CFSupport

The Northern Virginia (NOVA)
CFS/ME, FMS, OI & EGG
Support Groups

 
Events - 2012

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2012 CFS/FMS/OI Events
in the
US National Capital Area
Northern Virginia (NOVA), Washington, DC, and Suburban MD
(plus national teleconferences and distant events of interest)

CFSupport Meetings - Year at a Glance

Full Schedule:

January

February

March

April

May
June July August
September October November December


Join CFSupport E-mail list for Email Notices & Reminders
More Event Options

View our simplified CFSupport  Yahoo! Calendar .


2012 NOVA CFS/ME, FMS & OI SG meetings are on
the 3rd Saturdays, 2-4 p.m.


Sully Governmental Center
James McDonnell Room
4900 Stonecroft Road
Chantilly VA 20151
 Directions
Free, close parking. No stairs. Same building as the Sully District Police Station
Way outside the Capital beltway.
Between Routes 50 and 66,
just west of Route 28 at the Westfields Blvd West exit.

Please refrain from wearing scented products.


CFS, CFIDS, M.E. ~ Chronic Fatigue Syndrome
FM, FMS ~ Fibromyalgia Syndrome
OI ~ Orthostatic Intolerance (Becoming more symptomatic when upright and still)
POTS ~ Postural Tachycardia Syndrome
NMH ~ Neurally Mediated Hypotension
MVPS/D ~ Mitral Valve Prolapse Syndrome / Dysautonomia
(Also welcome are those with IBS ~ Irritable Bowel Syndrome,
Chronic Lyme, Vulvodynia, similar syndromes and symptoms)



Overview: 2012 NOVA CFS/ME, FMS, OI SG Meeting Schedule

(3rd Saturday, 2-4 pm, Sully Gov'tal Center, Chantilly VA. Address & Directions.


Jan 21  -  Discussion
Feb 18 -  Discussion. One topic: What affects my heart and its symptoms?
Mar 17 - Discussion. One topic: Financial adjustments to being more ill.
Apr 21 - Speaker - Acupuncturist Bill Reddy: Supplements for Optimizing Health. Flyer
May 12 - Awareness Day.
May 19 - Discussion.
Jun 16 -  Discussion.
July 21 - Discussion.
Aug 18 - Discussion.
Sept 15 - Discussion & Pain Awareness month.
Oct 20 - Discussion.
Nov 17 - Thanksgiving & Gratitude, for Healing.
Dec 15 - Discussion.

Discussion meetings are sometimes rescheduled with speakers.
Printable PDF 2012 Meeting Schedule.


January 2012



Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, click link above or Email Us


Discussion Meeting

Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings,  Directions.


Topic: "Biofeedback and Lowering Stress and Pain Levels"
Speaker: Michael Sitar, PhD

Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
(240) 777-4999 (directions only).
For anyone with chronic pain, family members and/or professionals.
For details, Pain Connection Groups and Conference Calls,
call Pain Connection at (301) 231-0008.



TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
       on the practice and benefits of ∞ gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
       for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
       eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.




February 2012


Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, click link above or Email Us


Discussion Meeting

Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings,  Directions.


Topic: "Social Security Disability & Special Needs Planning Updates"
Speaker: Sheri Abrams, Attorney

Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
(240) 777-4999 (directions only).
For anyone with chronic pain, family members and/or professionals.
For details, Pain Connection Groups and Conference Calls,
call Pain Connection at (301) 231-0008.



TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
       on the practice and benefits of ∞ gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
       for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
       eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.




March 2012



Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, click link above or Email Us


Discussion Meeting

Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings,  Directions.


Topic: "Better Breathing for a Better Life"
Speaker: Elsie Ferguson, PhDDr. Ferguson in private practice in Bethesda, MD beginning in 1979 is a Medical Psychologist specializing in neurofeedback and biofeedback treatment and multimodal cognitive behavior therapy.

Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
(240) 777-4999 (directions only).
For anyone with chronic pain, family members and/or professionals.
For details, Pain Connection Groups and Conference Calls,
call Pain Connection at (301) 231-0008.



TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
       on the practice and benefits of ∞ gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
       for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
       eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.




April 2011


Our NOVA CFS, FMS & OI Support Group may host a table.
Usually held at Reston Town Center
11900 Market St, Reston VA 20190
Sponsored by the Sjorgren's Syndrome Foundation (800) 475-6473
In addition to support groups having tables, there will be booths by
practitioners and agencies and Interactive Exhibits.


Christ Lutheran Church
8011 Old Georgetown Road, Bethesda, MD 20814
For Bethesda group contact info, click link above or Email Us


Speaker Meeting
Bill Reddy, L.Ac., Dipl.Ac. of QiMed.com
Herbs and Supplements for General Health
Herbs and Supplements Specifically for CFS/FMS
Bill Reddy Speaker Event Flyer

Sully Governmental Center, James McDonnell Room
(same building as Sully District Police Station)
4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
No registration required. (703) 968-9818, (410) 647-7578.
See also: Meetings,  Directions.


Topic: "Scientific Advances in Myofascial Pain and Sensitization"
Speaker: Dr. Jay Shah, NIH

Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
(240) 777-4999 (directions only).
For anyone with chronic pain, family members and/or professionals.
For details, Pain Connection Groups and Conference Calls,
call Pain Connection at (301) 231-0008.



TELECONFERENCE - for those with CFS, FMS, and/or OI.
The EGG call is a mind-body-spirit telephone support group focusing
       on the practice and benefits of ∞ gratitude.
Join Yahoo group EGGdish for date and dial-in info reminders,
       for a place to practice writing gratitude for healing.
Call Elly at 703-968-9818 or write
       eggdish-owner@yahoogroups.com
No fee. Callers pay own applicable long distance rates.
For more info, see EGG.




May 2012

  • May 5, 2012, Sat, 9a - 4:30p: Fibromyalgia Coalition International's
                        12th Annual FM Conference & Pamper Day

    "Freedom From Fibromyalgia"
    KU Medical Center 3901 Rainbow Blvd Kansas City, Kansas
    To register, call 913-384-4673, or see the FCI website at
    http://www.fibrocoalition.org/

  • May 8, 2012, 2nd Tues, 12-2 PM EDT:   Tele-Call:
                             The Art of Healing ♥Dysautonomia with ∞Gratitude & Friends

    Teleconference!!****
    No registration required.
    Free, but any long distances telephone charges apply.
    Sign up for monthly reminder emails conference calls and codes at
    MVPS-D_OI_NOVA at Yahoo, write mvps-d_oi_nova-owner@yahoogroups.com or call Elly at 703-968-9818 or Toni at 410-647-7578.

     

  • May 8, 2012, Tuesday, 7pm: Bethesda ME/CFS & FM Support Group
  • Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, click link above or Email Us


  • May 12, 2011: International CFIDS, FM, CIND Awareness Day

  • May ??, 2012, ??, : Empty Chairs Project at CFSAC Meeting, May 2012, Wash, DC

    By "Speak Up about ME" - a grassroots effort to show legislators that NeuroEndocrineImmune diseases also afflict children. Photos requested.

  • May ??, 2012, ??: 9a - 5pm: Federal CFS Advisory Committee (CFSAC)
  • Agenda is being developed

    Washington, D.C.

    Direct all inquires to Nancy C. Lee, MD, Designated Federal Officer: cfsac@hhs.gov.

    The meeting will be recorded and archived for on-demand viewing through the CFSAC web site. It will be available by audio on both days and the call-in numbers will be posted on the CFSAC Web site. Public attendance at the meeting is open. Those attending will need to sign-in prior to entering (bring ID). Members of the public will have the opportunity to provide oral testimony on both days of the meeting; pre-registration for oral testimony is required by ??, April ??, 2012.

    Time slots for public comment will be available on a first-come, first-served basis and will be limited to five minutes per speaker; no exceptions will be made. Priority will be given to individuals who have not presented public comment at previous CFSAC meetings. Individuals registering for public comment should submit a copy of their oral testimony in advance. More details

    Video link: http://videocast.nih.gov/

    Read more about The CFSAC at CFIDS.org


  • May 19, 2012, 3rd Saturday: 2 - 4 pm: NOVA CFSupport Meeting
  • Honoring Awareness Day:
    "History of Pain and Fatigue Syndromes, Version 1.0"
      Brian Walitt, M.D. of Washington Hospital Center
      Family and friends are welcome.

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


  • May 31st, 2012, Thursday, 3 PM EDT: Elly's Gratitude Group
  • TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of ∞ gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    June 2012



    Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, click link above or Email Us


    Discussion Meeting

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    Topic: ?
    Speaker: ?

    Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
    (240) 777-4999 (directions only).
    For anyone with chronic pain, family members and/or professionals.
    For details, Pain Connection Groups and Conference Calls,
    call Pain Connection at (301) 231-0008.



    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of ∞ gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    July 2012



    Discussion Meeting

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of ∞ gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    August 2012

     
    Discussion Meeting

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of ∞ gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    September 2012

    Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, click link above or Email Us



  • Sep ?, 2012, Sat: OFFER 2012 Conference for Healthcare Providers and Patients


  • September ?, 2012, Friday, 9am - 4 pm: Pain Awareness Month Symposium
  • TBD. For patients and professionals.
    CME Credits for professionals.
    Rockville, MD
    For info and registration fee, call Pain Connection at (301) 231-0008 or check
    http://www.painconnection.org
    For DVD from last year's symposium with Dr. Pocinki and Dr. Kaplan, see "From Research to Clinical Practice" DVDs     
       

  • Sep 15, 2012, 3rd Saturday: 2 - 4 pm: NOVA CFSupport Meeting
  • Honoring Pain Awareness Month:
    "Pain without a Cause"
      Brian Walitt, M.D. of Washington Hospital Center
      Family and friends are welcome.

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. Free. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of ∞ gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.



    The IACFS/ME International Clinical and Research or Patient Conference
    Hosted by ??

    Title: TBD
    Location: TBD


    Topic: TBD
    Speaker: TBD

    Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
    (240) 777-4999 (directions only).
    For anyone with chronic pain, family members and/or professionals.
    For details, Pain Connection Groups and Conference Calls,
    call Pain Connection at (301) 231-0008.




    October 2012


    Agenda is being developed

    Holiday Inn Capitol, Columbia Room, 550 C Street, S.W., Washington, D.C. 20024. Hotel phone number: 202-479-4000.

    Direct all inquires to Nancy C. Lee, MD, Designated Federal Officer: cfsac@hhs.gov.

    The meeting was recorded and archived for on-demand viewing through the CFSAC web site. It will be available by audio on both days and the call-in numbers will be posted on the CFSAC Web site. Public attendance at the meeting is open. Those attending will need to sign-in prior to entering (bring ID). Members of the public will have the opportunity to provide oral testimony on both days of the meeting; pre-registration for oral testimony is required by Wednesday, October 26, 2011.

    Time slots for public comment will be available on a first-come, first-served basis and will be limited to five minutes per speaker; no exceptions will be made. Priority will be given to individuals who have not presented public comment at previous CFSAC meetings. Individuals registering for public comment should submit a copy of their oral testimony in advance. Details of last fall's meeting.

    Video link: http://videocast.nih.gov/

    Read more about The CFSAC at CFIDS.org


    Title: TBD
    For more info, see www.njcfsa.org or call the NJCFSA Informational Help Line 888-835-3677. Non-member conference registration is $40. CME Credit available.


    Topic: "Body Mechanics; A Key to Protecting Your Body and Managing Pain".
    Speaker: Richard C. Wilson, OTR


    Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton MD 20906
    (240) 777-4999 (directions only)
    For info, Pain Connection Support Groups, call (301) 231-0008.



    Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, Email Us

    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    November 2012



    Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, Email Us


    Thanksgiving + Discussion


    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    Topic: "Painless Puzzles" author, "Regrow Gray Brain Matter through Acrostic Puzzles"
    Speaker: Neil Goldstein

    Holiday Park Senior Center, 3950 Ferrara Dr, Wheaton, MD 20906
    (240) 777-4999 (directions only)
    For info, Pain Connection Support Groups, call (301) 231-0008.



    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.




    December 2012




    Christ Lutheran Church
    8011 Old Georgetown Road, Bethesda, MD 20814
    For Bethesda group contact info, Email Us


    Discussion Meeting + Coping with Holidays

    Sully Governmental Center, James McDonnell Room
    (same building as Sully District Police Station)
    4900 Stonecroft Blvd, Chantilly, VA 20151. Free.
    No registration required. (703) 968-9818, (410) 647-7578.
    See also: Meetings,  Directions.


    TELECONFERENCE - for those with CFS, FMS, and/or OI.
    The EGG call is a mind-body-spirit telephone support group focusing
           on the practice and benefits of gratitude.
    Join Yahoo group EGGdish for date and dial-in info reminders,
           for a place to practice writing gratitude for healing.
    Call Elly at 703-968-9818 or write
           eggdish-owner@yahoogroups.com
    No fee. Callers pay own applicable long distance rates.
    For more info, see EGG.





    2013 Coming Attractions . . .

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    Updated November 18, 2012