The Northern VA (NOVA)
CFS/ME, FMS, & OI
Support Group

Peter C Rowe, MD
Johns Hopkins
CFS & Orthostatic Intolerance

About Peter C. Rowe, MD

Chronic fatigue syndrome
Elhers-Danlos Syndrome
Orthostatic intolerance syndromes
Gulf War illnesses
Pelvic congestion syndrome

How we know Dr. Rowe

Elly and several people our suppport group met Dr. Rowe while participating in the research in 1994 looking at adults with CFS and Orthostatic Intolerance for the first time at Hopkins. 

Many of us and others have staying in contact with Dr. Rowe and followed his reearch and lectures and publications. 

We've shown a wonderful video of a presentation to a CFS group in Richmond at one of our NOVA meetings. That video has helped validate and instruct so many patients with Chronic Fatiuge Syndrome, FM, and similar conditions.

Some of our stories from the time in the studies, from the video can be read here:


- CFSupport Y! email "Dr. Rowe is one of my medical heros" by Toni
- CFSupport Y! email "More [Dr. Rowe] stories" by Elly

• Johns Hopkins Children's Center People Page for Peter Rowe, M.D.
• kNOw MORE CFS Seminar Fall 2005 by CAA - Speakers Klimas and Rowe
  
  On our sites:
• CFSupport Y! email "Dr. Rowe is one of my medical heros" by Toni 
• CFSupport Y! email "More [Dr. Rowe] stories" by Elly
• CFSupport Y! files: Slides from 2009 presentation to our group
• Practitioners List: Pediatrics, Dysautonomia Doctors,  Practitioners Beyond DC
• Speakers-Prior Page
  

• General Information Brochure on Orthostatic Intolerance and Its Treament
  Johns Hopkins Chronic Fatigue Clinic, Update June 2010
  
  
• 2010 Webinar: Managing Orthostatic Intolerance (You Tube)
• Slides (PDF)
• Clinical written material (June 2010)
• Press release: Flexible Joints Associated With Chronic Fatigue Syndrome, Researchers Find (2002)
• Reducing Symptoms During Upright Posture by Peter Rowe
  Youth Allied By CFIDS, Spring 1997
  
• Neurally Mediated Hypotension and CFS
  An Interview with Johns Hopkins University's Dr. Peter Rowe
  By Rebecca C. Moore, Youth Allied By CFIDS, Fall 1995
  
• Patient's Perspective:
  Pursuing Treatment for Neurally Mediated Hypotension. By Elly Brosius
  The CFIDS Chronicle, Spring 1995; 2:6-7
• Johns Hopkins Research May Hold Promise for PWCs.  By Roger Burns
  The CFIDS Chronicle, Spring 1995;2:4-8
  
• Press release: CFS is Potentially Treatable, Say Hopkins Researchers (1995)
  (Elly was in this study)

• Successful use of a primary care practice-specialty collaboration in the care of an adolescent with chronic fatigue syndrome.
  Kuo DZ, Cheng TL, Rowe PC. Pediatrics. 2007 Dec;120(6):e1536-9
• Orthostatic intolerance in chronic fatigue syndrome.
  Rowe PC, Lucas KE. Am J Med. 2007 Mar;120(3):e13. No abstract available.
• Familial aggregation of fainting in a case-control study of neurally mediated hypotension patients who present with unexplained chronic fatigue.
  Lucas KE, Armenian HK, Petersen GM, Rowe PC
  Europace. 2006 Oct;8(10):846-851. Epub 2006 Aug 18. 
• Embolotherapy for Pelvic Congestion Syndrome: Long-term Results.
  Kim, Malhotra, Rowe, Lee,  Venbrux.
  J Vasc Interv Radiol. 2006 Feb;17(2 Pt 1):289-97. 
• Characterizing Gulf War Illnesses: neurally mediated hypotension and postural tachycardia syndrome.
  Katherine E. Lucas, Haroutune K. Armenian, Karen Debusk, Hugh G. Calkins and Peter C. Rowe
  The American Journal of Medicine, Volume 118, Issue 12 , December 2005, Pages 1421-1427
• Gastrointestinal symptoms associated with orthostatic intolerance.
  Sullivan SD, Hanauer J, Rowe PC, Barron DF, Darbari A, Oliva-Hemker M.
  J Pediatr Gastroenterol Nutr. 2005 Apr;40(4):425-8.
  
• Prospective association between hypotension and idiopathic chronic fatigue.
  Lucas KE, Rowe PC, Coresh J, Klag MJ, Meoni LA, Ford DE. Same issue, commenting about this paper 
• Low blood pressure and low energy: (how) are they related?)
  J Hypertens. 2004 Apr;22(4):691-5.
• Cerebral and systemic hemodynamics changes during upright tilt in chronic fatigue syndrome.
  J Neuroimaging. 2003 Jan;13(1):57-67.
• Joint hypermobility is more common in children with chronic fatigue syndrome than in healthy controls. J Pediatr. 2002 Sep;141(3):421-5. 
• Orthostatic intolerance and chronic fatigue syndrome: new light on an old problem.
  J Pediatr. 2002 Apr;140(4):387- Rowe, PC
• Fludrocortisone acetate to treat neurally mediated hypotension in chronic fatigue syndrome: a randomized controlled trial.  
  Rowe PC, Calkins H, DeBusk K, McKenzie R, Anand R, Sharma G, Cuccherini BA, Soto N, Hohman P, Snader S, Lucas KE, Wolff M, Straus SE.
  JAMA. 2001 Jan 3;285(1):52-9. 
• Ehlers-Danlos syndrome.
  J Pediatr. 1999 Oct;135(4):513.
• Orthostatic intolerance and chronic fatigue syndrome associated with Ehlers-Danlos syndrome.
  J Pediatr. 1999 Oct;135(4):494-9. 
• Relationship Between Chronic Fatigue Syndrome and Neurally Mediated Hypotension.
  Cardiol Rev. 1998 May;6(3):125-134.  Calkins H, Rowe PC.
  
• Neurally mediated hypotension and chronic fatigue syndrome. Rowe PC, Calkins H.
  Am J Med 1998 Sep 28;105(3A):15S-21S.
• Provocation of hypotension and pain during upright tilt table testing in adults with fibromyalgia.
  Clin Exp Rheumatol. 1997 May-Jun;15(3):239-46.
  Bou-Holaigah I, Calkins H, Flynn JA, Tunin C, Chang HC, Kan JS, Rowe PC.
• The relationship between neurally mediated hypotension and the chronic fatigue syndrome.
  JAMA 1995 September 27; 274(12): 961-967. Bou-Holaigah I, Rowe PC, Kan J, Calkins H
• Is neurally mediated hypotension an unrecognized cause of chronic fatigue?  Rowe PC, et al:
  Lancet. 1995 Mar 11;345(8950):623-4.