In the Media - 2001
(Links updated 2/07)
of Film "I Remember Me"
By Roger Ebert
Chicago Sun-Times, December 7, 2001
I now believe in Chronic Fatigue Syndrome. I was one
of many who somehow absorbed the notion that it was an imaginary
illness. I am ashamed of myself.
Links Gulf War to Lou Gehrig's Disease
By Adam Marcus
HealthScoutNews, December 11, 2001
- Seabiscuit Author Wins Big Sport of Turfdom Award
BloodHorse.com, December 12, 2001
Laura Hillenbrand, who
authored the widely acclaimed best-seller "Seabiscuit: An American
Legend," has been named the 2001 winner of the Big Sport of Turfdom
award, it was announced Wednesday by Bob Curran Jr., the president of
the Turf Publicists of America. ...
Hillenbrand suffers from Chronic Fatigue Syndrome and rarely leaves her
Washington, D.C. residence. She spent four years researching and
writing the book from her home, but welcomed more than a dozen news
organizations into her house and conducted more than 100 media
interviews by phone. A Washington, D.C. native who attended Kenyon
College, she won an Eclipse Award for outstanding magazine writing in
1998 when her free-lance article on Seabiscuit appeared in American
Worries Over Vaccine: Some Servicemen, Scientists Question Safety,
Effectiveness of Anti-Anthrax Shots
By Shankar Vedantam
Washington Post, December 20, 2001
Reprinted at UCLA.edu
Fatigue Syndrome More Than Being Tired
By Eleni Berger
CNN, December 25, 2001
Disease That Nearly Destroyed Me
By Paula Chin
Journal, November 2001
Feature on author Laura Hillenbrand and her struggle
Willing, But Her Body Isn't Always Able To Compete
By Vicki Michaelis
USA Today, November 1, 2001
On good days, Peterson can feel stronger and faster than she ever has.
On bad days, she can feel like not getting out of bed. Chronic fatigue
syndrome, a condition with symptoms that include severe headaches,
muscle pain and loss of concentration, has made her Olympic aspirations
a ''crapshoot.'' But her Olympic aspirations have made CFS more
Mystery of Chronic Fatigue Syndrome
By Stephen Holden
The New York Times, November 9, 2001
By far the clearest picture of chronic fatigue
syndrome comes from the first- hand testimony of fellow sufferers who
mince no words in describing their prolonged, excruciating misery. ...
An intrepid sleuth, Ms. Snyder seems to have left no
stone unturned in her search for answers. What is so frustrating about
"I Remember Me," which opens today at the Screening Room ... is that
after all her work, so few are forthcoming.
- Interview With Kim
Snyder, Director of "I Remember Me"
York & Company with Leonard Lopate
WNYC, New York, November 16, 2001
To Listen: Audio
For more information, see the Film's website.
- Another Win For Seabiscuit; Book Receives Top Award
Bloodhorse.com, November 26, 2001
"Seabiscuit", Laura Hillenbrand's
best-selling book about the rags-to-riches story of a 1930s
Thoroughbred champion and the colorful people associated with him, has
been honored with the prestigious "William Hill Sports Book of the Year
Award." . . . On
all of the major best-selling book lists throughout the year,
Seabiscuit has been responsible for garnering considerable publicity
for horse racing and its author. Hillenbrand's meticulous research and
writing skills have also drawn attention to ways in which she copes
with chronic fatigue syndrome.
Akers Gives In to Retirement
By Jere Longman
The New York Times, October 12, 2001
Michelle Akers . . . would become widely considered
as the greatest player in women's soccer, leading the United States to
victories in the 1991 and 1999 women's World Cups and the 1996 Atlanta
Olympics. FIFA, the sport's world governing body, named Akers and
China's Sun Wen as the top female players of the 20th century. Yet,
Akers struggled daily with chronic fatigue syndrome . . . .
the Bucket to the Booker
By Gillian Bowditch
The Sunday Times (UK), October 14, 2001
Hotel World, the second novel by Cambridge-based
author Ali Smith, is one of three books nominate for this
year's prestegious Booker Prize. Smith became ill with
chronic fatigue syndrome a decade ago, and discusses her illness in the
article: "It is a phenomenally life changing, life stopping thing . . .
You're faced with a different world and, if you are going to live, you
have to renegotiate this world. The illness was the catalyst for my
next stage. It allowed me to write."
a Mystery: Filmmaker Fights Back Against Fatigue Malady
By Cate Terwilliger
Denver Post, October 29, 2001
There was a moment in the autumn of
1995 when Kim Snyder knew her body would never be the same. What she
didn't know was just how sick she would become, and how long the
devastating effects of chronic fatigue syndrome would endure. She
learned those things in the years that followed - years characterized
by periods of near-total disability and a dogged determination to
explore a medical mystery that has ruined the health of thousands.
Fatigue and Immune Dysfunction Syndrome
By Lisa Chinn
The Fredericksburg Free Lance-Star, September 2, 2001
Sixteen-year-old Cameron Williams has battled
chronic fatigue and immune dysfunction syndrome for more than two
years. The mysterious disease, which causes exhaustion that can't be
relieved by rest, has forced him to leave school.
Kenney Honored With Redbook's Mothers & Shakers Award
Redbook, PR Newswire, September 10, 2001
K. Kimberly Kenney, President and CEO of The CFIDS Association of
America, has been named one of the winners of Redbook Magazine's fourth
annual Mothers and Shakers awards. ... Hillary Rodham Clinton,
Sarah Ferguson, duchess of York and Christy Turlington will be among
the celebrity honorees. The October issue of Redbook
features an article profiling each of the award winners.
Press Release at CFIDS.org: Local Health Care CEO Honoerd with REDBOOK Magazine AWARD
(Link removed 2/07)
Treatments For Chronic Fatigue Promising, But Research Flawed, Review
Associated Press, September 19, 2001
Syndrome: Vague Symptoms, Real Disease
by Roderick Michael Hyde, PA-C, MPAS
The Federal Practitioner, September 2001
This cover story is a general survey of FMS that
makes it clear that the etiology remains unknown and that the origins
are not psychiatric. The Federal Practioner is a publication for health
care providers of the VA, DoD, and Public Health Service.
Lyme Disease Debate, Some Patients Feel Lost
By Jane Gross
The New York Times, July 7, 2001
Patients who believe they are suffering from
chronic Lyme disease suddenly find themselves caught in the middle of a
Fatigue Forced Author of 'Seabiscuit' to Pace Herself
By Monique Angle
USA TODAY, July 23, 2001
Related Gannnett TV Broadcast: video
Malaise: Unlocking the Clues
By Susan J. Landers
American Medical News, July 23, 2001
With no definitive diagnosis or treatment,
physicians and their patients look to researchers for some answers to
chronic fatigue syndrome.
Interview by Anne A. Simpkinson
Beliefnet. July 2001
Laura Hillenbrand, the author of the best-selling
book 'Seabiscuit,' discusses her struggle with chronic fatigue syndrome.
on the Backstretch: Laura Hillenbrand and Seabiscuit Come Home Winners
by Amy Blumenthal
Kenyon College Alumni Bulletin, Volume 22, Number 4, Spring 2001
Horse With Heart, A Suffering Writer: Author Escapes Illness With
By Jamie Allen
CNN, May 4, 2001
the Eve of the Kentucky Derby, Terence Smith Talks With Laura
Hillenbrand, Author of Sea Biscuit: An American Legend, a Book About
the Famous Racehorse
The NewsHour With Jim Lehrer, May 4, 2001
View transcript or video.
By Phoebe Hoban
US Weekly, Issue#325-326
A feature article on Laura Hillenbrand and how
Seabiscuit's best-selling author lives with chronic fatigue syndrome.
Langer Mellows Out to Fight Fibromyalgia
By John Morgan, Spotlight Health
USA Today, May 9, 2001
Disease Could be Cause of Continual Tiredness
By Susan Coburn
The Detroit News, May 23, 2001
IS SHORT: Autobiography as Haiku
By Tonette Hartmann
Washington Post, Sunday, May 27, 2001
Nightly News with Tom Brokaw
April 5, 2001
Story on author Laura Hillenbrand's battle with CFS. Hillenbrand is the
author of the current New York Times # 1 best seller, Seabiscuit: An
Hillenbrand and Seabiscuit
NPR Weekend Edition
April 7, 2001
Scott Simon talked with author Laura Hillenbrand in
an inspiring 20-minute story. Laura discusses her book, Seabiscuit: An
American Legend, as well as her struggle with CFS.
To Listen: Audio
Hillenbrand and Seabiscuit
The Diane Rehm
WAMU, Washington DC
April 17, 2001
Laura continued her public discussion of these
topics in a wonderful 50-minute conversation on WAMU's national
broadcast of The Diane Rehm Show.
To Listen: Real Player
Fatigue Syndrome & Orthostatic Intolerance
Fox 5 News, Washington, DC
Profile of Toni Marshall
for CFSupport Subscribers message #335:
Dear fellow CFSupporters,
CFS and Orthostatic Intolerance were represented very compassionately
on the Fox 5 News this week. Below you will find a summary of the
interview if you missed it, and, following the summary is an article on
Dr. Bell's excellent work on low blood volume and its relationship to
CFS and OI.
My tv debut took place around 10:40 PM, Thursday, March 1, 2001, and it
was good. They edited, masterfully, a very sympathetic picture of CFS,
with backup by Dr. Tim Gerrity, who's head of the Chronic Pain and
Fatigue Research Center at Georgetown U. The OI (Orthostatic
Intolerance, the body's inability to tolerate an upright position)
connection was mentioned in follow-up by the reporter, so I was more
the story than the news that OI and CFS are often related.
They show me tearing up, unable to continue talking, in the commercial
for their 10 PM News, which I found disconcerting, but, as the story is
so compassionate, I'm not really complaining. Besides, even Julia
Roberts and Meg Ryan don't look good when they're crying.
The news really is that OI gives us more options for taking care of
ourselves, but at least they mentioned how much help I got from support
groups, which is where I learned what OI means in terms of self-care.
I'm grateful my intuition the day of the interview was trusty, that the
take on CFS and me would be compassionate. They used my "bizarre
symptoms you'd never in a million years connect to Chronic
Fatigue....." statement, which would have been more helpful if they'd
allowed mention of the OI, or, neurological symptoms, instead of
listing only the CDC list of CFS defining symptoms.
I hoped a more informed message would make it, but, as so many people
still don't think CFS is really physical, or, for that matter, real,
Fox 5's approach was good, too. The details are what a Support group is
for. The entire segment was two minutes, and some sponsor, ie:
commercial entity selling something, (I think it was Dodge and/or
Xerox) had to pay for those 2 minutes.
the Odds: Laura Hillenbrand Surmounted Illness To Cross the Finish Line
By Jennifer Frey
The Washington Post, Friday, March 9, 2001