It turned his whole world upside down…
Fibromyalgia Myth Busting [ May-30-2007 ]
new research that has begun to unravel the mystery of Fibromyalgia,
several myths about FM are still being repeated today.
Natural treatments for depression, anxiety, and stress - Dr. Podell's Protocol [ May-27-2007 ]
"Functional Medicine" approach Dr. Podell employs combines alternative
with traditional modes of treatment to maximize support for the body's
natural healing systems.
Live Chat with Author Dorothy Wall - April 19, 2007 [ May-02-2007 ]
Dorothy Wall, is author of the
acclaimed book, Encounters with the Invisible: Unseen Illness,
Controversy, and Chronic Fatigue Syndrome – the only book on CFS
to blend a vivid personal story with an investigation of the history,
science and politics of the illness.
Prescribed Medications for FM: By Mark Pellegrino, M.D. - 2007 Update [ Apr-27-2007 ]
medicines are an important part of fibromyalgia treatment - for pain
relief and improved sleep, energy, and mood. Presently there are no FDA
approved medicines for FM treatment, but many studies have shown how
numerous prescribed medicines can benefit those with FM. Physicians are
able to prescribe these medicines off-label for FM because of the
Rich Carson Talks about Treatment, Research, and Righting a Wrong: Live Chat [4-21-2007]
founder Rich Carson's wide-ranging live patient Q&A session ended
with a preview of emerging plans for the next, patient-led, phase of
the Campaign for a Fair Name.
Dr. Clauw's Grand Rounds Update on Fibromyalgia Science & Theory [ Apr-16-2007 ]
Daniel J. Clauw, MD, has written an update for physicians on new
research and concepts regarding Fibromyalgia’s nature and
treatment - in language that patients as well as their healthcare
providers can understand.
Why Doesn't My Doctor Know This? [ Apr-09-2007 ]
have found that many physicians aren't keeping up with new research
that might point to updates in their evidence-based patient diagnosis
and treatment practices. There are several reasons for this.
Dale Guyer, MD, Discusses the Integrative and Molecular Treatment of CFS and FM [4-5-07]
Holistic treatment of Chronic Fatigue Syndrome and Fibromyalgia
Kent Holtorf, MD, on Treating CFS & Fibromyalgia - An Update [ Mar-27-2007 ]
Kent Holtorf, MD, is Medical Director of the Holtorf Medical Group
Center for Hormone Imbalance, Hypothyroidism and Fatigue in Torrance,
California. He specializes in treatment of CFS and FM patients.
for Winning a Fibromyalgia or CFS Disability Case...and...What actually
happens at a Social Security Disability Hearing? [ Feb-21-2007 ]
Attorney Jonathan Ginsberg's Tips for Winning a Fibromyalgia [or CFS] Disability Case
Pacing for ME/CFS: The Facts [ Jan-17-2007 ]
by Ellen M. Goudsmit, PhD, Chartered Health Psychologist. What’s
pacing? It is an evidence-based strategy for physical activity
“that will limit the number and severity of relapses and avoid at
least some of the complications of inactivity,” says Dutch expert
Ellen Goudsmit. “Thousands of patients have found it useful for
many years. And above all, it is unlikely to cause harm!”
FM, CFS and Multiple Chemical Sensitivities - What do they have in common? [ 1-10-2007 ]
CFS and MCS: They are common poorly understood chronic multi-system
illnesses that are newly recognized by the medical community and mainly
affect women. Men and children can also be affected. They occur in 1.5
percent to 3.0 percent of people, according to the 2003 Canadian
Community Health Survey. They cost the healthcare system millions of
dollars in healthcare costs and the economy millions of dollars in lost
wages. As a result of being chronic illnesses, this added burden often
leads to family break-ups.
First FDA Approval for FM Treatment Drug Expected by 2008 [ Jan-10-2007 ]
companies are “racing” to gain regulatory approval for
their drugs to serve the virtually untapped Fibromyalgia market,
according to an industry update from Reuters news dated January 7.
A Disease in Search of a Name: The History of CFS and the Efforts to Change Its Name
[ Jan-03-2007 ]
of the history of Chronic Fatigue Syndrome revolves around the efforts
to define it and the debates over what to call it. Other diseases that
started out being called by one name were later renamed, either for the
sake of medical accuracy or for political correctness, but one has to
wonder whether any other illness has ever had so many names or so much
trouble finding its own identity. By Karen Lee Richards.
CFS Psychological or Physical? [ Jan-03-2007 ]
CFS psychological or physical? This seemed such a stupid question that
I never bothered to consider it. I estimate I must have now seen more
than 4,000 patients with Chronic Fatigue Syndrome, and it is clear CFS
is primarily a physical disorder. By Sarah Myhill, MD.
Tea Polyphenols - Antioxidants or Prebiotics? [ Jan-03-2007 ]
polyphenols in tea may preferentially suppress the growth of pathogenic
bacteria in the gut, but not the growth of “friendly”
bacteria, says a new study from Singapore.
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